Poppy's Path

10/13/2026

Our neighbors and doing something and you need to come support. Out in the rural end of Ottawa head out for a kid friendly haunted walk. Poppy has been every year so far!

Guess what costume Poppy and D are in for this year??

They are graciously offering a donation to Poppy's Path.

10/11/2026

Moments after Poppy used her talker to thoughtfully find 'I Love You' and look right at Mum!
Way to melt everyone's heart in the house.
It's something special that technology can give this girl a voice to be heard!

08/26/2026

Life moves fast, but Poppy’s community always keeps us grounded.

​From wrapping up the school year to navigating the sunny blur of summer, it’s been a full season. As much fun as summer brings, the change in routine and keeping everything moving can definitely have its challenging days. Still, looking through these memories reminds us of all the joy mixed in.

​Here is a little glimpse into our last few months and the special moments along the way.

​To everyone who continues to show up, give their time, and wrap Poppy in love and opportunity—thank you. We couldn’t walk this path without our village.

03/31/2026

🌟 NBIA News – March 2026 Edition is Here! 🌟

We’re excited to share the latest updates, milestones, and community highlights in this month’s NBIA Newsletter:

Rare Disease Day Recap
Welcoming a New Board Member
OHSU PKAN Research Update
30th Anniversary – Sponsors Needed
Save the Date: 2027 Family Conference
2026 Million Dollar Bike Ride
Director of Development & Community Engagement
Donor Recognition
NBIA Angels
A Message from the President

📖 Read the full newsletter and stay connected with everything happening in NBIA!

Click the link below to read:
https://nbiadisorders.org/images/newsletters/2026_March_Newsletter.pdf

03/15/2026

Wow! What a way to kick off March break with the with a W over Anaheim - just what asked for for his birthday. These girls cheered hard!

Poppy and D were so lucky to cross paths with so many mascots, thanks to the . The team was able to host us along with some other CHEO families to enjoy the game and party!

There was no hesitation to party with any of our friends who came to visit and with our new friends from CHEO.

02/26/2026

What an incredible way to kick off the night! 🔥
Huge shoutout to the insanely talented for absolutely crushing their opening performance at the Poppy's Path Gala.

Their epic take on ' "Everlong" had the whole room buzzing with energy from the very first beat! 🥁✨

These guys brought serious groove, joy, and pure talent to set the perfect vibe for an unforgettable evening celebrating community and an amazing cause. Poppy was smiling ear to ear! ❤️

Thank you for making the start of the gala one for the books.

02/19/2026

So thankful to have Senators Community Foundation behind Poppy! The team creates magic! Take some time to read Graeme Nichols article from last year. He has been crucial to helping build the awareness of BPAN

🚨Only 2 days left to get your bids in and support fan, Poppy! 🚨

👀Click here to browse the prizes: https://ow.ly/oRMK50YiebB
🫶 Learn more about Poppy here: https://ow.ly/yUIL50YiebG
❤️ Read article here: https://ow.ly/u27T50YiebE

02/18/2026

Event day is almost here, and we’re beyond excited! 🎉💛

A huge thank you to the incredibly talented for stepping in to document every joyful, heartfelt moment throughout our event.

Melanie’s eye for real emotion and candid beauty means we’ll have lasting memories of the laughter, connections, and love that fill the room—especially for our warriors and families.

As a fellow community mum (and an amazing photographer), she truly gets it. Her lens will help us share the magic far and wide, raising awareness for BPAN and celebrating our incredible support network.

If you’re joining us, smile big— will be there capturing it all! 📸✨ Go on over to her profile and give her a follow to see some magic.

Who’s ready to make memories?