Chiari Neurobiomechanics Research Lab

08/07/2026

🧠 Info-Tip #30 of 30 — Chiari Open House | August 8th

LAST Tip #30: For my very last tip, I would like to ask if you could please give a big thank you to the Bobby Jones Chiari & Syringomyelia Foundation!

https://bobbyjonescsf.org/

Northeastern University will host the Open House Event in Boston this Saturday but this event is ONLY possible through efforts and funding from Bobby Jones CSF.

Here are the quiet behind-the-scenes BJCS TEAM I would like to thank:
---DOROTHY POPPE, Executive Director
---KAITLYN ESPOSITO, Programs and Research
---MARY POPPE, Programs and Events
---ANDREA GROSZ, Marketing, Communications & Design

They all worked super hard to make this possible. Even giving me pep talks when I needed them to.

Remember, you can still register for this event, you can even just come the day of the event. See you all on Saturday!

📅 Date: August 8th 📍 Location: Boston, MA

🔗 More Info & RSVP: https://neurobiomechanics.github.io/OpenHouse2026/

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08/06/2026

🧠 Info-Tip #29 of 30 — Chiari Open House | August 8th

Tip #29: Posters and Demos

We will have many posters and demos describing CM research! See the titles below

📋 Posters
1 Yeqing Ni et al. "Increased Brain Deformation in Chiari Malformation Compared to Healthy Controls due to Injury"
2 Hannah Higgins et al. "Waveform Analysis of Cerebrospinal Fluid and Tissue Motion in Chiari Type I Malformation"
3 Mahsa Karamzedeh et al. "Real-Time Cerebrospinal Fluid Dynamics During Coughing and Valsalva Maneuvers"
4 Madeleine Sifford et al. "A Scoping Review of Morphometric Measurements Reported in Chiari I Malformation"
5 Shahad Musa et al. "Geometric Shape Analysis of the Posterior Cranial Fossa in Chiari I Malformation"
6 Grace Lombardi & Olivia Magno et al. "Landmark-Based Evaluation of the Chiari I Malformation Posterior Fossa in the Axial Plane"
7 Carlos Ponce de Leon Mendez et al. "Feasibility of a TriNetX Study of Substance Use and Pain in Chiari I Malformation"
8 Carlos Ponce de Leon Mendez et al. "Long-Term Consequences of Orphaned Syringo-Subarachnoid Shunts: Late-Onset Symptomatic Spinal Cord Tethering"
9 Henry Goli, Nymisha Mai et al. "Comparison of Motion in Chiari Type I Malformation Patients Versus Healthy Controls"
10 Ian Soldberg et al. "Biomechanical Report: Analysis and Imaging at Northeastern (BRAIN)"

🔬 Demonstrations
1 MyChiari App for iOS to Track Chiari Symptoms, George Mattis & Matthew Bloom
2 Transcranial Magnetic Stimulation (TMS) to Improve Symptoms for CMI Patients, Yuxuan 'Jerry' Wang & David Sherman
3 Gait Analysis Assessment for CMI Patients, Yuxuan 'Jerry' Wang & Joshua Stefanik
4 Objective Measurement of Pain in CMI, Yingzi Lin
5 Spinal Flow Care as an Alternative Holistic Practice, Marianne Babcock

Come see the posters and demo at the CNRL Open House on August 8th and meet other members of the Chiari community! 💙

📅 Date: August 8th 📍 Location: Boston, MA

🔗 More Info & RSVP: https://neurobiomechanics.github.io/OpenHouse2026/

Free full-day conference on Chiari malformation, syringomyelia, CSF dynamics, and neurobiomechanics. August 8, 2026, Northeastern University ISEC, Boston. Research talks, posters, demos, and patient experience session.

08/06/2026

🧠 Info-Tip #28 of 30 — Chiari Open House | August 8th

We are just a few days away from the Open House. Only a couple of tips left for me to post. On-line registration closes Thursday at noon but you can also join us and register on site the day of the event.

Tip #28: This one-day conference includes two coffee breaks, a lunch hour, and an hour set aside for poster and demo viewing between researcher presentations. That means you'll have ample time to approach one of the Chiari researchers — neurosurgeons, psychologists, anatomists, bioengineers, or neuroradiologists — for a one-on-one conversation. That's the main advantage of an intimate meeting like this one, and it's why we're not streaming the event live (though we will record the talks and post them later).

We currently have 53 people registered, so the event will be far from crowded. Your questions and feedback are invaluable to Chiari researchers — they help these researchers understand what matters most to patients and how to design future studies with the patient perspective in mind. In the end, this is a collaborative effort.

If this meeting is of interest to you, please come to the CNRL Open House on August 8th and meet other members of the Chiari community! 💙

📅 Date: August 8th 📍 Location: Boston, MA

🔗 More Info & RSVP: https://neurobiomechanics.github.io/OpenHouse2026/

08/05/2026

Another video for MyChiari App for the iphone
Chiari Research Open House
Boston, MA

🔗 More Info & RSVP:
https://neurobiomechanics.github.io/OpenHouse2026/

08/05/2026

🧠 Info-Tip #27 of 30 — Big Thank You to All Presenters!!!

