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Itchylosis help club, Lusaka (2026)

25/12/2025

Dear ichthyosis ambassadors and friends we at itchylosis help club Zambia wish you a merry Christmas and a prosperous year 2026.
We thank you for your commitment to make this world a better place free of stigma against people with ichthyosis.
❤️❤️🙏🙏

11/05/2025

WE WISH ALL THE MOTHERS ALL OVER THE WORLD A BLESSED MOTHER'S DAY.
❤️❤️❤️❤️❤️❤️❤️

From
Ichthyosis Help Club Zambia

06/05/2025

Dear Ichthyosis Ambassadors near and far.
May,is Ichthyosis awareness month.

Our ichthyosis advocacy and awareness continues.

Reach out to our local communities to sensitise masses on Ichthyosis.

Your voice adds to making this world a better place for everyone including different skinned persons.

Love, compassion and empathy are all it takes.

Remember to tell people that ICHTHYOSIS is not a death sentence, everyone deserves to be free,happy and loved.❤️

To you Ambassadors ICHTHYOSIS
stands for........

I- stands for I
C-stands for CAN ALSO
H-stands for HAVE & ENJOY
T-stands forTRUE
H-stands for HAPPINESS THAT
Y-stands for YOU AND
O-stands for OTHERS
S-stands for SEE
I-stands for IN THE MIDST OF
S-stands for SUNSHINE

😍🥰😂🥲🤩😇

Blessed Ichthyosis awareness month

ICHTHYOSIS HELP CLUB ZAMBIA
❤️❤️❤️❤️❤️❤️

01/05/2025

Dear Ichthyosis Ambassadors near and far far away, the month of May is so critical on our calendar.

May is the Ichthyosis awareness month.

Friends,it is time to upper the game.Put on your boots and hit the road to sensitise our various communities on Ichthyosis.

Your voice and Ichthyosis help club Zambia voice put together is louder.

Tell a friend to tell another friend that Ichthyosis is a genetic skin disorder and is non contagious.

01/04/2025

Dear friends near and far far away,
May the month of April bring you Joy, Peace and Happiness.

Ichthyosis Help Club Zambia
❤️❤️❤️🙏🙏

08/03/2025

Women all over the world, today is your day.

We at Ichthyosis Help Club Zambia would like to wish you a Happy Women's day.

You have been amazing in our lives and are the pillars of progress in our communities.

May God bless you all and please enjoy the day.

By the way with our permission,if you can,put on those dancing shoes and lose yourselves just this once.
🤣🤣🤎✌️🙏

27/02/2025

Dear Ichthyosis Ambassadors and others,tomorrow 28th February is the big one for us.

Please help celebrate Rare disease awareness day by getting involved in sensitisation programs in your local communities.

Best of Regards
Ichthyosis Help Club Zambia
❤️❤️❤️❤️❤️❤️

22/02/2025

Dear Itchylosis ambassadors,28th February is Rare disease awareness day.

This, Itchylosis ambassadors is your time.Spread out in numbers and sensitise your communities near and far far away on Itchylosis.

Tell a friend, a neighbor,a relative to tell another.Explain that Itchylosis is non contagious and those that have are as good as the next person.

Explain to them that as at now, Itchylosis has no known cure but can be successfully managed by personal hygiene and use of creams.

Help sensitise against stigma on people living with Itchylosis in Schools, Shopping malls, Play Parks etc

21/02/2025

Peggy shares her story as we celebrate 28th February -Rare skin disease (Itchylosis)Part A
THE DAY DOCTORS TOLD US PEGGY HAS ITCHYLOSIS

Today 18/04/2017 was an exciting day for my parents as they prepared themselves to meet Peggy's doctors at the skin clinic to get the results of the intensive skin examinations carried out.

Out of habit,we made a prayer to God that he gives us strength as we meet the Skin doctor and accept what ever the results will show.
Beaming with joy we entered the Doctors office to get first hand info on how they would proceed to treat Peggy's skin condition.Alas.....

The walls of the room felt shaky and the air vents proofed too small to provide sufficient oxygen to breathe and our knees collapsed and gave way, when the Doctors gave us the most shocking news of our lives.
The Doctor told us that after carefully analysing the results, they believed without any doubt that Peggy had a genetic skin disorder known as itchylosis.

Prior to this announcement,as parents we were excited that today a diagnosis results will be made and hopefully our Peggy would get the much awaited treatment and finally be like all the other children, but alas....😭
The Doctor then proceeded to tell us that he had good or bad news to tell us pertaining to our child's itchylosis status.

The Doctor prepared us to hear the bad news first and to our shock he informed us that itchylosis can not be cured.In simple terms itchylosis is incurable.We were very perplexed.

The Doctor calmed us down and informed that, for starters itchylosis is not a disease but a genetic skin condition.

