Fight Tumours

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Fight Tumours
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Fundraising and Discussion of Brain Tumours
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My name is Kris Pay and a have a Grade 4 Glioblastoma

02/11/2026

Weird seizure fighting update

again, hate doing these things! Sam's helping me write this so she can add to it..... obviously I can't see everything that happens when it's happening.

Right, with these seizures you get focal seizures, basically you're conscious (there are other characteristics but this is the main one) and tonic clonic (grand Mal) seizures, basically unconscious, whole body jerking, normally wet myself and do a little poo. They're s**t.

Since having these, I have been obsessed with trying to stop these focal ones. So last night, brother and his wife dropped in, absolutely fine, then I went out to the car, talked about fireworks with my neighbour, absolutely fine, came inside, BAM! focal seizure.

Tried to get Max out of listening distance so he doesn't get upset (it not very nice to see). Sam got Max upstairs without him knowing what was happening, and she got me to sit on the floor so I couldn't hurt myself if I collapsed. We then sat on the kitchen floor waiting for it to finish whilst Sam asks me to do thumbs up or down to see if it is easing.

I tried to stay calm and control it while Sam was moving Max, my jaw starts twitching violently and I start making noises like a robot dieing, bit like Bishop the android in Alien.

I feel like I managed to control it so it was more like a mild seizure and I could talk soon after and I didn't make robot dieing noises.

If you are new to the brain tumour club or interested..... don't fight these seizures - it hurts, my focal seizures are normally about 5 mins but even though this lasted about 5 mins, the face twitching stuff continued for about an hour! No pain just irritating, sort of like holding in a sneeze, it feels like the seizure needs to do it's thing as a release for all the stored up twitching energy.

This is my experience, I might be wrong....and I will try again next time and report back.

Here is a photo of a squirrel sunbathing or sleeping in a tree in the garden to rebalance the rubbish post!

02/11/2026

So, Halloween was a hit, the vibe was really good in the village, people were generous and the hot chocolate went down a treat!!

Band at the pub, party at the pavilion in the park...best it's been in years!!

Hope you all had fun!!!

27/10/2026

Just realised, I didn't post these hipflask on here!

Made a couple for friends and got carried away.

Anyway I still have some available and I guess they aren't strictly Halloween!

https://fighttumours.co.uk/collections/halloween

use code "spookydelivery" for free delivery, it's next day delivery and they deliver on Saturday.... sometimes.

25/10/2026

a nice moment again!

my amazing brother and is beautiful fiancé got married recently and me, Max and my Dad were groomsmen.

The bride arrived on her father's motorcycle in a sidecar which was very special..and cool!

Amazing food, amazing party.....and just a wicked day.
..and Max drove a custom RC car that carried the wedding rings...then the guests signed it.

23/10/2026

it's nearly the weekend guys and gals!

22/10/2026

If you're a new follower, first off, thank you! We need as many followers as possible, so every single one of you makes a difference.

The purpose of this page, our website and our GoFundMe isn't to have a moan or ask for sympathy. It's to share our story.

When I was diagnosed, I knew absolutely nothing about brain tumours, Glioblastoma or what was about to happen to me and my family. We're certainly not experts (although Sam isn't far off becoming one!).

We've learnt a hell of a lot along the way, some good, some bad, and plenty we'd rather not have learnt at all.

But if something I post helps just one person going through something similar, or helps someone understand what a friend or family member is dealing with, then that's a win in my book.

The other big part of Fight Tumours is, of course, fundraising.

We're raising money for treatment that isn't funded, in an effort to buy me more time. More time with friends, more time with family, and most importantly, more time with my partner Sam and our son Max.

That's really what all of this is about. Not money for the sake of money, but time. And time is something I desperately want more of.

So here's where I'm going to ask for your help.

If you're in a position to donate, please consider making a contribution to our fundraiser. Whether it's £5, £10 or whatever you can spare, every donation gets us a little closer to funding my treatment.

💜 You can donate directly here:
https://gofund.me/2563ba81a

And if donating isn't possible, that's absolutely fine too. Sharing our story, inviting your friends to follow this page or passing our fundraiser on to someone else can make a massive difference.

We're not asking for sympathy. We're asking for a chance at more time together, and your support could help us get there.

So thank you for following, sharing, donating, commenting or even just reading my ramblings. It all helps!

And if you're new here, have a look around. There's plenty of stuff, and I do occasionally post something funny!

💜 Find out more about Fight Tumours:
www.fighttumours.co.uk

Thank you x

22/10/2026

Max says congratulations for owning "hump-day",

have a little dance, it's nearly the weekend!

21/10/2026

It's "hump-day" or whatever...
..eitherway let Max's determination motivate you!!!

Please give us a share, we need followers!

20/10/2026

Vaccine 9 this morning....well it was a few days ago but I reacted badly, but apparently that's a good sign so yay!

My last blood draw and review was at vaccine 7, and the next one is at vaccine 10.

Unfortunately, the last review wasn't ideal. The vaccine (I don't know the technical term) isn't showing the response we'd hoped for. But that doesn't mean it won't! Apparently, some patients don't see a good response until the blood draw at vaccine 10, so fingers crossed.

And just to confuse things even more, the amount of blood they take is really small, and the sample they actually test is even smaller, so the results aren't always completely reliable.

Anyway, today's vaccine was fine. Weirdly, it made me feel a bit high, which was pretty sweet! Not every day has to be bad!

Not really much to report from the doctor or oncologist. We talked about my daily meds and apparently I look really healthy, so that's something!

So, to recap..... vaccine 9 done, got a bit high, apparently look healthy..... so I treated myself to a pretzel and a nice b**r, and Sam had a strudel.

Tschüss!

Oh, and apparently the German word for the last little bit of coffee in your cup is "Schluck", which sounds absolutely hilarious! 😂

23/08/2026

Listen up high blood pressure people....
...I think I have mentioned this before, but here it is again:

Before all this tumour malarkey, my blood pressure was very high, the doctors gave me different medication, different mixtures etc. It never improved!

After the clever brain 🧠 surgeon had a poke at my brain, blood pressure cured...and when I say cured, textbook readings all the time!

Since then, I've heard so many people with similar stories, I don't think it would have made a difference but it does make me curious.

Anyway, think about this if you have high blood pressure, don't ignore your body if it is trying to tell you something.

Can't stress enough.... no medical training (unless you count a expired Scout leader first aid thingy) take with a pinch of salt!

Here's a sad picture of me to emphasize the seriousness of this post!

Address

Biggleswade
SG18

Website

http://www.fighttumours.co.uk/

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