02/27/2025
Kaylee was born in 2013 perfectly healthy and full of the most amazing spirit and personality. She was a free-spirited child that loved nature, animals, the outdoors and all things enchanted. Kaylee started experiencing unexplained falling at age 4. By age 6, she was having trouble walking. The Bland’s received Kaylee’s diagnosis of an IRF2BPL mutation on February 18, 2020. Kaylee lost her ability to run and most of her ability to walk as she turned 7 years old. At age 8, she became G-tube dependent as she lost the ability to eat. Kaylee’s mother, Tanya, said the most devastating loss was completely losing her ability to talk by the age of 10. Now at 11, she is non-ambulatory, nonverbal, struggles with scoliosis, loss of muscle tone, weakened bones, weakened respiratory function, seizures and vision problems. Despite the challenges she faces, when you get to know Kaylee you see a beautiful warrior tween with that same love of all things nature, animals and enchantment. She has a hilarious sense of humor, a wild love of music and has a zest for life that is unmatched. She touches the soul of every person that meets her, and she is the bravest fighter her family has ever known! Tanya says, “We pray every day for a miracle so that this disease doesn't take any more of our amazing Kaylee.”
You can learn more about Kaylee and follow her story at Kaylee’s Krusade.
