Moebius Syndrome Foundation, 1312 17th Street #976, Denver, CO (2026)

04/29/2026

⏰️TOMORROW (4/30) is the Last Day to Apply!

Don’t miss this opportunity to apply for the 2026 Educational Scholarship for individuals with Moebius syndrome!

Are you planning to continue your education? The Moebius Syndrome Foundation is excited to offer scholarships for individuals with Moebius syndrome who plan to attend college, technical, or trade school in the coming year.

We’re awarding several scholarships of up to $3,000 each to help support your educational journey!

Open to U.S. residents with Moebius syndrome who plan to pursue higher education. The application deadline is April 30, 2026. Please share this opportunity with anyone you know who might be interested. Apply now on our website: moebiussyndrome.org/college-scholarships

Image description: This promotional graphic features an off-white background with a purple polka-dot pattern on the right side. Centered in a circular frame is a young man with bright red hair, a short beard, wire-rimmed glasses, and wearing a brown t-shirt. Text at Top Left: APPLY FOR AN EDUCATIONAL SCHOLARSHIP. April 30, 2026 is the LAST DAY to apply!" Moebius Syndrome Foundation purple logo in the bottom left.

04/28/2026

Only TWO days left to join us in Making a Difference for Moebius syndrome!

We are almost to the end of April and at the end of our annual Making a Difference for Moebius Syndrome campaign. This month, we have raised $3,700 so far to support programs to benefit people in the Moebius community.

Thank you to those who signed up as new Sustaining Members this month. This reliable and recurring monthly income makes a BIG difference as we plan community programs and events for this year and years to come. We are also VERY grateful for the generous support of our one-time, and annual donors, as well as those who have reached out offering to support our work by giving their time as volunteers.

🎉7 Sustaining Members joined our monthly givers!
🎉9 Donors made a one-time donation to support our campaign!
🎉3 Members reached out to become Volunteers!

It’s not too late to join us this month in Making a Difference for Moebius! As a reminder, anyone who signs up by April 30 to donate $20 or more monthly will join our Sustaining Members club, and receive a limited edition 6” Making a Difference for Moebius magnet that you can put on your car, mailbox, fridge, or anywhere you’d like to help raise awareness.

Check out the many ways to give this month at https://moebiussyndrome.org/waystogive.

04/26/2026

The Moebius Syndrome Foundation Medical Travel Reimbursement program helps offset the cost of traveling (flights, hotel, other expenses) to medical appointments and procedures within the United States. Individuals with Moebius syndrome and their families, residing in the United States, are eligible to apply and receive medical travel reimbursements of up to $2,000, twice. This program helps remove financial barriers to receiving consultations and treatments from preferred healthcare providers.

Don’t let the cost of travel expenses prevent you or your child from getting the medical care needed.

All applications must be received at least 30 days prior to the medical appointment or procedure. Apply now: https://bit.ly/MSFTravel or contact us at [email protected] for more information.

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Image Description: Outline of a city map with a location indicator above a hospital symbol and the word “Cha-Ching”. Text along the bottom, “Medical Travel Reimbursement Program. Don’t let the cost of travel expenses prevent you from getting the medical care you need. We are here to help!” Moebius Syndrome Foundation logo in lower right corner.

04/25/2026

In the latest MSF Career Pathway article, Alli Johnson openly shares about her journey with bullying, mental health challenges, learning to eat solid food in her 20s, having a speech impairment, and navigating the difficulty of finding a job.

Alli said that as much as she believes no child should have to experience what she did back then, it’s given her incredible strength, perseverance and drive to live her life to the fullest. As Alli has gotten older, she has worked on herself, gone to therapy, and started mental health medication. She’s really solid in who she is as a person and what she values in life, and wants others to know that life has gotten so much better.

Read the full article: https://moebiussyndrome.org/alli-johnson-talks-self-love-and-living-with-moebius/

Image description: Off white background with teal and purple layered shapes in the upper left and lower right corners. A picture of Alli Johnson in the middle with a wide brim gray hat, glasses and a purple jacket. Quote under the picture says, “Surround yourself with people who see you and love you. Once you have those people in your life, all of the negativity gets significantly quieter. Purple Moebius Syndrome Foundation in lower left corner.

