Courageous Parents Network

06/12/2026

Run with Team CPN!!

On August 16, 2026, Team CPN will join over 12,000 runners, including 4000+ charity team runners representing 200+ teams, in running the iconic Falmouth Road Race on beautiful Cape Cod. We still have a few spots open on our team!

Reach out to [email protected] for more information, or to join today!

06/11/2026

Talk to your child’s care team before scheduling an extended out-of-town trip. Share what you want and plan to do. Get their input on things you should consider based on your child’s diagnoses, and create backup plans.

For more practical advice, CPN has a guide designed to help you travel with a child with medical complexity. Visit https://bit.ly/49X80f8 (available in English and Spanish)

06/10/2026

Kelsey has always been in awe of her daughter Zoey: her resilience, her empathy, her ability to carry grief at such a young age. But an emotional end to the school year reminded Kelsey of something important: as much as Zoey has grown through loss, she is still a child.

In this blog, CPN Parent Champion Kelsey writes about an unexpected way grief shows up and what she's doing differently this summer.

Childhood grief and school transitions: how loss affects kids at year's end, and 4 practical ways bereaved parents can help.

06/08/2026

Courageous Parents Network is excited to announce that Coping With Loss is now available in Spanish. This resource was created to support caregivers navigating the loss of a child, offering guidance and practical tools from families and clinicians of the CPN network.

Explore the Spanish-language site at https://courageousparentsnetwork.org/coping-with-loss/es

Coping with Loss, including the Spanish translation, is made possible by a grant from The Parmenter Foundation.
--
Courageous Parents Network se complace en anunciar que Coping With Loss ya está disponible en español. Este recurso fue creado para apoyar a los cuidadores que enfrentan la pérdida de un hijo, ofreciendo orientación y herramientas prácticas desarrolladas por familias y profesionales clínicos de la red de CPN.

Visite el sitio en español en https://courageousparentsnetwork.org/coping-with-loss/es

Coping with Loss, incluida su traducción al español, es posible gracias a una aportación de The Parmenter Foundation.

06/04/2026

Define what a successful trip means, looks like, and sounds like before you go! Let experiencing something new be the goal, not perfection.

For more practical advice, CPN has a guide designed to help you travel with a child with medical complexity. Visit https://bit.ly/4ugDT9A

06/03/2026

Dads, do you write or journal?

Courageous Dad Matt finds healing and comfort in the process, as well as a connection to his daughter Havi.

06/02/2026

When your child’s life depends on medical decisions you barely understand, how do you know when to trust the experts—and when to trust yourself?

In this deeply personal story, a mother shares how her son Luka’s complex medical journey taught her the power of advocacy, second opinions, and palliative care. In the midst of medical uncertainty, this blog explores the moment when a parent stops waiting for answers and starts asking the hard questions.

There is a quiet moment that happens for many parents of medically complex children. It doesn’t come with an announcement or a clear turning point. It’s not...

06/01/2026

Where CPN will be presenting in the month of June!

University of Colorado Anschutz
Case Management Society of New England - CMSNE
Ronald McDonald House
Batten Disease Support & Research Association Australia
Society of Pediatric Nurses

05/29/2026

NeuroJourney has two chapters to help you navigate changes in your child’s nutrition and growth. Each includes companion text that offers the palliative perspective on the emotions caregivers often face when their child's feeding routines change.

Read about Nutrition and Growth
https://bit.ly/4dSPtl4

Explore the related Gastrointestinal topics
https://bit.ly/4uFyz0s"