10/25/2026
(LBD) can cause changes in thinking, movement, mood, sleep, communication and perception. While these changes can be challenging for the person living with Lewy, it can also be difficult for family members and care partners who are trying to understand what is happening and how best to help.
For the person living with LBD, daily experiences may feel confusing, frustrating or unpredictable. Many individuals describe feelings of loss, fear, or uncertainty as they adapt to life with a progressive condition.
For care partners, the experience is often marked by concern, worry, and the challenge of responding to changes they may not fully understand. They may grieve the loss of familiar routines, roles, or interactions while balancing responsibilities and emotional stress.
Because both perspectives are valid and often difficult, regular conversations can strengthen understanding and connection. Consider setting aside time to ask simple questions of each other. The goal is not to solve every problem, but to listen with curiosity and empathy. By creating space for honest conversations, people living with LBD and those who support them can learn from one another, reduce misunderstandings, and build stronger partnerships.
For more ideas and information, contact LBDA’s Support Services Team directly by email at [email protected], by contacting us online or by leaving a message on the Lewy Line at 800-539-9767.
