Moebius Syndrome Foundation

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Denver, CO
Moebius Syndrome Foundation

The Home for the Moebius community. Moebius syndrome is a rare neurological craniofacial condition.

06/06/2026

Pool Party and BBQ in One Week!

Join us for a fun and laid-back summer Moebius community gathering in the greater Phoenix, AZ area. All are welcome to join in the fun! Bring your swimsuit (towels will be provided), and prepare for a day of relaxing by the pool, eating good food, and enjoying great company. A casual lunch will be served.

Saturday, June 13, 2026
11 AM MST
Gold Canyon, AZ
(Address and contact information will be provided after we receive your RSVP)

RSVP in the comments so we can provide you with the location.

Image Description: A colorful, bright picture decorated with images of summer: sunglasses, a grill, watermelon, a lawn chair and flip-flops. Text: Arizona/New Mexico Regional Event. Summer Pool Party & BBQ. Saturday, June 13, 11:00 AM, Gold Canyon, AZ. Music, Pool, Food, Community. Comment to RSVP. Moebius Syndrome Foundation Logo.

06/05/2026

Great news! The Moebius Syndrome Foundation is now enrolled in the Walmart Spark Good program! If you shop at Walmart.com, you can choose us as your charity of choice and round up your change at checkout. It is a simple way to make a difference for individuals and families living with Moebius syndrome, one purchase at a time.

Visit our profile to get started: walmart.com/nonprofits/e45ee584-4a49-4019-8c23-5cf60168fef7/profile

Image Description: Spark Good for Moebius Syndrome Foundation. Image at the bottom shows a laptop with the Walmart Spark Good website and the option to round up, and a hand holding a cellphone showing the Walmart Spark Good website. There is a plant, a lamp, and a coffee cup next to the laptop.

06/04/2026

Together, we have built an organization where love, equity, and diversity thrive. One of the bravest things you can do is to be who you are, and we honor your voice, your story, and your unique journey.⁠
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Image description: A rainbow heart is featured with the text Happy Pride Month! Supporting equality, diversity, and love in everything we do. . The Moebius Syndrome Foundation Logo is featured at the top of the image.

06/03/2026

Charla en español en una semana

Nos encantaría que nos acompañen el miércoles 10 de Junio, a las 5:00 p. m. (PST) / 8:00 p. m. (EST), a una charla amistosa en español por Zoom.

En esta charla, los miembros de la comunidad de Moebius que hablan español podrán conectarse y conversar sobre el síndrome de Moebius, así como compartir experiencias relacionadas, todo en español. Esta invitación está dirigida a adultos con el síndrome de Moebius, padres y abuelos de niños con Moebius, y a cualquier persona que tenga una conexión personal con alguien que tenga el síndrome de Moebius y desee conectarse con otros miembros de la comunidad.

¿Tienes más preguntas? Puede comunicarse con Molly a través del siguiente correo electrónico: [email protected]

Es necesario registrarse. Por favor, inscríbase antes del martes 9 de junio para poder asistir. https://bit.ly/ChatEspanol

06/02/2026

⛳ Tee up for a great cause at Mulligans for Moebius!

Join us on July 25, 2026, at The Legacy Golf Club in Henderson, Nevada, for a fun day of golf, lunch, and community, all while supporting the Moebius Syndrome Foundation.

A few sponsorship opportunities are still available! Sponsorship information is available at https://bit.ly/MulliganSponsorships

Register, sponsor, or learn more at mulligansformoebius.com.

Every swing helps make a difference for individuals with Moebius syndrome and their families. 💜

Image description: Picture of The Legacy Golf Club green with a view of mountains in the distance. Mulligans for Moebius logo center. Text says, “Golf Tournament, Sat, July 25, 2026, Legacy Golf Club, Henderson, NV” MulligansforMoebius.com Bottom left has an image of a golf ball on a tee with grass. Bottom right shows a golf club.

06/01/2026

Last Day to Register!
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Our next Just for Adults Chat will take place on Tuesday, June 2 at 5 PM PDT / 8 PM EDT via Zoom, and we’d love to see you there.⁠
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This easygoing virtual gathering is open to adults (18+) with Moebius syndrome and similar conditions. It’s a space to meet others, have meaningful conversations, and feel comfortable being yourself.⁠
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Register TODAY to join the call: https://bit.ly/MSFJustForAdults
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We look forward to connecting with you!⁠
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Image Description (Alt text): Group of 10 adults with Moebius syndrome gathered together and looking at the camera. Text under the photo says, “Just for Adults Chat on Tues, June 2 at 5 PM PDT / 8 PM EDT via Zoom. Register by June 1 to attend.” Moebius Syndrome Foundation logo in upper right corner.

05/31/2026

During Mental Health Awareness Month, we recognize the emotional and physical toll caregiving for an individual with disabilities can take. Caregiver burnout is real, and taking care of yourself is not selfish; it’s necessary. Make time to rest, ask for support, connect with others, and prioritize moments that restore your well-being. Caring for yourself helps you continue caring for those you love. 💜

Respite care, which provides temporary relief for family caregivers, is one powerful way to recharge. The ARCH National Respite Network's free guide, "ABCs of Respite," walks caregivers through the types of respite available, how to choose a provider, and how to find funding. Find it at https://archrespite.org/library/the-abcs-of-respite/.

05/30/2026

Join us for Real Talk for Dads: A Father’s Day Conversation in the Moebius Community

This hour-long virtual event brings together dads from across the community for a real, honest conversation about raising a child with Moebius syndrome. You’ll hear from a few dads sharing their experiences, what they’ve learned along the way, and their perspectives at different stages of parenting.

This will be a laid-back, supportive space with time for questions, connection and conversation. Whether you want to listen, share, or just be part of the discussion, we’d love to have you join us.

Thursday, June 18
5 PM PDT / 8 PM EDT

Please register here by Wednesday, June 17: https://bit.ly/MoebiusDadsConversation

05/28/2026

Do you know the Moebius Syndrome Foundation offers Medical Travel Reimbursement for individuals and families seeking specialized care? We know that getting the right treatment often means traveling far from home, and we don't want cost to be a barrier to getting the best treatment options. We offer up to $2,000 in reimbursement for medical travel related to Moebius syndrome. U.S. residents may apply and be approved for reimbursement up to twice.

Scan the QR code in the image to apply, or visit https://form.jotform.com/230928166062052 to learn more.

Tag someone who might need this support.

Image/Alt description: This graphic is on a teal background for the MSF’s Medical Travel Reimbursement program. A photo shows a young baby wearing a medical vest and sitting on the floor with a small soccer ball. A QR code and "Apply Now" text appear in the bottom left, with an airplane and map of Hawaii on the right. The MSF logo is at the top.

$We are empowering families with to help move research forward with the . Learn how here: https:\\moebius.iamrare.org....$

05/27/2026

We are empowering families with to help move research forward with the . Learn how here: https:\\moebius.iamrare.org.

Image/Alt description: A graphic for the MSF Research Registry includes the heading "Empower families with " and an invitation to visit moebius.iamrare.org. A photo of a family of five smiling outdoors is credited to Destiny Bachman. A "Sign-Up Today!" banner and QR code appear to the right, with the Moebius Syndrome Foundation logo in the bottom corner.

Address

1312 17th Street #976
Denver, CO
80202

Telephone

+18446632487

Website

https://moebiussyndrome.org/

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