Derek’s Squad

09/26/2026

Unfortunately we were unable to walk today ! But that won’t stop us from moving forward ! Thank you to anyone who donated, anyone who was planning to walk , anyone who is wearing a Derek squad shirt to spread awareness or anyone that put up a Derek squad sticker somewhere ! Your efforts no matter how you contribute are seen and appreciated 💙💚 hope to see everyone next year hopefully with better weather ☀️

Also if anyone still wants to donate I think donations are still being accepted until the end of the day! And you can always help out anytime of year by donating to the children’s tumor foundation or visit there store and get some merch that also supports NF1

09/22/2026

A blood test that could help doctors detect and monitor MPNST—one of the most serious cancers associated with NF1—is getting closer.

New results from a major CTF-funded research project show that an improved liquid biopsy distinguished people with MPNST from those with benign plexiform neurofibromas and tumor-free participants. In one patient, the test detected molecular signs of recurrence 80 days before the cancer was clinically diagnosed.

The test still requires further validation before it can be used in routine care, but these findings represent measurable progress toward an earlier, less invasive way to detect and monitor MPNST.

Learn more: https://www.ctf.org/news/closer-to-a-blood-test-for-mpnst-new-results/

09/21/2026

Saturday is coming fast ! A little info for anyone interested in joining us or donating! Let’s END NF 💚💙

09/11/2026

This is the event map for anyone planning on attending

09/02/2026

First day of 1st grade !
Heading back to school is always exciting but also presents many challenges for children with NF1 and it is a reminder to keep pushing forward to help us end NF 💙💚

08/31/2026

Love this 💙💚

NF Northeast Jewelry!

NF Northeast is pleased to introduce the new NF Northeast Signature Bracelets, designed by Gabrielle Saunders (Gabby), an NF mom, GIA Graduate Gemologist, and fine jewelry designer.

Gabby’s journey as a jewelry designer took on new meaning when her son, Charlie, was diagnosed with spontaneous Neurofibromatosis Type 1 (NF1) at just 18 months old. Inspired by her experience and her passion for meaningful design, Gabby partnered with NF Northeast to create a bracelet that represents connection, awareness, resilience, and hope.

Created with meaning in every detail, these adjustable bracelets are designed to fit every wrist including women, men, and children alike.

Bracelet options:
“17” Charm represents NF1 on chromosome 17
“22” Charm represents NF2-related schwannomatosis and schwannomatosis on chromosome 22.

Also featured is a beautiful NF Northeast blue beaded bracelet, finished with two interlocking hears, a symbol of NF Northeast, our organization with a heart.

Corded, signature bracelets available in light blue, red, or black: $20
Beaded NF Northeast bracelet in blue: $25
Shipping rates apply.

These bracelets are about more than what you wear. They’re designed to start conversations.

Start your shopping here: https://neurofibromatosis-northeast.myshopify.com/collections/nf-northeast-bracelets

07/20/2026

Sign up and walk with Derek’s Squad

Find an NF Walk near you. Register for free

07/20/2026

The walk is coming up fast you can donate here if you would like to help out or come join us and sign up to walk with Derek’s Squad💙💚

Help End NF with the Children’s Tumor Foundation