My heartfelt thanks to all the Chiari researchers who are generously giving up their weekend—and covering the costs of travel, flights, and hotels—to join us in Boston and share their knowledge with the community. While many of you are based in the New England area, we are deeply grateful to everyone making the trip to speak, learn, and connect with fellow attendees at this meeting.

We truly appreciate your generosity in sharing your time and expertise. I am absolutely thrilled at the breath of expertise and quality of Chiari researchers that will be speaking at this meeting. It is my sincere hope that a gathering like this will spark new inspiration and collaboration, leading to fresh ideas and, ultimately, real improvements in the lives of patients and families living with Chiari malformation. As that is the true goal of this research.

Looking forward to seeing everyone this Saturday at the CNRL Open House on August 8th! 💙

Remember, Online registration ends at noon this Thursday

📅 Date: August 8th 📍 Location: Boston, MA

🔗 More Info about the Speaker & RSVP: https://neurobiomechanics.github.io/OpenHouse2026/

08/03/2026

🧠 Info-Tip #26 of 30 — Chiari Research Open House | August 8th

One-day event, 8:00 AM – 4:30 PM

• 15 technical presentations by Chiari research experts (presented for a general public audience)
• 4 patient experience talks
• 10 research posters
• 5 research method demonstrations
• Breakfast, lunch, and coffee provided
• Plenty of time to talk with presenters during breaks and lunch
• Online registration closes Thursday at noon (on-site registration also available Saturday at the event)
• Cost: $50 per person

Come learn about what Chiari research is going on now at the CNRL Open House on August 8th and meet other members of the Chiari community! 💙

📅 Date: August 8th 📍 Location: Boston, MA

🔗 More Info & RSVP: https://neurobiomechanics.github.io/OpenHouse2026/

08/03/2026

🧠 Info-Tip #25 of 30 — Chiari Open House | August 8th

🎙️ Speaker Spotlight: Paolo Bolognese, M.D.

As we count down to our Open House on August 8th, we're kicking off with 30 info-tips to get you ready! Remember, this one-day conference is open to anyone with an interest in CM research (i.e. you DO NOT need to be a scientist to attend this meeting). Presentations and posters are patient oriented. Note: All presentations will video recorded and posted online freely available after the meeting on the Bobby Jones CSF web site in case you can’t join us that day.

Tip #25: Meet Your Speaker — Paolo Bolognese, M.D.
Neurosurgeon; Director, Chiari EDS Center — Mount Sinai South Nassau

Dr. Bolognese is an experienced and widely recognized neurosurgeon specializing in Chiari Type I Malformation. A graduate of the University of Turin Medical School (magna cm laude, 1986), he completed a second neurosurgery residency and a fellowship at the SUNY Health Science Center at Brooklyn specifically in the management of Chiari I Malformation and related disorders. In 2001, he co-founded The Chiari Institute alongside Dr. Milhorat, and in 2014 he established the Chiari EDS Center at Mount Sinai South Nassau, expanding his clinical focus to include craniocervical instability, tethered cord, syringomyelia, and related conditions. His surgical experience encompasses more than 1,600 Chiari decompressions and 900 craniocervical fusions, including 300 procedures involving condylar screws. He has contributed extensively to the peer-reviewed literature on Chiari malformation classification and surgical management.

Come hear him speak at the CNRL Open House on August 8th and meet other members of the Chiari community! 💙

📅 Date: August 8th 📍 Location: Boston, MA

🔗 More Info & RSVP: https://neurobiomechanics.github.io/OpenHouse2026/

08/03/2026

🧠 Info-Tip #24 of 30 — Deadline for On-Line Registration is this Thursday at noon!

We are just a few days away from the Open House! It is this Saturday! To date, 46 attendees have registered, joined by 20 speakers and 20 poster and demo presenters — bringing our expected total to approximately 86 participants. We are still hoping to see more registrations come in, as the auditorium holds well over 250. We look forward to what promises to be an engaging and intimate gathering. Remember, deadline for on-line registration is this Thursday at noon. You can register in person Saturday morning, but you will not get the parking discount.

This photo is taken inside the auditorium where the Open House will be held. This is a beautiful and comfortable space.

CAN'T WAIT!

📅 Date: August 8th 📍 Location: Boston, MA

🔗 More Info & RSVP: https://neurobiomechanics.github.io/OpenHouse2026/

08/02/2026

🧠 Info-Tip #23 of 30 — Finalized Speaker Schedule for Chiari Research Open House

As we count down to our Open House on August 8th, we're kicking off with 30 info-tips to get you ready! Remember, this one-day conference is open to anyone with an interest in CM research (i.e. you DO NOT need to be a scientist to attend this meeting). Presentations and posters are patient oriented. Note: All presentations will video recorded and posted online freely available after the meeting on the Bobby Jones CSF web site in case you can’t join us that day.

Tip #23: Finalized Speaker Schedule — see photo or hyperlink below

📅 Date: August 8th 📍 Location: Boston, MA

🔗 More Info & RSVP: https://neurobiomechanics.github.io/OpenHouse2026/

07/31/2026

MyChiari App for the iphone
Chiari Research Open House

Boston, MA 🔗 More Info & RSVP:

https://neurobiomechanics.github.io/OpenHouse2026/