Tiny Hero: Real Hope for CDH

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Tiny Hero: Real Hope for CDH

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Tiny Hero: Real Hope for CDH - providing hope for Congenital Diaphragmatic Hernia babies everywhere!

Tiny Hero: Real Hope for CDH is a community built by and dedicated to the families of children born with Congenital Diaphragmatic Hernias (CDH).

10/31/2026

Happy Halloween from Tiny Hero! 🎃👻💙 We want to see your little pumpkins in their Halloween costumes! Share a photo of your Tiny Hero with us!

10/30/2026

Meet Tiny Hero Calvin! 💙 Diagnosed with CDH at his 20-week anatomy scan, Calvin’s family faced months of uncertainty before he arrived at 37 weeks.

Calvin underwent CDH repair at just 3 days old, followed by weeks of breathing and feeding challenges. After 32 days in the NICU, he finally went home!

Today, Calvin is discovering the world one smile at a time. His journey is a reminder that even the smallest milestones can be the biggest victories.

Read his story: https://www.tinyhero.org/tiny-hero/calvins-cdh-story

10/28/2026

We loved bringing our St. Pete CDH families together for a recent parent meetup! 💙 These connections remind families they’re not alone in their CDH journey.

We’re starting at Johns Hopkins All Children’s Hospital, with meetups taking place on the last Tuesday of each month! We hope to bring this support to more hospitals in the future.

Want to start a meetup at your local hospital? Email [email protected] to get started!

10/27/2026

FINAL REMINDER! 💙 Today is the LAST day to submit your Tiny Hero’s name for our 2026 Hope for the Holidays shirt!

All name submissions must be made by the end of today to be included in this year’s design. Names from previous years won’t automatically carry over, so make sure to fill out the form again!

Don’t miss your chance to include your Tiny Hero in this year’s holiday shirt!

Submit their name here: https://forms.gle/at8CdL4riYu4v7P68

10/25/2026

Meet Tiny Hero Hudson! 💙 Diagnosed with right-sided CDH before birth. At just 8 days old, Hudson underwent a successful CDH repair.

After 27 days in the hospital, Hudson finally went home with oxygen and a feeding tube. Today, at 6 months old, he is off his feeding tube, eating on his own, and growing stronger every day!

Hudson’s journey is a beautiful reminder that even when the beginning looks different than expected, there is always room for hope. 💙

Read his story: https://www.tinyhero.org/tiny-hero/hudsons-cdh-story

10/23/2026

Save the date! 💙 Our 2027 CDH Awareness Walks & Runs are coming! Keep an eye out for an event near you, and help us raise awareness for CDH!

Want to host a walk or run in your own community? We’d love to have you! Sign up here:
https://forms.gle/ihWthMuXd6FQb9ny8

10/22/2026

St. Pete CDH families, this one’s for you! 💙

Join us for a Tiny Hero Parent Meetup: Tuesday, October 27! Come connect with other CDH families, share stories, and spend time with a community that understands your journey.

All CDH families in the St. Pete area are invited, and we’d love to see you there!

Please RSVP by TOMORROW using the link:
https://forms.gle/dgysX6bKiDAzAecGA

10/20/2026

There’s still time to get your Tiny Hero’s name on our 2026 Hope for the Holidays shirt!

Submit their name by October 26 to be included in this year’s design. Names from previous years won’t automatically carry over, so please fill out the form again!

We can’t wait to celebrate our Tiny Heroes this holiday season.

Submit your Tiny Hero’s name: https://forms.gle/at8CdL4riYu4v7P68

10/18/2026

Meet Tiny Hero Quillan! 💙 Diagnosed with CDH at his 21-week scan, Quillan arrived nearly four weeks early and needed support breathing. At just 7 days old, he underwent surgery to repair a large hernia, receiving a patch where much of his left diaphragm was missing.

After 56 days in the hospital, Quillan finally went home. Now 2 years old, he’s thriving, climbing, laughing, and keeping his family on their toes! His journey is a reminder of the strength of our Tiny Heroes and the hope found in the CDH community. 💙

Read his story: https://www.tinyhero.org/tiny-hero/quillans-cdh-story

10/16/2026

Leaves are falling, and birthday wishes are calling! 🍂🎈

Happy birthday to our October crew: Cooper, Ellie, Birdie, Jack, Kenzleigh, Olivia, Scottie, Violet, and Weston! 🎂

Leave a little birthday love in the comments! 🍁💛

Address

5513 W 11000 N #235
Highland, UT
84003

Website

http://www.tinyhero.org/

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