Michael Connoway's Journey

Michael Connoway's Journey Michael was diagnosed with Sclerosteosis / Marble Bone Disease in 2015
And this is his journey

Michael Connoway Happy Birthday! 24!!I am so very proud of the young man you have become. You have endured so much but c...
30/12/2025

Michael Connoway Happy Birthday! 24!!

I am so very proud of the young man you have become. You have endured so much but continues to be an inspiration to everyone around you. You have comforted me when I should have been the one comforting you. Thank you for being there for me through all the difficult times. You are my hero ❤️.

Jer 29v11. I know God has great plans for you and cannot wait to see what the future holds for you.

Robyn Du Preez Michael could not have chosen a better wife. Thank you for who you are and for being part of our lives.

I love you both to the moon and back ♥️

26/11/2024

Sharing some very good news! 🙌🏻🙌🏻 Both CT and MRI scans done yesterday showed no signs of bone growth or thickening of the scull. The sizes of the ventricles are still slightly larger than it should be, but no bigger than last year. No sign of any tumors. Most importantly, the brain has sufficient space!
Eleven extremely difficult years since Michael was diagnosed. We will still have to scan regularly, but it seems that his growth has finally stabilised. We are so proud of Michael who just kept on going, being an inspiration to us when we struggled to stay strong. We have so much to be thankful for🙏🏻🙏🏻

Address

Strand
7140

Telephone

0760772277

Website

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