04/22/2026

✨️Become a MSF Sustaining Member - It’s Easy to Setup! ✨️

Small monthly commitments add up to BIG impact. Your monthly gift - whether it’s $10, $20, or $50 - creates steady, reliable funding that allows the MSF to plan, respond quickly, and grow programs and resources to support individuals with Moebius syndrome and their families. Anyone who becomes a Sustaining Member in April and pledges to donate $20 or more per month will receive a limited edition 6” MSF car magnet!

Alan and Dana became Sustaining Members in honor of their grandson. Dana shared with us, “Our grandson Jackson has Moebius syndrome, and to honor him and his incredible parents, we support the good work the Moebius Syndrome Foundation performs: spreading awareness, supporting research, and providing encouragement and support to the entire Moebius community. And making our gifts automatically each month is just so easy. We set it up once, it just took a couple of minutes, and that was it.”
Join the MSF community of Sustaining Members today and help us build a stronger future where everyone with Moebius syndrome feels seen, heard, and supported. Donate today: moebiussyndrome.org/donate

Image Description: White background with Making a Difference for Moebius logo in the upper left corner and purple, teal and yellow tiny polka dots in the lower left and upper right corners. Center is a picture of Alan and Dana Hyams with their grandson. Below the picture is a quote from Dana saying, “Making our gifts automatically each month is just so easy. We set it up once, it just took a couple of minutes, and that was it.” moebiussyndrome.org/donate

04/21/2026

Save the Date! Join us for From the Heart: A Mother’s Day Gathering for Moms in the Moebius Community.

This hour-long special virtual event will bring together moms from across our community for an open, honest conversation about the journey of raising a child with Moebius syndrome. We’ll hear from three panelists - a mom of an adult, a teen, and an elementary-aged child - sharing their experiences, insights, and perspectives at different stages.

This will be a relaxed, supportive space with time for Q&A, connection, and conversation. We hope to see you there!

Wednesday, May 13, 2026
5 PM PDT / 8 PM EDT

Please register here by Tuesday, May 12, 2026:
https://us06web.zoom.us/meeting/register/RhfxOBl8T4-c2twIXh3DGg

Image Description: Top left box says, “From the Heart: A Mother’s Day Gathering for Moms in Moebius Community” Middle right box has the purple Moebius Syndrome Foundation logo and says, “Wednesday, May 13 at 5 PM PST / 8 PM EST via Zoom. Register by May 12 to attend.” Four pictures of moms in the Moebius community with their children.

04/20/2026

We continue celebrating Limb Loss and Limb Difference Awareness Month (LLLDAM) throughout the month of April to raise awareness, promote access to proper care and support, and make sure individuals with limb loss and limb difference feel seen, heard, and empowered.

Approximately 42% of individuals with Moebius syndrome are born with clubfoot where one or both feet turn strongly inward and downward, affecting muscles, tendons, and bones. Thanks to medical advancements, there are now nonsurgical treatments available to correct the position of the feet.

Image Description: Navy blue background with an orange awareness ribbon in the upper left corner with on it. The text at the top says, “Limb Loss and Limb Difference Awareness Month April 2026”. Three square pictures show baby Isaac with his clubfoot, casts, and leg braces. “Isaac was born with severe clubfoot. It has now been corrected about 95% and he started walking on his own on his 3rd birthday.” White Moebius Syndrome Foundation logo in lower left corner.

04/18/2026

Old friends and local rock enigmas The Aggressively Kind (Chart, Trish, Tom, Bob, and Shelby) will reunite Saturday, May 9 to play a charity concert which will benefit the Moebius Syndrome Foundation.

Saturday, May 9, 2026
2:00 PM - 4:30 PM EDT
Owen Brown Interfaith Center, Hall C
Columbia, MD

The band will play two sets, with a break halfway through. Seating, light refreshments, and MSF swag and information will be available! We'll be raffling off a few band t-shirts as well. 100% of the proceeds will benefit the Moebius Syndrome Foundation!

If you're an artist with Moebius who'd like to say a few words about your Moebius journey, sing a song on stage, display your art, or show a short video you created (appropriate for a general audience) after the band finishes, please private message us and we will connect you with the organizer.

