Grants Cause for Spina Bifida

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Arlington, TX
Grants Cause for Spina Bifida

Grants Cause is non-profit organization named after a young boy named Grant who is inspiring us all Grant today is 8 yrs old.

Grant is the youngest of 3 boys and the only one with spina bifida. Grant was first born on May 14th, 2013 when I underwent fetal surgery at Texas Children's Hospital in Houston to repair his open back. Grant was officially born on July 25, 2013 just 10 weeks later at 35 weeks gestation. Grant stayed in the NICU for 6 days and then was discharged with Myelominingecele spina bifida, double clubbed feet, dislocated hips, a spastic bladder and no hydrocephalus, so no need for a shunt. He still has no need for a shunt and currently only taking bladder prescription medication. Grant see's a neurosurgeon, a urologist and an orthopedic surgeon for regular check-ups. "Grant's Cause" has been set up as a non-profit organization to help raise awareness of Spina Bifida and to help raise funds for medical expenses.

10/10/2026

Thursday Grant had his kidneys scanned with dye. They injected thru his foot. Thankfully so since he has no feeling in his feet and Grant hates needles. Scan confirmed reflux into his right side with "normal" function in his left. What that means going forward we don't know yet. He takes meds for his neurogenic bladder and we have already upped them which has helped. We will also see if this means anything with the upcoming surgery.

10/06/2026

We are almost 2 weeks out from surgery. We started Homebound school last week. Grant is catching up on a lot of work. I really think the one-on-one is better for him. He still has both ports in draining excess fluid from his back. We see Urology Thursday and Plastics on Friday. He's doing great as far as moving around and not a lot of pain. He has a lot of help for personal things like bathing and using the restroom. He told me today, "it's like being a baby again". Thanks to so many of you for asking for updates. We appreciate it!!!

10/04/2026

For a decade, wheelchair users on Medicare who wanted a titanium or carbon fiber frame have had to cover the entire cost themselves.

That's changing. On Sept. 30, the Senate passed the Choices for Increased Mobility Act (H.R. 1703). It cleared the House in July, and now it heads to the president's desk.

Once it becomes law, Medicare must create separate billing codes for carbon fiber and titanium frames by Jan. 1, 2028, so you pay only the difference for an ultralight frame. It costs taxpayers nothing.

This happened because of you. Advocates carried this bill into congressional offices at Roll on Capitol Hill, then kept the pressure on with messages to their senators.

Thank you to Sens. Marsha Blackburn, R-Tenn., and Tammy Duckworth, D-Ill., and Rep. John Joyce, R-Pa., for leading the way.

We'll keep you posted as the bill is signed and as Medicare builds the new codes. Follow along for updates. And in the meantime, join our Grassroots Advocacy Network to continue the momentum: https://unitedspinal.org/grassroots-advocacy-network/

09/28/2026

🔥 IT’S TIME! The 2027 CAF Grant Application is officially OPEN! 🔥

For 30+ years, CAF has been fueling dreams through sport—awarding 55,000+ grants worldwide to athletes with permanent physical disabilities. 💪🌍

Now it’s your turn. Don’t miss your chance to receive support for equipment, training, and competition.

⏰ Deadline: Nov 13, 2026 at 5PM PST

09/26/2026

Update on Grant. This is before we went home 👇. We are home now. He got consecutive hours of sleep but uncomfortable. He's feeling more sore today. He's just taking Ibuprofen/Tylenol when needed and he'll stay on an antibiotic. They went thru his previous incision and it looks better and better each time some how. He has a week and a half to heal before the first fill to stretch his skin. Overall he is doing great!

09/24/2026

Grant is out of recovery and in a room for the night. He's doing great! He says it feels like when you get a face-lift(skin is really tight). He's up and pretty talkative but still pretty drowsy. He has 2 weeks to heal then he'll start going each week to expand his skin til surgery #3. He can not lay on his back at all. Thank you everyone who is praying and thinking of us. Much appreciated to everyone who wore red for Grant today!!

Address

701 S. Nedderman Dr.
Arlington, TX
76019

Website

http://www.grantscause.com/

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