He also emphasised a point to the effect that itchylosis is not contagious and cannot be passed from one person to another through physical contact.
He also informed us that Medical Doctors have not found any cure for Peggy's skin condition yet.
-----------------------------------------------------------------
Cont'd in Part B

20/02/2025

RARE DISEASE (ITCHYLOSIS) AWARENESS MONTH
BORN DIFFERENTLY BUT SPECIAL IN THE EYES OF GOD (Repost)

My name is Peggy and I am eight years.
I am based and was born in Zambia,a country in Africa.
I was born with a genetic skin condition known as itchylosis.

At a tender age of eight,I am a victim of stigmatisation by society.
I am mostly confined indoors,as some part of society here in Zambia and Africa as a whole do not want to associate with our type( they say)

For some of you, who do not know, this itchylosis has no known cure medically world wide.Medical Doctors say it can only be managed through creams which, only offer short term relieve to lessen scratching which causes bleeding and results in chronic sores.

In Africa, the myth is people living with itchylosis are considered cursed or have been cast with a spell of witchcraft.Nobody wants to associate with us.This is worse in the rural areas where superstitions are prevalently high.

Sadly and shamelessly even the so called learned and educated shun us.They fail to understand that itchylosis is non contagious and can not be transferred from one person to another through physical contact.

Getting enrolled in public schools has been a challenge and often times if I do the bullying is evidently rampant and only counsel from ,my Dad, Joseph and my siblings has kept sane.The kids in school and shamelessly some adults consider me an alien and scream and run from me. Imagine!!!😥
I have very few friends.Thank God for my family and siblings who fill that void.

My appeal to you dear friends is that, please help me,to sensitise the world that being a patient of itchylosis does not entitle that you are mentally retarded.We are mentally stable and have feelings & emotions like any human being.Please hold our hands,walk with us and give us hope, as we too, have rights as embedded in UN Charter just like the next person.Don't judge us by our skin.Despite not been in school so frequently, I can speak English fluently.

19/02/2025

RARE DISEASE (ITCHYLOSIS)
AWARENESS -28th FEBRUARY
PEGGY'S BIRTH
Dear friends near and far far away, today we embark on this wonderful journey to know who this Peggy is.

The bible in the book of Psalms 127v 3 says"behold children are a blessing from God.
For those who don't know me, I am a girl living with a rare genetic skin disorder known as itchylosis.This condition is incurable as medical doctors world wide say it can not be cured.

Exactly eight years ago on 2nd August,2015 in Kabwe Town in the Central Province of Zambia,a bouncy baby girl (me 🤣) was born.

My grand entry on earth was a loud cry of joy that was heard by nurses, Doctors and the entire clinic visitors.

My parents Mainess and Joseph tell me, I was an instant hit as they, prior,had prayed to God for a baby girl and he granted them their wish.
I can't confirm or deny, but I was told a party was made to honor my smooth entry to this world.

At name dedication ceremony,I was named Peggy which means PEARL. A Pearl is a priceless beautiful stone and in Greek the name Peggy means " A CHILD OF LIGHT"
Coincidentally, I was named after my favorite aunt,Dad's late sister Peggy.

My parents were overjoyed that another daughter were given unto them.As usual my parents had envisaged what they wanted me to be in life.Ironic of parents,

Their prayer was centered on Isaiah 8v18 which states"Behold, I and the children whom the lord has given me are for signs and wonder"

Like all parents, the safe delivery brings joy and my parents were not an exception.Am told my siblings and I clicked instantly.
I was told kwenze kukondwela,nosamwa🤣🤣(Happiness)
-------------------------------------------------------------

Meanwhile get like ,share, comment and interact on my page Peggy Peggy and itchylosis help club .
Email: [email protected]
cell +260978200399
+260760902795(Whatsapp)
Email: [email protected]

18/02/2025

RARE DISEASE (ITCHYLOSIS) AWARENESS ON 28th FEBRUARY
Many thanks to you followers and friends of the Itchylosis Help Club Zambia.

Your viewship,likes,comments and shares have helped grow our page.

Many of you have expressed through inbox that we reshare with you the journey of our Itchylosis Brand Ambassador Peggy Peggy.

As you may be aware February is rare disease Itchylosis awareness month.

To help you understand the gravity of Itchylosis we shall repost the series "Getting to know Peggy closer".

This is a true life day to day journey of our ambassador as posted years ago as narrated.It outlines the joy, trails and challenges she passed through and her free will to overcome the same.

The essence of these posts which will be posted daily building up to the 28th of February is to encourage some Parents,Care Givers, Relatives to never give up but fight for their loved ones through thick and thin no matter what.

Together,we can make this world a better place by sharing our love and experiences.

Buckle up as you ride with us on this amazing journey by our Itchylosis ambassador Peggy Peggy.

Itchylosis Help club Zambia
💚💚💚💚💚💚💚💚💚💚
18/02/2025

Itchylosis help club

25/12/2025

11/05/2025

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08/03/2025

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