Moebius Syndrome Foundation

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Moebius Syndrome Foundation

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The Home for the Moebius community. Moebius syndrome is a rare neurological craniofacial condition.

10/12/2026

Every child deserves to feel safe and supported at school.

If you’re helping a child navigate bullying, you don’t have to figure it out alone. Explore our bullying-prevention resources for families and schools:
https://moebiussyndrome.org/bullying-prevention-resources/

Image description: A purple and cream Moebius Syndrome Foundation graphic displays three bullying-prevention materials, including a guide for educators, a “Kindness Is Everything” bookmark, and a resource for parents. Text: “Bullying Prevention Resources. Support for helping children feel safe, heard, and prepared. Find Resources.” A QR code links to the Foundation’s resource page.

10/10/2026

On World Mental Health Day, we want our community to hear this clearly: You are not alone. 💜

Everyone deserves support when things feel heavy.

Scan the QR code in the graphic or visit https://moebiussyndrome.org/emotional-support/ to find mental health resources for teens and adults in the Moebius community.

Image description: A scrapbook-style graphic with torn lavender and cream paper, pressed yellow flowers, dried white flowers, handwritten paper, and pieces of translucent tape. The Moebius Syndrome Foundation logo appears in the lower-left corner. A QR code appears in the lower-right corner. Text: “World Mental Health Day. You are not alone.”

10/08/2026

Your idea could help make a difference in the Moebius community!

The Moebius Syndrome Foundation’s Community Empowerment Grant supports projects that raise awareness of Moebius syndrome or develop helpful resources and support for people living with Moebius syndrome and similar conditions.

Each year, up to $2,000 is awarded to one or more recipients.

Applications close October 30, 2026. There’s still time to share your idea!

Learn more and apply: https://moebiussyndrome.org/communitygrant

Image description: A large, diverse group of adults and children from the Moebius syndrome community gathers for a group photo against layered purple and teal shapes. Text reads: “Community Empowerment Grant. Raise awareness. Provide support. Build new resources. Apply by October 30, 2026.” The Moebius Syndrome Foundation logo appears in the lower-right corner.

10/07/2026

Central Texas friends, come spend the day with the Moebius community at Deutschen Pfest! 💜

We’ll meet at 10 a.m., take a group photo at 10:30, and enjoy lunch together before heading into the festival. Wear purple if you’d like so we can find one another!

Saturday, October 17
Pfluger Park
515 City Park Road
Pflugerville, TX 78660

Festival admission is required. Learn more at https://deutschenpfest.com/

To RSVP or ask a question, contact volunteer Regional Coordinator Stacey Fulmore at [email protected].

Image description: Purple event graphic decorated with colorful fall leaves and flowers. Text invites the Moebius community to a get-together at Pflugerville Deutschen Pfest on Saturday, October 17 at 10 a.m. at Pfluger Park.

10/06/2026

This week’s Moves for Moebius Fundraiser Spotlight celebrates Tina Michael and her Texas team, Big Moves. Bigger Hearts. Biggest in Texas.

In Tina’s own words:

“Moebius syndrome isn’t just a cause I support. It’s my life.”

Tina has spent years showing up for the Moebius community, and now she’s inviting others to make their move alongside her. Thank you, Tina, for sharing your story and bringing Texas together for Moves for Moebius!

Support Tina’s fundraiser here:
https://moebiussyndrome.app.neoncrm.com/fundraiser/DFW

Image description: On a white and lavender background with purple, white, and teal accents, three women pose together outdoors. The woman in the center is Tina Michael. Text: Moves for Moebius. Fundraiser Spotlight. Big Moves. Bigger Hearts. Biggest in Texas. Support This Fundraiser. A QR code appears beside the fundraiser name, and the Moebius Syndrome Foundation logo appears at the bottom.

10/05/2026

Everyone deserves to feel safe being themselves. 💜

On World Day of Bullying Prevention, let’s look out for one another. If someone is being left out or treated unkindly, a small act of support can help them know they’re not alone.

Kindness belongs here, and so do you.

Image description: Moebius Syndrome Foundation graphic with a cream background, purple and blue headline, and a photo of six community members standing together. Teal and yellow accents frame the photo and text. Text: “October 5, 2026. World Day of Bullying Prevention. Kindness belongs here.”

10/04/2026

Please join us in congratulating Dr. Kathleen Bogart, who was selected for the Education category of Children’s Craniofacial Association’s 2026 David Roche Roster! 💜

Kathleen is an adult with Moebius syndrome and a member of our Scientific Advisory Board. She has spent years helping others understand how facial difference and ableism shape people’s everyday experiences.

We are so proud to see her work recognized in this meaningful way. Congratulations, Kathleen!

Watch the award ceremony: https://www.youtube.com/live/z2xKK7eRZxk?si=GG4vuS9xkQo26DqM

Image description: A Moebius Syndrome Foundation graphic features a portrait of Dr. Kathleen Bogart. Beside her is a bright yellow award logo with large overlapping black lettering reading “Excellence in Advocacy Award Night,” along with a small colorful line drawing of a face and heart. Text: “Congratulations, Dr. Kathleen Bogart! 2026 David Roche Roster. Education Honoree. Watch the Award Ceremony.” A QR code appears at the bottom right.

10/02/2026

Everyone deserves the opportunity to be recognized for what they bring to the workplace.

This National Disability Employment Awareness Month, we’re celebrating workers with disabilities and sharing resources to support members of the Moebius community as they build careers that are meaningful to them.

Explore our employment resources:
https://moebiussyndrome.org/employment-housing-financial-support-resources/

Image description: Moebius Syndrome Foundation graphic for National Disability Employment Awareness Month. An overhead illustration shows several people working together around a laptop with notebooks, papers, a coffee cup, and a small plant. Text reads, “Employment Resources. Scan to learn more.” A QR code directs viewers to employment resources.

10/01/2026

October is full of opportunities to connect with the Moebius community. 💜

Some gatherings are in person, while others make it easy to join from home. We hope you find one that feels right for you.

Watch the video for upcoming dates, then register and learn more here:
https://moebiussyndrome.org/events

Video description: An animated Moebius Syndrome Foundation Reel highlights upcoming October events in purple and teal graphics. Events include Moves for Moebius virtual events and fundraisers through October 31; Grief Support Group on October 1 and 15; the North Carolina and South Carolina KingFest and group dinner on October 3; the Austin/San Antonio meet-up on October 17; Midlife & Beyond on October 19; an LGBTQIA+ chat on October 25; the Chat en Español on October 28; and the When Elegance becomes Action Prom on October 30th. Each event slide includes a QR code and directs viewers to moebiussyndrome.org/events for registration and more information. The Reel ends with “Save the Date” and the email address [email protected]

Address

1312 17th Street #976
Denver, CO
80202

Telephone

+18446632487

Website

https://moebiussyndrome.org/

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