Kanooka Disability Connections

Kanooka Disability Connections NDIS Provider Registered NDIS provider

15/04/2026

Josh & I guests of the Parramatta Eels, they didn’t mind he had his Tigers gear on…..good times

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13/02/2026

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Ben Young was born with severe cerebral palsy, unable to speak or move. So, Neil turned his studio into a laboratory, searching for a digital voice that could bridge the silence between a father and a son. He is non-verbal and quadriplegic, locked in a body that refuses to follow his mind’s commands.

"I was trying to find a frequency he could hear."

In 1982, the world thought Neil Young had lost his mind. He stopped the acoustic folk-rock and started singing through a computer. The critics called it a disaster.

But behind the gates of his ranch, Neil wasn’t trying to top the charts—he was trying to talk to his son.

Neil has spent years trying to bridge that silence. He is obsessed with buttons, switches, and synthesized frequencies—not because he wants to be a pop star, but because he is trying to find a frequency that Ben can hear.

“If you listen to the words to ‘Transformer Man’ and ‘Computer Age, you’ll hear a lot of references to my son and to people trying to live a life by pressing buttons… trying to talk with people who can’t talk. It has to do with a part of my life that practically no one can relate to.”

The irony of Neil Young’s life is a heavy one. This is a man whose voice is one of the most recognizable in the history of rock and roll, yet he found himself in a house where communication was a physical struggle. It wasn’t just Ben. His eldest son, Zeke, born to actress Carrie Snodgrass, also had cerebral palsy, though a milder form.

When Ben was born with a more profound version of the same condition, Neil was floored. In his memoir, Waging Heavy Peace, he laid bare the raw, human anger that precedes the grace.

“I was in shock,” he wrote. “I couldn’t fathom how I had fathered two children with a rare condition that was not supposed to be hereditary… I was so angry and confused inside, projecting scenarios in my mind where people said something bad about Ben or Zeke and I would just attack them.”

That “root of instability” didn’t break him; it rewired him. He didn’t just become a father; he became an engineer of accessibility.

Life at the ranch became a symphony of adaptive technology. Neil, a lifelong train enthusiast, worked to develop specialized remote controls so Ben could operate model trains with a simple movement of his head.

“By moving his head, he can blow the horn or hit the brakes,” Neil told an interviewer. “In those moments, Ben isn’t disabled… He’s just having fun.”

This wasn’t just a hobby; it was a philosophy. Neil and his then-wife Pegi eventually founded The Bridge School, an organization dedicated to helping children with severe speech and physical impairments. They didn’t want a “special” world for their children; they wanted the world to catch up to them.

This wasn't just a hobby; it was a philosophy. Neil and his then-wife Pegi eventually founded The Bridge School, an organization dedicated to helping children with severe speech and physical impairments. They didn't want a "special" world for their children; they wanted the world to catch up to them.

Beyond the school, Ben found his own path to autonomy. For over twenty years, Ben has successfully operated his own business, an organic egg farm on the ranch. Known as "Coastside Farms," the operation became a local legend in La Honda.

Despite his physical limitations, Ben manages the farm using customized technology, selling his "golden" eggs to local cafes and farmers' markets. "The whole idea of nurturing animals that can give you something in return... just works for me," Ben shared through his communication device. "These are living, breathing creatures that are supplying us with sustenance."

Through the decades, as Neil’s music swung from the grunge of Crazy Horse to the folk of the prairies, Ben remained his steady North Star. The boy who was told he might never do anything became a man who ran an organic egg business on the ranch and toured the world with his father.

“Ben has taught me you never give up. You can’t say ‘This is too hard.’ It can’t be too hard. There are so many kids with challenges that are so great and yet they just keep trying.”

Today, the “Transformer Man” is a legacy of a father who refused to let silence be the final word. Neil looks at Ben and sees something the rest of the world might miss in the wheelchair and the tubes. He sees a masterclass in the human spirit.

“He is the most accepting human being I have ever met,” Neil wrote. “It’s a marvel.”

When Neil Young was faced with a silence that seemed unbreakable, he didn't just accept it; he became an engineer of possibility.

He reminds us that our job as human beings isn't to fix the people we love, but to rebuild the world around them so they can thrive.

To love is an active verb.

>We Are Human Angels<
Authors
Awakening the Human Spirit

We are the authors of 'We Are Human Angels,' the book that has spread a new vision of the human experience and has been spontaneously translated into 14 languages by readers.

We hope our writing sparks something in you!

31/10/2025

We got it up and running, now for the Veggie Garden.

Andrew & I repairing an old Rotary Hoe we found on the side of the road….
31/10/2025

Andrew & I repairing an old Rotary Hoe we found on the side of the road….

Helping out Andrew with his new work bench , great job cleaning up his local area. All made with recycled materials.Well...
10/06/2025

Helping out Andrew with his new work bench , great job cleaning up his local area. All made with recycled materials.
Well done👍

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Wyong, NSW
2263

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