My XXY, Chromodiversity Foundation

My XXY, Chromodiversity Foundation Helping those with genetic differences thrive, starting with the X & Y community. Donate or volunteer today! Contributions are tax deductible.

We are dedicated to raising positive awareness of common genetic differences and supporting families in need. Inspired by the story of a remarkable boy born with an extra 47th X chromosome, My XXY | Chromodiversity™ Foundation was established in 2020 in Tempe, AZ as a US non-profit organization. Initially focused on XXY, we broadened scope in 2021 to all X&Y chromosome variations and other genetic

differences. Chromodiversity refers to genetic code differences in people’s DNA. Just as ‘biodiversity’ refers to the diversity of life and ‘neurodiversity’ to the diversity of brains, chromodiversity is a way to talk about the diversity of human genetic codes in a natural way. We introduced the term in 2022 as a way to depathologize the language of genetics at a time of increased screening and early diagnoses. Since then, the chromodiversity movement has rapidly become one of the most trusted and effective voices dedicated to changing the way the world perceives and supports genetic diversity. Guided by an Advisory Board of visionary leaders & a global team of Brand Ambassadors, My XXY | Chromodiversity foundation is represented in over 30 countries & 10 US states. My XXY | Chromodiversity™ Foundation is a US registered 501(c)3 non-profit.

Today Jessica Langenhoff was laid to rest. Jessica was Chromodiversity’s Ambassador in the Netherlands.She would have wi...
05/18/2026

Today Jessica Langenhoff was laid to rest. Jessica was Chromodiversity’s Ambassador in the Netherlands.
She would have winced at a post like this: she spent her life refusing the spotlight, doing the work quietly, in the background, the way she preferred.

But the truth is that she held an enormous amount for our communities, and she should be named for it.
She was the person families found when their children were newly diagnosed with an X or Y chromosome variation and frightened. She was the steady voice on the other end of a message at any hour. She was the honest, insightful critic of everything we built.

She built bridges between the Dutch and international
X&Y communities - Turner (X0), Trisomy X (###), Klinefelter (XXY), XYY and beyond. And she did it without ever asking for credit.

I met her at a conference in Leiden three and a half years ago. We recorded a podcast together not long after.
Listening back to it now, what comes through is exactly what came through in person: warmth, intelligence, mischief, and a fierce, unsentimental commitment to the people she served.

We became close friends and her contribution to Chromodiversity cannot be overstated.
She leaves a son she adored, Jan, and a community that is quieter and smaller without her.

Dag, lieve Jessica. Dank je wel. 🌻

(Podcast: https://Inkd.in/euNDJPVz)

- Elliot

Chromo team takes Coventry! This weekend, we had the pleasure of attending the KSA Annual Conference and delivering our ...
05/12/2026

Chromo team takes Coventry! This weekend, we had the pleasure of attending the KSA Annual Conference and delivering our Chromo Camp programme for teens with XXY. A huge thank you to for having us, we loved meeting so many wonderful families 💜

We’re excited to be partnering with KSA-UK to host a dedicated ChromoEvent for XXY teens this May during the KSA Annual ...
04/02/2026

We’re excited to be partnering with KSA-UK to host a dedicated ChromoEvent for XXY teens this May during the KSA Annual Conference in Coventry.

A day focused on connection, confidence, and community in a supportive environment, with XXY mentors.

📍 Coventry, England
🗓️ Saturday, May 9
⏰ 10:00 AM – 3:00 PM

Places are limited. Register here: https://www.chromodiversity.org/ksa-chromoevent

  is proud to join world’s leading event on newborn screening genomics.  .
10/22/2025

is proud to join world’s leading event on newborn screening genomics. .

Excited to be partnering with AXYSGenetic.org to host a chromo experience for kids and teens with genetic differences at...
07/13/2025

Excited to be partnering with AXYSGenetic.org to host a chromo experience for kids and teens with genetic differences at the AXYS Atlanta conference this month! Only a few spaces left✨

AXYS would like to extend our thanks to the Chromodiversity™ Foundation for providing the Chromodiversity™ Camp experience for kids and teens attending the 2025 AXYS Community Conference!

About the Chromodiversity™ Camp event: https://www.chromodiversity.org/axys-chromoexperience

Learn more about the Chromodiversity™ Foundation here: https://www.chromodiversity.org/ourstory

Follow them on Facebook: My XXY, Chromodiversity Foundation

🌟Meet Toby Whittington, our Perth, Australia ambassador, who discovered at 32 that he was one of the 1 in 500 men born w...
05/09/2025

🌟Meet Toby Whittington, our Perth, Australia ambassador, who discovered at 32 that he was one of the 1 in 500 men born with an extra X chromosome (XXY)—a common but often misunderstood genetic variation. In the first of two episodes, Toby shares how his diagnosis brought a mix of shock and grief—but also catalyzed profound personal growth, self-acceptance, and a renewed sense of purpose.

Meet Lara Bloom, CEO of The Ehlers-Danlos Society, and a leading voice in the global movement for Ehlers-Danlos syndrome...
04/28/2025

Meet Lara Bloom, CEO of The Ehlers-Danlos Society, and a leading voice in the global movement for Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).

In this episode, Lara shares how she’s driving worldwide awareness, the challenges patients face, and why early diagnosis is critical for those living with these often-misunderstood conditions.

🔗 Listen to her interview now: https://youtu.be/VSoQL-PxPt8

We loved collaborating with the incredible teams at the EXtraordinarY Kids Clinic and AXYSGenetic.org at the 2025 ACMG -...
04/10/2025

We loved collaborating with the incredible teams at the EXtraordinarY Kids Clinic and AXYSGenetic.org at the 2025 ACMG - American College of Medical Genetics and Genomics Conference!

Together, we’re proud to raise awareness about X&Y variations and share resources that empower families and providers alike. Thank you to all making it happen 🙌

🙏 EXtraordinarY Kids for supporting our drive to “Depathologize the Language of Genetics” together with at !

Klinefelter's Syndrome Association Nederlandse Klinefelter Vereniging XYY Syndrome Association of Australia Inc.

Meet Ric Clark, our Scottish ambassador, who discovered at 39 that he was one of the 1 in 1,000 men born with an extra Y...
04/02/2025

Meet Ric Clark, our Scottish ambassador, who discovered at 39 that he was one of the 1 in 1,000 men born with an extra Y chromosome (47XYY)—a little-known but relatively common genetic variation.

In the first of two episodes, he tells the story about how this discovery affected him, the biggest misconception about people with an extra Y, and what it was like growing up as a child with chromodiversity.

🔗 Listen to his interview now: https://youtu.be/vySoUBRlwok

We’re so excited to be at the ACMG - American College of Medical Genetics and Genomics 2025 Annual Meeting in Los Angele...
03/21/2025

We’re so excited to be at the ACMG - American College of Medical Genetics and Genomics 2025 Annual Meeting in Los Angeles, sharing our research: “From Deficit to Difference: Depathologizing the Language of Genetics.”
Thank you to our presenter, Hanna Acevedo-Schlesel, and everyone working to make genetic care more inclusive!

👉 Come find us at P558
🔗 More info & download poster: https://www.chromodiversity.org/depathologizing-language

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Denver, CO
80212

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