One Rare

03/12/2026

After a lot of hard work, we’re excited to announce that One Rare Experience will be held in Boston, MA July 29-August 1, 2026. Interested in possibly attending? Let us know by filling out a brief survey at

Our 2026 One Rare Experience (ORE) will be held from July 29th to August 1st at Boston college, Boston MA. The agenda is currently in the works but check out our past events tab to see the kinds of activity's to expect. We hope to see you there!

12/04/2024

Thank you to the incredible individuals and organizations for your generous donations supporting One Rare’s mission! The One Rare team and Board of Advisors extend a heartfelt ‘Thank You!’ ❤️

Stay updated on our programs and events and consider making a donation today: onerare.org/donate.

12/03/2024

Today is Giving Tuesday! Consider supporting One Rare in your Giving Tuesday donations. Your gift helps us continue providing essential resources and programs for young adults, ages 18-35, living with rare diseases.

Make your tax-deductible donation and learn more at onerare.org/donate.

Thank you for your generosity!

11/21/2024

One Rare, a nonprofit founded in 2019, is dedicated to improving the lives of young adults, ages 18-35, living with rare diseases. Through education, mentoring, recreation, and peer support, we offer resources and opportunities that make a difference. Every act of generosity counts.

Thank you for supporting this mission. Please visit One Rare to donate: https://onerare.org/donate

07/19/2024

Highlights from Day 1 of One Rare Experience in Albany, New York! We kicked off our time together with mindfulness exercises and a great discussion on mental health led by Mary Bartlett. Of course we had to end the night with karaoke!

07/16/2024

Buying on Amazon Prime Day? Toss a few extra things in your cart for the One Rare Experience happening THIS WEEK!

***Please use same or next day shipping*** so items arrive by 17 July when we kick off!!

07/11/2024

There's still time to join us at One Rare Experience in Albany New York, July 17-20!

https://www.surveymonkey.com/r/J8J8CB9

🌟 Join the 2024 One Rare Experience (ORE) on July 17-20 at the University of Albany! 🌟

This year, ORE is offering a free program for young adults with rare conditions that will focus on mental health and mindfulness. Expect four days filled with lifestyle, health, wellness sessions, art, employment workshops, and plenty of fun networking opportunities. Travel costs are covered if you apply ASAP!

Interested? Apply here: surveymonkey.com/r/J8J8CB9

Exciting News! Attendees will receive a free link to Overjoyed software, an accessible game controller developed by Anthony DeVergillo, to enhance social gaming experiences. Stay tuned for our virtual game night announcement in August!

Questions about Overjoyed or the OneRare Experience ? Email: [email protected]

07/09/2024

Want to support One Rare Experience from afar? Consider donating to our Amazon wishlist! We would love your support to supply our community with games, snacks, first-aid supplies, and bedding (most needed).

Any contribution is incredibly appreciated!

07/01/2024

We are counting the days until our One Rare Experience in Albany, New York from July 17-20!

Join us in Albany! Complete our One Rare Experience Interest form: https://www.surveymonkey.com/r/J8J8CB9

02/29/2024

Today, February 29th, is Rare Disease Day. At One Rare we support young adults who are living with rare disease diagnoses to live as independently as possible, through social connections, mutual support, and providing opportunities for adventure!

Learn more about our organization here:

To improve the lives and futures of young adults living with rare disease through education, recreation and peer support