No tickets are needed and everyone is welcome! We cannot wait to see you all in May to make some noise for the Moebius community we love!

04/17/2026

Don’t miss your chance to be awarded the 2026 Educational Scholarship opportunity for individuals with Moebius syndrome!

Are you planning to continue your education? The Moebius Syndrome Foundation is excited to offer scholarships for individuals with Moebius syndrome who plan to attend college, technical, or trade school in the coming year.
We’re awarding several scholarships of up to $3,000 each to help support your educational journey!

Open to U.S. residents with Moebius syndrome who plan to pursue higher education. The application deadline is April 30, 2026. Please share this opportunity with anyone you know who might be interested. Apply now on our website: moebiussyndrome.org/college-scholarships

“I am eternally grateful for the opportunity bestowed upon me by the Moebius Syndrome Foundation and the scholarship donors. Being awarded this scholarship brings me closer to the stability needed to pursue a path of my own. I will not waste this opportunity, as I hope to use my degree in communications to help others and ultimately pass on the generosity of this gift.” -Jacob Crawford, Temple University, Major: Communications

Image description: This promotional graphic features an off-white background with a purple polka-dot pattern on the right side. Centered in a circular frame is a young man with bright red hair, a short beard, wire-rimmed glasses, and wearing a brown t-shirt. Text at Top Left: APPLY FOR AN EDUCATIONAL SCHOLARSHIP "Bottom Left: "Applications accepted through April 30, 2026." Moebius Syndrome Foundation purple logo in the bottom left.

04/16/2026

Get a Limited Edition Car Magnet - Only in April! 🚗

Become a recurring monthly donor to the Moebius Syndrome Foundation in April for $20 or more per month, and we will send you a limited edition Making a Difference for Moebius magnet as a small token of our gratitude. Put the magnet on your car or mailbox to spread awareness.

Make a difference every month by helping the Foundation's programs grow; programs like our conferences, scholarship opportunities, advocacy and awareness initiatives, educational resources, medical travel reimbursement, research grants, regional and virtual events...none of these would exist without our supporters.

For every dollar raised in 2025, 79% directly supported programs, scholarships, and medical research for the Moebius community. The remaining 21% for general operations made it possible for us to not only "keep the lights on," but expand our mission. With your support we can continue to improve the lives of people living with Moebius syndrome and support their families.

💜 Sign up as a recurring monthly donor today: moebiussyndrome.org/donate

Image Description: White background with Making a Difference for Moebius logo in the upper left corner and purple, teal and yellow tiny polka dots in the lower left and upper right corners. Text at top says, “Get Your Limited Edition Car Magnet!” The picture on the left shows a lady with long brown hair and wearing a rainbow colored hoodie and gesturing to the “Making a Difference for Moebius” magnet on her car. The picture on the right shows a lady with glasses and long brown hair and a guy with glasses and a tan t-shirt along with the “Making a Difference for Moebius” magnet on their car. Text under the picture says, “Sign up in April to become a monthly recurring MSF donor for $20+ per month and receive a limited edition Making a Difference for Moebius 6” magnet.” moebiussyndrome.org/donate

04/15/2026

The April MSF e-Newsletter is now available! Get the latest update on events, community news, and research studies. If you didn’t receive it in your email inbox, you can read it at https://conta.cc/4c8g8uO.

04/13/2026

April is celebrated as Autism Acceptance Month (formerly Awareness Month) to increase understanding, foster inclusion, and support individuals with Autism Spectrum Disorder (ASD). We want to shift from simply promoting awareness to fostering acceptance, ensuring better support and inclusion for the autistic community.

With 1 in 36 children diagnosed with ASD, this month emphasizes the need for specialized education, healthcare, and employment opportunities. Recent research shows that about 10% of children born with Moebius syndrome are diagnosed with ASD.

For more information about Autism Acceptance Month, visit https://autismsociety.org/

Image description: White background with layered brightly colored shapes in each corner. Brightly colored text in the center says, “World Autism Acceptance Month. Diversity is our strength. Embrace differences and spread understanding.” Colorful infinity symbol under the text. White Moebius Syndrome Foundation logo in lower right corner.

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