Beyond the Diagnosis

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East Providence, RI
Beyond the Diagnosis

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Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Beyond the Diagnosis, Charitable organisation, East Providence, RI.

Beyond the Diagnosis unites art and science to bridge the knowledge gap in healthcare, promote inclusivity, and raise awareness for children living with life-altering diseases. Families living with a rare disease face unique challenges: inaccurate or no diagnosis, insurance and other reimbursement problems, lack of awareness in the medical community and general public, and an overwhelming sense of isolation.

10/23/2026

October 23rd is Kabuki Syndrome Awareness Day! Meet Rikki, painted by artist Thea McElvy

10/20/2026

October is Down Syndrome Awareness Month! Meet Riven, painted by Robert Francis Whelan!

09/29/2026

September 29th is Aarskog Syndrome Awareness Day. Meet Zachary, painted by Kelliann Jarasitis.

09/26/2026

September is Sickle Cell Awareness Month. Meet Raine, painted by Jota Leal

09/24/2026

September 24th is aHUS Awareness Day. Meet Devon, painted by Tom Hughes

09/21/2026

September 20th is LBSL Awareness Day! Meet Alice painted lovingly by Jota Leal

09/16/2026

September 15th is International Wiedmann-Steiner syndrome Awareness Month. Meet Sophie, painted by artist Clark Ocampo.

09/10/2026

September is Tay-Sachs Disease Awareness Month. Meet Cora, painted by Lori Jeremiah.

06/16/2026

June is Apert Syndrome Awareness Month! Meet Giuliana!

06/11/2026

June 11th is KBG Syndrome Awareness Month. Meet Glenn, Painted by artist Robert Hurst!

Address

East Providence, RI
02916

Website

http://www.beyondthediagnosis.org/

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