International Association for Premenstrual Disorders

International Association for Premenstrual Disorders To learn more, visit iapmd.org.

IAPMD is a lifeline of support, information, and resources for anyone affected by premenstrual disorders such as PMDD (Premenstrual Dysphoric Disorder) and PME (Premenstrual Exacerbation of an underlying health condition). IAPMD is a lifeline of support, information, and resources for anyone, anywhere affected by Premenstrual Dysphoric Disorder (PMDD) and Premenstrual Exacerbation (PME) of underlying disorders.

One more day to help shape this study‼️ Be a critical part of our study investigating any link between allergies, histam...
08/21/2026

One more day to help shape this study‼️ Be a critical part of our study investigating any link between allergies, histamine, mast cell activation-related symptoms and PMDD!

Dr. Theoharis Theoharides MS, PhD, MD, FAAAAI., and Asiya Nur Karim are conducting a research study to investigate any evidence linking allergies/histamine/mast cell activation-related symptoms and premenstrual disorders, especially PMDD. This first-of-its-kind, IRB-reviewed study addresses increasing anecdotal evidence from patients suggesting a possible association. All data are entirely de-identified and will maintain full respect of confidentiality and patient privacy. The results of this study will be prepared for submission to a reputable journal for publication.

📋 Anonymous, one-time survey
⏱️ ~15 minutes
✅ Voluntary, unpaid
🔗 Take the survey: https://www.surveymonkey.com/r/Q5PYRW9
‼️ Closes tomorrow, August 22

Know someone with PMDD who also deals with allergies or histamine reactions? Tag them below or share this with your community.

For questions about the study, please contact the research team at Nova Southeastern University using the information provided in the survey materials.

Please note: Sharing this study does not imply that IAPMD endorses any particular theory, treatment, or conclusion. We encourage participation in well-designed research that advances understanding of premenstrual disorders.

A gentle message from our co-founder, Sandi MacDonald:Content Note: This post mentions reproductive mental health and th...
08/19/2026

A gentle message from our co-founder, Sandi MacDonald:

Content Note: This post mentions reproductive mental health and the difficult news coverage in the US.

The news surrounding the Lindsay Clancy trial may be bringing up a lot of emotions for people in our community. I know that it is for me.

As someone with lived experience of reproductive mental illness, I have found some of the coverage unexpectedly difficult. There are experiences from my own life that I have worked very hard to process, and hearing reproductive mental health discussed so publicly has brought some of those feelings closer to the surface again.

I share this because I suspect I may not be the only one.

As both someone with lived experience and co-founder of IAPMD, I want to gently remind our community that reproductive mental health conditions are real, serious, and deserving of compassionate, evidence-based care.

Watching these conversations unfold has also reminded me just how difficult it can be to explain the reality of severe reproductive mental illness to someone who has never experienced it. There are parts of these experiences that can be incredibly hard to put into words.

My hope is that, even in the midst of such a difficult and heartbreaking case, we can make room for compassion, greater understanding, and meaningful conversations about reproductive mental health.

If the coverage is affecting you, it is okay to step away from the news or social media. Reach out to someone you trust. Connect with a professional, peer support, a warmline or helpline if you need to.

And if you have lived through a frightening or severe period of reproductive mental illness yourself, please remember this:

You do not owe anyone your story.
You do not have to defend your experience.
You do not have to participate in conversations that are hurting you.

Please take care of yourself as these conversations unfold.

I am holding an extra space today for everyone who understands why this feels so heavy.

With care,

Sandi MacDonald 💛
Co-Founder, IAPMD

If you or someone you know is struggling, please always think safety first. Call your nearest emergency department, or find a local crisis line here: https://findahelpline.com/

There are resources available at PostPartum Support International, found here: https://postpartum.net

Good news: we've extended this survey. Researchers are investigating any possible link between allergies, histamine, and...
08/18/2026

Good news: we've extended this survey. Researchers are investigating any possible link between allergies, histamine, and mast cell activation-related symptoms and PMDD, and your response could help!

📋 Anonymous, ~15 minutes, voluntary (unpaid)
🔗 Take the survey: https://www.surveymonkey.com/r/Q5PYRW9
🗓️ Now open through August 22!

Advancing PMDD care takes collaboration between researchers, clinicians, and the people living with it. The UK PMDD Rese...
08/18/2026

Advancing PMDD care takes collaboration between researchers, clinicians, and the people living with it. The UK PMDD Research Conference brings all three together.

Friday, August 28, at UWS Paisley Campus, 10am–4pm. Sessions span PMDD comorbidities, parenting, perimenopause, the welfare benefits system, and policy, alongside a keynote from Dr. Ellen Golightly and Dr. Katie Marwick on NHS Lothian's multidisciplinary premenstrual disorder clinic.

Hosted by the University of the West of Scotland, supported by IAPMD UK.

Register here (SOLD OUT): https://www.tickettailor.com/events/iapmduk/2104381

Video library registration (for those unable to attend in person): https://www.tickettailor.com/events/iapmduk/2258280

The UK PMDD Research Conference is almost sold out, a full day of talks from researchers, clinicians, and advocates work...
08/14/2026

The UK PMDD Research Conference is almost sold out, a full day of talks from researchers, clinicians, and advocates working to advance PMDD care.

Friday, August 28, at UWS Paisley Campus, 10am–4pm. Hosted by the University of the West of Scotland, supported by IAPMD UK.

🎟️ Register here (£39, covers catering), before seats sell out: https://www.tickettailor.com/events/iapmduk/2104381

📼 Can't make it in person? Most speakers are recording their talks for a video library, available to anyone who registers: https://www.tickettailor.com/events/iapmduk/2258280

Good news: we've extended the deadline for this survey. Be a critical part of our survey investigating any link between ...
08/13/2026

Good news: we've extended the deadline for this survey. Be a critical part of our survey investigating any link between allergies, histamine, mast cell activation-related symptoms and PMDD!

