11/12/2026
We’re pleased to share the work taking place through our partnership with The Hospice of Windsor and Essex County to strengthen palliative supports for people with intellectual disabilities.
Over the past 18 months, this collaboration has helped build staff knowledge, develop practical resources, strengthen communication with families and care teams, and support conversations around changing health needs and advance care planning.
Thank you to Alisha, Janet, and everyone involved in the Circle of Care Champions working group for their commitment and collaboration. This work is helping us continue to ensure that people are supported to age, live, and die with dignity, with their wishes, values and goals at the centre of their support.
We appreciate this important partnership and the difference it is making.
Over the past year and a half, our Clinical Coach, Alisha L., and Palliative Pain and Symptom Management Consultant, Janet E., have worked closely with Community Living Essex County (CLEC) to co-develop a sustainable, person-centred palliative approach to care for people with intellectual and developmental disabilities.
Through ongoing leadership discussions, staff engagement, a survey completed by 70 staff, and the establishment of the Circle of Care Champions working group, the partnership has supported early identification of changing health needs, advance care planning, staff education, policy and practice development, and improved access to palliative supports.
Collaborative work has included developing training modules and practical resources, integrating values-based advance care planning prompts into Person-Directed Planning (Personal Outcomes Plan Working Book), strengthening communication with families and care teams, and building staff confidence in recognizing changes, responding within scope, and knowing when to seek additional support.
CLEC has continued their commitment to implementing the work across its services by reviewing policies, expanding education, and sharing the partnership’s learning through an Ontario Association on Developmental Disabilities conference presentation which reflects a strong, ongoing investment in ensuring that people are supported to age, live, and die with dignity in the place they call home.
Thank you to this hard-working group – you are making a real difference in palliative care!