LA Dysautonomia Network

LA Dysautonomia Network We support those with dysautonomia in LA & CA through community, education, & financial support.

We hope you can join us this Thursday, August 13th, 2-3pm, for Mindful Movement with instructor Lian Norris! .holisticsT...
08/10/2026

We hope you can join us this Thursday, August 13th, 2-3pm, for Mindful Movement with instructor Lian Norris! .holistics

Theme: This class start with a discussion around the theme "managing mornings with dysautonomia" -- a topic that we're continuing from last month's class! Lian will lead us in a discussion around this theme for the first 10-15 minutes, and then we will spend the remainder of the hour practicing mindful movement.

Sign up at: https://form.jotform.com/261931644315153

About this workshop:
The intention of this class is to provide a safe space for people to explore gentle movement, breath work, and mindfulness while in the comfort of their own homes! This class will utilize both a yoga mat (or any cushion/carpet/rug you may have at home!) and chair to provide various adaptations to fit individuals physical needs. Beginners are welcome!

Optional Donation: This workshop is free for LADN members! Donations to help cover the instructor fee are optional, and can be made at: givebutter.com/ladn

Visit our website for a list of suggested items to bring! la-dn.org/events

We are so delighted to partner with Leland Law for a webinar on Applying for Social Security Disability Benefits! Join u...
08/06/2026

We are so delighted to partner with Leland Law for a webinar on Applying for Social Security Disability Benefits! Join us on Thursday, August 27th from 12:00-1:30pm for this informative talk. Be sure to sign up to receive the Zoom link! https://form.jotform.com/261726283744160

Whether you are just starting to explore your options, ready to apply, or simply gathering information for a loved one, we welcome you to join this informative talk. Experienced Social Security Disability lawyers Moselle Leland and Alexis Leland, of Leland Law, will lead this talk, with the goal of helping patients and families better understand the disability benefits application process and feel more prepared to take the next steps.

We'll cover:

- The basics of SSDI and SSI -- and which one may be right for you
- Qualifications
- Information and documents to gather before applying
- The application process
- Denials & appeals
- How a disability lawyer can help (and how to work with Leland Law)
- Q&A

About Leland Law: Leland Law is a family-run law practice founded in 1974 by Judith S. Leland, a former Social Security Administrative Law Judge. Since its founding, the firm has been dedicated to representing individuals seeking disability benefits. With decades of focused experience in this area, the practice has developed a deep understanding of the disability system and remains committed to advocating for claimants at every stage of the process.

Learn more about our presenters, Moselle Leland, J.D. and Alexis Leland, J.D. on our website at LA-DN.org/events.

LADN's teen support group will be meeting this week on Thursday, August 6th, 4:15-5:15pm! We welcome all teens (ages 13-...
08/03/2026

LADN's teen support group will be meeting this week on Thursday, August 6th, 4:15-5:15pm! We welcome all teens (ages 13-19) living with dysautonomia to join us! This group is facilitated by clinical psychologist Dr. Samantha Levy. ⁠

Please sign up to receive the Zoom link: https://form.jotform.com/261870632803154

Join us this Wednesday, August 5th, 1-2pm for LADN's patient support group meeting! This group is appropriate for adults...
08/02/2026

Join us this Wednesday, August 5th, 1-2pm for LADN's patient support group meeting! This group is appropriate for adults (18+) living with dysautonomia. Please sign up in advance to receive the Zoom link at: https://form.jotform.com/261881299266168

Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This group is patient-run and not facilitated by a licensed medical or mental health professional. ⁠

It's August! 😎☀️We're so excited to spend some time with the LADN community throughout the month! You can find more info...
08/01/2026

It's August! 😎☀️We're so excited to spend some time with the LADN community throughout the month! You can find more info and sign up links on our website: LA-DN.org/events

🩵Monday, August 3rd, 1-2pm: Caregiver Support Group

💜Wednesday, August 5th, 1-2pm: Patient Support Group

🩵Thursday, August 6th, 4:15-5:15pm: Teen Support Group

💜Thursday, August 13th, 2-3pm: Mindful Movement ("Managing Mornings with Dysautonomia")

🩵Thursday, August 20th, 4:15-5:15pm: Teen Support Group

💜Saturday, August 22nd, 1-2pm: Patient Support Group

🩵Sunday, August 23rd, 4-6pm: Summer Movie Night in Pasadena! (Location & movie announcement coming soon!)

