TPIRC A Rare Disease Institute 🦋
Restoring hope. Advancing discovery. Empowering communities.

Orphan diseases include rare diseases that affect fewer than 200,000 people in the United States (such as cystic fibrosis) and more common conditions that have been neglected by the pharmaceutical industry (including food allergy). Because the pharmaceutical industry lacks the financial incentive to research, develop, and deliver treatment options for orphan conditions, patients have largely been

ignored by the traditional medical community. TPIRC (the Translational Pulmonary and Immunology Research Center) provides a medical home that advances advocacy, research, and clinical care and gives people with orphan conditions hope for a better life.

05/29/2026

2 days left. This is the moment.

We are building something that has never existed before: a first of its kind program designed specifically for food allergy families carrying the fear, the hypervigilance, and the emotional weight of this disease every single day.

We crossed $50,000. Help us finish what we started.

$5 or $500, every dollar is a building block. No contribution too small.

Link in bio to donate now.

05/28/2026

This is the final week.

All month we have been sharing what food allergy families carry every single day. The fear. The survival mode. The emotional weight that no system has ever been built to address.

4 days left for this campaign.

Help us build what should have existed all along. Link in bio to support.

05/27/2026

There is no standardized system of care for food allergy families carrying the emotional weight of this disease. Our team knows it. This is what they have to say about it.

5 days left in May. This is the final push.

Treating the physical burden is only half the picture. As bodies find freedom, the fear, the anxiety, the years of survival mode, those need support too. No integrated system has ever been built to do that.

Help us finish strong.
Link in bio to learn more.

05/26/2026

Who treats the person? Who supports the parent when the anxiety gets too loud?

Therapists exist. Allergists exist. But no integrated, data-driven system has ever connected them for food allergy families. That gap has always fallen on the family to fill.

We are 5 days away from the end of May. This is the window.

This is what your support will be building:
• Telehealth consoles so families can access specialized care from anywhere
• Family counseling that heals the whole home
• Standardized evaluation protocols
• Data-driven outcome tracking so we know what is working
• A multi-state trained provider network so geography is never a barrier

Families have carried this alone long enough.
Link in bio to learn more.

05/25/2026

Every food allergy family knows the Epi-pen instructions. The emergency protocol. The list of foods to avoid.

What they do not get handed is support for the fear that comes with it. Because right now no complete integrated system exists that connects food allergy treatment with emotional support. You can find someone here or there. But a real closed-loop program that diagnoses, treats, and follows up, connected directly back to the care team. That has never been built.

TPIRC x FAI is building it. Within six to nine months. A telehealth portal. A specialist network trained in food allergy distress. The first standardized protocols powered by machine learning. And our number one goal is for this to be fully covered by insurance so no family pays out of pocket.

Every dollar donated goes directly to building this program. The telehealth portal, the specialist network, and the standardized protocols. This program is long overdue. Help us build it. Donate at link in bio

The traditional mental health system wasn’t built with food allergy families in mind. Finding a therapist who truly unde...
05/19/2026

The traditional mental health system wasn’t built with food allergy families in mind. Finding a therapist who truly understands the daily hyper-vigilance of navigating a school lunch or a restaurant menu is incredibly rare.

But we have a chance to change that. 🧠✨

Through our May Campaign, we’re working toward creating specialized telehealth support for patients and families navigating the emotional realities of food allergies.

Join us in helping families feel seen, supported, and understood. Every donation moves this vision forward. Link in bio to learn more 💙

05/14/2026

There is a moment every food allergy family knows.

The Epi-pen is in the bag. The action plan is on file. The physical side is being managed. And yet the fear hasn’t gone anywhere.

So you look for help. You search for someone who understands what it actually feels like to live with a life-or-death allergy. Someone who gets the hypervigilance, the sleepless nights, the panic that doesn’t turn off even when everyone else has moved on.

Here is what you find. Out of pocket costs just to get an initial evaluation. A therapist who has never heard of anaphylaxis. No connection back to your allergist. No standardized protocol. No one tracking whether you are actually getting better.

You are left to bridge that gap completely alone.

That is the current mental health system for food allergy families. And it has existed for too long.

We are building the alternative. The first end-to-end clinical model designed specifically for food allergy families. Insurance covered. Specialists trained in food allergy distress. A consistent standard of diagnosis and treatment integrated directly into the care journey.

Help us replace a broken system with one that finally works for families like yours. Donate at the link below. 💙

05/08/2026

Fear is a part of living with food allergies.

Every meal is a calculation. Every school day carries risk. Every birthday party is a quiet emergency. And when the physical danger passes, the fear doesn't.

For years, medicine focused on the physical side. The labs, the doses, the emergency protocols. But the hypervigilance that doesn't turn off, the anxiety that follows your family home, the emotional weight that lives between reactions, that has never had a clinical home.

Until now.

This May, TPIRC x FAI is launching the first dedicated mental health program built specifically for food allergy patients and families. A telehealth portal. Specialists trained in food allergy distress. Insurance-covered care so no family pays out of pocket.

We are raising $100,000 to build it. Every dollar funds the mental health care food allergy families have always deserved.

Help us build what should have existed all along.

Join the TPIRC x Food Allergy Institute (FAI) this weekend for a great cause! 👟💙We are lacing up our shoes for the Ronal...
04/28/2026

Join the TPIRC x Food Allergy Institute (FAI) this weekend for a great cause! 👟💙

We are lacing up our shoes for the Ronald McDonald House Walk for Kids in Long Beach to support families in our community. This event is a wonderful opportunity to walk together and help bring hope and support to those who need it most, reflecting our shared mission.

Come walk with us, connect with the community, and grab some FAI swag!

🗓️Date: Saturday, May 2, 2026
⏰Time: 7:00 AM to 11:00 AM
📍Location: Shoreline Park, 200 Aquarium Way, Long Beach, CA 90802

Click the link in our bio to sign up or donate on our team page.

See you Saturday!☀️

 

Smiling because it’s  ! 🧪✨We’re finishing LabWeek strong! While some of our team is hard at work behind the scenes, we c...
04/24/2026

Smiling because it’s ! 🧪✨

We’re finishing LabWeek strong! While some of our team is hard at work behind the scenes, we caught these four smiling after a great session yesterday.

Huge thanks to for providing lunch and hosting an insightful presentation on the future of Celiac Disease diagnostics. Good food and great science are the best ways to fuel our mission!

We are so proud of this team’s dedication to clinical excellence. Help us celebrate them by leaving a 💙 in the comments!

Address

701 E 28th Street #419
Long Beach, CA
90806

Telephone

562-490-9900

Website

https://givebutter.com/fear-is-a-part-of-living-with-food-allergies-xf8yz4?utm_source=instagram&u

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