30/10/2026
Early Deaths of Autistic People and People with Learning Disabilities
LeDeR is a register of deaths of people with learning disabilities and autistic people which enables early deaths to be monitored and investigated.
From the LeDeR website: the goal is to improve the health of people with a learning disability and autistic people, and reduce health inequalities. By finding out more about why people have died, we can understand what needs to be changed to make a difference to people’s lives.
This is not to investigate specific instances of care that may have led to a death but to look more broadly at care over a person's time with health and social care, and how specific instances of health and social care intervention may have impacted overall health outcomes.
Professionals can make a report but so can family members and relatives, and caregivers and supporters. No one is obligated to make a report but doing so can help improve future health and care services as well as help understand causes and prevention.
Learn more here: https://www.england.nhs.uk/learning-disabilities/improving-health/learning-from-lives-and-deaths/
