08/19/2026
When children are diagnosed with a rare disease, families quickly learn how much it matters to have people in their corner who are willing to listen, connect, advocate, and act. đź’š
For our family, State Representative John Lawn has been one of those people.
From the earliest days after Maggie and Peter were diagnosed with Limb-Girdle Muscular Dystrophy, John continually asked one question: “How can I help?” And then he followed through.
With his years of leadership and experience in healthcare, John helped connect our family with people and resources that made a meaningful difference. More importantly, he has continued to show up—not only for our family, but for children and families navigating rare diseases and complex healthcare challenges.
Families like ours need public servants who understand healthcare, who recognize the unique challenges facing the rare disease community, and who are willing to fight to make sure patients and families are heard.
We are incredibly grateful for John’s friendship, advocacy, and commitment to helping kids like Maggie and Peter. 💚
Keeping leaders like John in public service matters. Rare disease families need champions at the table.
As Maggie says best:
“When it counts, you can count on John!” 💪💚
Thank you, John, for always being in our corner.
LGMDR5 RareDiseaseCommunity PatientAdvocacy HealthcareAdvocacy JohnLawn
