The Lambert-Eaton LEMS Family Association is a 501c3 nonprofit supporting rare disease patients, family, and caregivers for the rare disease, Lambert-Eaton Myasthenic Syndrome (LEMS). Our mission is to improve awareness of LEMS to doctors, clinicians, academics, researchers and the general public. We support research through our administration of the LEMS Patient Registry available free to researc
hers, academics, and pharmaceutical companies. We advocate for LEMS patients through local, state and federal legislative advocacy. We not only represent our rare disorder, but the best interests of all rare diseases. Family is important to us! As a nonprofit supporting an ultra rare disorder, we work hard to foster belonging and family within our patient population and everyone who's lives are affected by LEMS.
