Stella Strong

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Stella Strong, Nonprofit Organization, Los Angeles, CA.

Our mission is to raise awareness of and funding for CDKL5 and orphan disease research in general, so that we can find treatments—and ultimately, a cure—that can help Stella and others like her live the beautiful lives they deserve. “Alone we can do so little; together we can do so much.” - Helen Keller
The Cure Rare Foundation (formally Stella Strong) is coordinating to support organizations foc

using on addressing CDKL5 Deficiency Disorder and other rare genetic diseases to help our kids live better lives.

03/29/2026

“I do not like the world as it is…”

Same.

Turns out… staying quiet doesn’t create change.

For families like ours, what’s happening right now isn’t abstract—it shows up in therapies, nurses, services, and support Stella and kids like Stella rely on every single day.

👉 And this is who we’re speaking up for.

So yeah, we’re going to use our voices!

Not to fight each other,
but to fight for a better system that doesn’t leave families like ours behind.

Because change doesn’t happen quietly.
And our kids deserve better!

Especially for her 🧡

03/27/2026

Wore purple. Brought the attitude. 💜

Today is World Epilepsy Awareness Day…and yeah, we’re making it loud, bold, and impossible to ignore!

Epilepsy affects millions, but awareness still has some catching up to do.

So consider this your stylish little reminder:
Pay attention. Learn something. Show up.

Because awareness shouldn’t be quiet!

And if we can do it looking this cool… even better! 😉

02/18/2026

Our little rider is ready for the Year of the Fire Horse 🔥🐎

A year symbolizing strength, resilience, and fearless progress — exactly the energy driving the rare disease community forward.

As we step into this new lunar year and chapter, we’re channeling all of this fire into one mission:

Manifesting progress.
Manifesting breakthroughs.
Manifesting a cure.

Riding into this year with courage, gratitude, and unwavering hope for what’s ahead — and believing every step forward brings us closer to a cure.

11/27/2025

Thanksgiving hits differently when your voyage does.

Our family has the superpower of seeing other people’s frustrations and disappointments as dreams come true.

We hope this post helps you look through our rose-colored glasses today — to notice the blessings hiding in the hard moments, the miracles tucked into the everyday.

Eat well, be grateful, and hug your people. 🧡

01/11/2025

Spread the word! If your AAC equipment is one of the items lost in these terrible Los Angeles fires, here’s a way to get it back fast!

.slp .slp .slp

11/02/2024

Have you signed up yet for the 3rd Annual Gate14 Stella Strong event?!?

Stella has to kick her butt every day to learn how to walk, talk, and live in our world. Show us that you are just as Stella Strong by trying out this incredible workout to support research for therapy for a cure for kiddos just like her!

November 9, 2024 9AM Workout; after party follows next door at 10:30AM at Hudson House! Join even if you can’t do the workout!

Can’t make it? No problem! Share with your friends who might be able to stop by for some burpees or burgers!

Let’s show this world what being Stella Strong really looks like next week!

Sign up link in bio.

10/15/2024

Question: What are you doing November 9th at 9AM
Answer: Getting at the 3rd Annual Cure Rare Event! 🎉

Join us at and on Nov. 9th for the ultimate workout event to raise money to end pediatric rare genetic diseases! Register and start fundraising today. Link in bio. 🧡

SHARE this post with your friends and family to remind them to mark their calendars 📅

When: November 9, 2024 9AM

Where: Gate14 Fitness followed by Hudson House in Redondo Beach CA

Address

Los Angeles, CA

Website

https://www.stellastrong.com/

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