Open Humans Foundation

01/05/2017

EXCITING NEWS!

"This milestone enables PGP...to now put diverse stem cells in the hands of researchers and students worldwide" - PGP Founder George Church

The New York Stem Cell Foundation (NYSCF) Research Institute and the Personal Genomes Project (PGP) today announced the availability of a unique new stem cell resource for scientists around the world. The stem cell lines resulting from this collaboration beginning in 2013 between the two organizatio...

09/23/2016

Let researchers know how you feel about sharing your health data!

This is a survey about your online health data etc and how it might be used by others.

09/19/2016

"Genomic information is the new oil. It’s the resource that’s going to drive technology in the new era.” -- Professor Stephen Scherer, director of U of T’s McLaughlin Centre and leader of PGP-Canada

The University of Toronto has announced a massive project to sequence the whole genomes of 10,000 people per year, using Big Data to better understand complex diseases and create the next generation of precision therapies. The combination of access to new genome sequencing facilities and computing p...

09/01/2016

"Scientists can contribute to ensuring that the loss of privacy through technology does not result in loss of personal freedom. First, they can credibly assess current and future privacy risks of new technologies and stress the need to move beyond the unsustainable concept of data protection by secrecy. Second, they should advocate for robust legal protection against discrimination around the world. Third, they should educate, advise and monitor, to make sure that facts — not fears — dominate the political debate."

Christoph Bock is a principal investigator at the CeMM Research Center for Molecular Medicine of the Austrian Academy of Sciences in Vienna. He is also a Project Leader at Genom Austria, a member of the Global Network of Personal Genome Projects. His thoughtful commentary on data protection sheds light on the true dangers of privacy loss, and offers suggestions for how to deal with its potential impact.

Broad anti-discrimination laws and practices could compensate for failing data protection and technology-linked loss of privacy, says Christoph Bock.

06/06/2016

Job opening!

PGP-UK (London) seeks postdoc in bioinformatics, statistics or computer science to start Oct 1 and focus on complex trait analysis. They are looking for someone with experience in integrative analysis of multidimensional data, plus a track record of leading a project from conception to publication.

http://www.jobs.ac.uk/job/ANV032/research-associate

View details for this Research Associate job vacancy at University College London in London. Apply now on jobs.ac.uk

03/18/2016

The 2016 GET Labs - April 25th at Harvard's Martin Conference Center - will include a forum for people with solutions and experience in participatory research to come together.

In this Expo for Researchers, we're thrilled to be hosting SMART Health IT.

SMART Health IT is the interface between healthcare data and innovation. The goal is audacious: an innovative app developer can write an app once, and expect that it will run anywhere in the health care system. Further, that one app should be readily substitutable for another. When apps are substitutable, they compete with each other, which drives up quality and down price. The project includes the SMART Gallery, API, Genomics API and the SMART CDS-Hooks decision support framework.

Check out more on GET Labs, the GETy Awards, and the entire GET Conference at http://www.getconference.org/

The GET Conference brings together leading thinkers to discuss how we measure and understand people and their traits. For the past five years, this event has explored the frontiers of understanding about human biology and serves as an annual forum to debate the technical, commercial, and societal im…

03/02/2016

The 2016 GET Labs/Expo for Researchers, April 25th at Harvard's Martin Conference Center, will include a forum for people with solutions and experience in participatory research to come together.

We're honored to be hosting

The Many Brains Project

The Many Brains Project is a nonprofit organization dedicated to accelerating research on the mind and brain by developing research tools that directly address the needs of patients and participants. We develop state-of-the-art, digital, open source tools for assessing cognition and brain health, all validated through our research platform TestMyBrain.org. You can participate in our interactive lab here at the GET conference, or come talk to us if you would like to know how to incorporate mobile / web-based, participant-centered cognitive testing into your work.

Check out more on GET Labs, the GETy Awards, and the entire GET Conference at http://www.getconference.org/

02/29/2016

The 2016 GET Labs/Expo for Researchers, April 25th at Harvard's Martin Conference Center, will include a forum for people with solutions and experience in participatory research to come together.

We're delighted to be hosting

LifeMap

LifeMap Solutions empowers mobile health studies and accelerates translation of their findings into innovative digital therapeutics. We partner our experience of consumer behavior, app analytics, and design with Mount Sinai’s world-leading expertise in health research to conduct the Asthma Health ResearchKit study. Large-scale patient-directed studies which capture real-world outcomes in real time will reveal trends and effects that were once invisible in small-scale traditional asthma research studies. Come talk to us about how we can work together to use mobile technology to better understand and improve health.

Check out more on GET Labs, the GETy Awards, and the entire GET Conference at http://www.getconference.org/

02/26/2016

The 2016 GET Labs - April 25th at Harvard's Martin Conference Center - will include a forum for people with solutions and experience in participatory research to come together.

In this Expo for Researchers, we're thrilled to be hosting

DNAsimple. A place for DNA exchange between researchers and all of us. Saliva donors get paid for each sample they provide. Researchers find the population they need quickly and easily.

Check out more on GET Labs, the GETy Awards, and the entire GET Conference at http://www.getconference.org/

02/24/2016

The 2016 GET Labs - April 25th at Harvard's Martin Conference Center - will include a forum for people with solutions and experience in participatory research to come together.

In this Expo for Researchers, we're honored to be hosting

Connected and Open Research Ethics (CORE)

The Connected and Open Research Ethics (CORE) aims to establish a set of guidelines to foster the ethical design and review of studies that use Mobile Imaging, pervasive Sensing, Social media, and Tracking (MISST) Technologies. Our goal is to build a web-based platform that will support access to resources designed to assist researchers in developing ethically sound studies and assist IRBs in the evaluation of studies that use MISST technologies.

Check out more on GET Labs, the GETy Awards, and the entire GET Conference at http://www.getconference.org/

02/22/2016

To execute a successful participatory research study, researchers face many challenges. As a result, the 2016 GET Labs - April 25th at Harvard's Martin Conference Center - will include a forum for people with solutions and experience in this space to come together.

In this Expo for Researchers, we're delighted to be hosting

C3-PRO: Consent, Contact, and Community framework for Patient Reported Outcomes is a "backend" connecting any ResearchKit app to a widely-used clinical research IT infrastructure called i2b2. C3-PRO relies FHIR (Fast Health Interoperability Resources). We are making C3-PRO available to the broader research community to be used with their ResearchKit apps and also integrating with ResearchStack.

Check out more on GET Labs, the GETy Awards, and the entire GET Conference at http://www.getconference.org/