💜Thursday, August 27th, 12-1:30pm: Webinar on Applying for Social Security Disability Benefits (in partnership with Leland Law)

Join us on Monday, August 3rd from 1-2pm, for our Caregiver Support Group with Dr. Samantha Levy! ⁠⁠Sign up to receive t...
07/31/2026

Join us on Monday, August 3rd from 1-2pm, for our Caregiver Support Group with Dr. Samantha Levy! ⁠

Sign up to receive the Zoom link at: https://form.jotform.com/261866045141152

We welcome all dysautonomia caregivers (parents, spouses/significant others, friends, family, etc.) to attend. The caregiver group is a space for open and supportive discussion related to caring for an individual with dysautonomia.⁠

Thanks to all those who joined us at the Santa Catalina Library for our disability pride month talk! It was a joy to be ...
07/22/2026

Thanks to all those who joined us at the Santa Catalina Library for our disability pride month talk! It was a joy to be back at the place where the LADN community first began and to spread awareness about invisible disabilities. 💜🩵😊
Thank you for your support of LADN and for inviting us!

Join us this Saturday, July 25th, 1-2pm for LADN's patient support group meeting! Please sign up in advance to receive t...
07/22/2026

Join us this Saturday, July 25th, 1-2pm for LADN's patient support group meeting! Please sign up in advance to receive the Zoom link at: https://form.jotform.com/261807286142155

Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This group is patient-run and not facilitated by a licensed medical or mental health professional. ⁠

LADN's teen support group will be meeting this week on Thursday, July 16th, 4:15-5:15pm! We welcome all teens (ages 13-1...
07/14/2026

LADN's teen support group will be meeting this week on Thursday, July 16th, 4:15-5:15pm! We welcome all teens (ages 13-19) living with dysautonomia to join us! This group is facilitated by clinical psychologist Dr. Samantha Levy. ⁠

Please sign up here to receive the Zoom link: https://form.jotform.com/261680616841157

Please join us this Tuesday, July 14th @12:30pm for our discussion of Lena Dunham's Famesick! We'll be emailing out the ...
07/12/2026

Please join us this Tuesday, July 14th @12:30pm for our discussion of Lena Dunham's Famesick! We'll be emailing out the Zoom link to all LADN members the morning of the meeting. If you're not currently on our member email list and would like to attend, please DM us or reach out by email at [email protected].

And we're so touched to have received a letter directly from writer Lena Dunham to the LADN community! Please enjoy her heartfelt words below. 😊

"Hello, Lena here!

I am honored to be read as part of your book club. As a POTS patient, I’ve had to learn so much about this condition on my own, and I love knowing that your members are getting to read together regularly and expand their understanding of their own experience, so that hopefully they can feel more confident and empowered talking to medical professionals or explaining their needs and their experience to colleagues, family and friends. My deepest goal with Famesick was to offer a picture of a misunderstood condition, but it was also to create a sense of community and being seen for other people whose experience of their body has not been reflected in popular culture. To know that it’s being shared with other dysautonomia sufferers is really really special to me.

On a personal note (well, I guess the whole book is a personal note, hehe) my beloved uncle Edward Wood Dunham passed away as a result of Multiple Systems Atrophy in 2015. The condition, which- like all dysautonomic conditions and conditions that result in secondary dysautonomia- was under researched and little understood, and we had to learn as a family what this meant for him and how to support him through the progression of the disease. I wish he had gotten to experience this community of like minded people, as there is a true bond that arises from sharing a medical diagnosis with others, things that can go unspoken but still be understood just because of a collective experience.

I am currently finishing up a book tour that was quite ambitious for someone with an energy limiting condition, and so I am taking a beat to regain my footing and settle back at home- as we know, pacing is important- so sadly I won’t be able to join the zoom discussion this coming month. But please feel free to share this message with your members, and I’ll take this moment to directly address them and say:

Thank you for reading Famesick, and even more so for urging us toward more open conversations about dysautonomia. I hope this book makes you feel a little less out of the ordinary and a little bit more understood. But if I could express one true wish, it would be that you all find a way to share what you’re going through. My chosen medium is writing, but- whether it’s a conversation in which you enlighten a loved one, a message board with other sufferers or just this book club- however you choose to enrich the world with your story, we will all be better for it.

Much love,
Lena"

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Los Angeles, CA

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