04/10/2026
🧠 EPILEPSY CAREGIVERS SUPPORT :
💜 KNOW THE SEIZURE. KNOW THE PERSON.
One of the most valuable things a caregiver can do is learn what is normal for their loved one and recognise when something changes.
A seizure does not always look like shaking or falling to the ground. Some people may stare blankly, become unresponsive, make repetitive movements, suddenly stiffen or jerk, or experience unusual sensations.
And sometimes there may be warning signs before a seizure.
👀 Perhaps they suddenly become quiet.
👃 They notice an unusual smell or taste.
💭 They experience a strange feeling in their stomach.
😟 They suddenly feel afraid or confused.
👁️ They notice changes in their vision.
⚡ They experience tingling or another unusual sensation.
Not everyone experiences warning signs, and an aura can itself be part of a seizure.
Why does recognising the pattern matter?
Because knowing their seizure pattern can help you:
✅ Recognise a seizure earlier
✅ Keep them safer
✅ Reduce the risk of injury
✅ Know what information to share with the healthcare team
✅ Identify changes that may need medical attention
✅ Understand whether treatment is helping
📖 Don't just remember what happened — record it.
Note what happened before, during and after the event, how long it lasted, possible triggers, and how the person recovered.
And remember: epilepsy doesn't disappear when the seizure ends.
Between seizures, a person may experience difficulties with memory, concentration, sleep, mood, learning, medication, relationships or independence.
❤️ The goal of epilepsy care is not only fewer seizures. It is helping the person live the fullest and safest life possible.
👨🏽⚕️👩🏽⚕️ This is why working with a multidisciplinary team (MDT) is so important — and why the person with epilepsy and their caregiver must be part of that team.
🌱 Caregivers, become a careful observer.
Know the pattern.
Recognise the signs.
Record what you see.
Share it with the care team.
And look beyond the seizure.
💬
