Rare Disorders Zimbabwe

10/09/2026

💙 Duchenne Muscular Dystrophy Awareness Day | 7 September💙

A little delayed but important nonetheless, as RDZ we stand with children, young people, adults, and families living with Duchenne Muscular Dystrophy (DMD).

DMD is a rare genetic condition that causes progressive muscle weakness and affects mobility, independence, and everyday life. But behind every diagnosis is a person with dreams, potential, and a story worth hearing. 💙

Let’s raise awareness, promote early diagnosis, support families, and work towards better access to care and treatment.

Every step matters. Every voice matters. Every life matters.

💙 Together, we can create a more inclusive world for people living with DMD.

23/08/2026

Growing Hope, One Chicken at a Time🐔

At Rare Disorders Zimbabwe (RDZ), we believe that supporting families means looking beyond medical care and addressing the social and economic challenges they face.

Through our Chicken Project ,17 families were supported to start small-scale poultry projects as a pathway towards improved household nutrition, income generation and greater self-reliance. 🐔🌱

We are encouraged to hear from beneficiaries that the chickens have provided the push they needed to start a sustainable source of income, with many already looking forward to continuing the project independently.

We extend our heartfelt appreciation to Profeeds for partnering with us and helping make this initiative possible. Your support is contributing to stronger, more resilient families living with rare disorders in Zimbabwe. 💚

Together, we are growing more than chickens—we are growing opportunity, dignity and hope.

06/08/2026

Today we had the privilege of participating in the NANGO Northern Region NGO Expo & Winter School 2026 held in Harare under the theme:

“Fortifying Inclusive Civic Space and Multi-Stakeholder Partnerships for Effective Development Impact.”

The event provided a valuable platform to engage with fellow civil society organisations, development partners and other key stakeholders who are all working towards improving the lives of communities across Zimbabwe.

For us, the day was about more than attending an exhibition. It was an opportunity to learn from one another, exchange ideas, build meaningful connections and strengthen partnerships that can help us better serve individuals and families living with rare disorders. We were reminded that collaboration is one of the strongest tools we have in creating lasting impact, particularly in an environment where resources are limited and the needs of vulnerable communities continue to grow.

Discussions throughout the day highlighted the vital role that civil society plays in national development. By working alongside government, communities and development partners, organisations can help bridge gaps, advocate for inclusive policies, promote accountability and ensure that every voice is heard. Strong partnerships, transparency and public trust remain essential in building a more inclusive and resilient Zimbabwe.

As Rare Disorders Zimbabwe, we remain committed to advocating for individuals and families affected by rare disorders while fostering partnerships that strengthen our collective impact. We are grateful for the opportunity to share our work, learn from others and connect with organisations that share a common vision of creating inclusive, empowered and thriving communities.

Thank you to everyone who visited the Rare Disorders Zimbabwe exhibition stand. We appreciate every conversation, connection and opportunity to collaborate, and we look forward to building lasting partnerships that will continue advancing the rare disease community in Zimbabwe. If you did not make it today , please do come through tommorow and also invite others ! Thank you 😊

NANGO Zimbabwe COSPE onlus

05/08/2026

💙 Stevens-Johnson Syndrome Awareness Month 💙

Join us in raising awareness about Stevens-Johnson Syndrome (SJS), a rare and serious disorder of the skin and mucous membranes. This August, let’s educate ourselves and others about the symptoms, causes, and importance of early diagnosis. Together, we can make a difference.

22/07/2026

This Graves' Disease Awareness Month, we are honoured to share the lived experience of one of our community members Ms Dorothy Nyika.

Behind every diagnosis is a person, a family, and a journey filled with challenges, courage, and hope.
Graves' disease is more than an overactive thyroid—it can affect physical health, emotional wellbeing, work, school, and everyday life. Yet with timely diagnosis, appropriate treatment, and a strong support system, people living with Graves' disease can lead healthy and fulfilling lives.

By sharing this story, we hope to raise awareness, reduce stigma, and encourage anyone experiencing symptoms to seek medical advice early. No one should have to face a rare or chronic condition alone.

Together, let's amplify the voices of those living with Graves' disease and build a more informed, compassionate, and supportive community.

💙 Watch. Learn. Share. Help us spread awareness.

14/07/2026

💙July is Graves Disease Awareness Month 💙

This July, we stand in solidarity with individuals and families affected by Graves’ Disease—an autoimmune condition that causes the thyroid gland to become overactive. Early recognition, timely diagnosis, and appropriate treatment can help people with Graves’ Disease lead healthy and fulfilling lives.

Let’s use this month to raise awareness, encourage early diagnosis, reduce stigma, and support everyone living with thyroid disorders. Together, we can build a more informed, compassionate, and inclusive community.

Together, let’s raise awareness, inspire hope, and ensure no one faces a rare disease alone.

08/07/2026

A proud moment for the entire Rare Disorders Zimbabwe family! 🎉

Congratulations to our Founder and Executive Director on your well-deserved selection to be part of Rare Diseases International (RDI) Council. This remarkable achievement is a testament to your unwavering dedication, visionary leadership, and relentless advocacy for individuals and families living with rare diseases.

Your appointment is not only a personal milestone but also a significant step forward in amplifying Zimbabwe's voice on the global rare disease stage. We are incredibly proud of you and look forward to the positive impact your leadership will continue to make both locally and internationally.

Congratulations on this well-earned recognition. The future of rare disease advocacy is brighter because of leaders like you. 💜🌍

03/07/2026

The 1st day of the Rare Diseases International Membership Meeting 2026 was nothing short of exciting! In the morning, RDZ Executive Director, Dr. Nyakambangwe, was part of a panel on 'Advancing Improvements in Diagnosis, Treatment & Care' where she shared her experiences and work in Zimbabwe advancing equity within the rare disease community.

In the evening, we had the Aurora Awards dinner. Congratulations to all winners!

Rare Disorders Zimbabwe is humbly grateful to be part of these conversations with the global community.

22/06/2026

We celebrate the fathers who walk a path few can fully understand.

To the dads of children living with rare disorders, thank you for your unwavering strength, quiet sacrifices, and steadfast love. Thank you for the hospital visits, the sleepless nights, the endless searching for answers, and for being a pillar of hope when the journey feels overwhelming.

Your courage, advocacy, and commitment make a profound difference in the lives of your children and families every single day. You remind us that fatherhood is not only about providing—it is about showing up, standing strong, and loving without limits.
Still in the spirit of Father’s Day, Rare Disorders Zimbabwe honours and celebrates you. Your resilience inspires us, your dedication empowers us, and your love changes lives.

Happy Father’s Day to all our extraordinary rare disease dads. 💙

09/06/2026