Dr. Theoharis Theoharides MS, PhD, MD, FAAAAI., and Asiya Nur Karim are conducting a research study to investigate any evidence linking allergies/histamine/mast cell activation-related symptoms and premenstrual disorders, especially PMDD. This first-of-its-kind, IRB-reviewed study addresses increasing anecdotal evidence from patients suggesting a possible association. All data are entirely de-identified and will maintain full respect of confidentiality and patient privacy. The results of this study will be prepared for submission to a reputable journal for publication.

📋 Anonymous, one-time survey
⏱️ ~15 minutes
✅ Voluntary, unpaid
🔗 Take the survey: https://www.surveymonkey.com/r/Q5PYRW9
🗓️ Now open through August 22!

Know someone with PMDD who also deals with allergies or histamine reactions? Tag them below or share this with your community.

For questions about the study, please contact the research team at Nova Southeastern University using the information provided in the survey materials.

Please note: Sharing this study does not imply that IAPMD endorses any particular theory, treatment, or conclusion. We encourage participation in well-designed research that advances understanding of premenstrual disorders.

Could your allergies, histamine, or mast cell activation symptoms be connected to your PMDD? That connection hasn't been...
08/12/2026

Could your allergies, histamine, or mast cell activation symptoms be connected to your PMDD? That connection hasn't been studied like this before, and this is your chance to help change that.🗣️

Dr. Theoharis Theoharides MS, PhD, MD, FAAAAI., and Asiya Nur Karim are conducting a research study to investigate any evidence linking allergies/histamine/mast cell activation-related symptoms and premenstrual disorders, especially PMDD.

This first-of-its-kind, IRB-reviewed study addresses increasing anecdotal evidence from patients suggesting a possible association. All data are entirely de-identified and will maintain full respect of confidentiality and patient privacy. The results of this study will be prepared for submission to a reputable journal for publication.

📋 Anonymous, one-time survey
⏱️ ~15 minutes
✅ Voluntary, unpaid
🔗 Take the survey: https://www.surveymonkey.com/r/Q5PYRW9
🗓️ Update - Extended until Aug 22nd!

Know someone with PMDD who also deals with allergies or histamine reactions? Tag them below ⬇️ or share this with your community before it closes.

For questions about the study, please contact the research team at Nova Southeastern University using the information provided in the survey materials.

Please note: Sharing this study does not imply that IAPMD endorses any particular theory, treatment, or conclusion. We encourage participation in well-designed research that advances understanding of premenstrual disorders.

Researchers at Queen's University Belfast are studying how menstrual cycle phases affect the psychological, social, and ...
08/11/2026

Researchers at Queen's University Belfast are studying how menstrual cycle phases affect the psychological, social, and physical well-being of neurodiverse people who menstruate.

Who can take part: Menstruating individuals aged 18+, who are professionally diagnosed, self-diagnosed, or identify with ASD, ADHD, and/or elevated neurodivergent traits. Anyone who menstruates is welcome, including trans men and non-binary people, and people who use birth control.

What's involved: Track your cycle for about a month by completing a 20-minute survey every 7 days. Participants will be entered into a raffle for one of two £50 vouchers upon completion.

This study has received ethics approval 💯

🔗 Take the survey ➡️ https://run.pavlovia.org/pavlovia/survey-2025.2.0/?surveyId=fe6edea4-53e9-487e-9bae-08570da58932

For over a decade, Lynn searched for answers. Doctors told her to "take some ibuprofen" and that it was "part of being a...
08/10/2026

For over a decade, Lynn searched for answers. Doctors told her to "take some ibuprofen" and that it was "part of being a woman." It wasn't a doctor who finally connected the dots, it was a friend who shared her own experience with PMDD.💡

Now, Lynn and her husband Josh, a biomedical engineer, are investing in the next generation of researchers and physicians who will make sure fewer people have to fight this hard for a diagnosis.💛

This year, the Women's Health Research & Innovation Scholarship is funding PMDD and PME research specifically, supporting students who will become the advocates and educated providers our healthcare system is still missing.

Know someone studying PMDD/PME research? Send this their way!

📋 Open until September 27, 2026
🇺🇸 This scholarship is open to students currently studying in the US
🔗 Apply, share, or contribute directly to the winning student ⬇️
bold.org/scholarships/womens-health-research-innovation-scholarship/

Be a critical part of our study investigating any link between allergies, histamine, and mast cell activation-related sy...
08/07/2026

Be a critical part of our study investigating any link between allergies, histamine, and mast cell activation-related symptoms and PMDD!

Dr. Theoharis Theoharides, Ph.D., M.D. and Asiya Nur Karim are conducting a research study to investigate any evidence linking allergies, histamine, and mast cell activation-related symptoms with premenstrual disorders, especially PMDD. This first-of-its-kind, IRB-reviewed study addresses increasing anecdotal evidence from patients suggesting a possible association.

All data are fully de-identified, and patient confidentiality is strictly maintained. Results will be prepared for submission to a reputable journal for publication.

📋 Anonymous, one-time survey
⏱️ ~15 minutes
✅ Voluntary, unpaid
🔗 Take the survey: https://www.surveymonkey.com/r/Q5PYRW9 — open until August 15

For questions about the study, please contact the research team at Nova Southeastern University using the information provided in the survey materials.

Please note: Sharing this study does not imply that IAPMD endorses any particular theory, treatment, or conclusion. We encourage participation in well-designed research that advances understanding of premenstrual disorders.

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