What are the opening hours?

Monday 09:00 - 16:00 Tuesday 09:00 - 16:00 Wednesday 09:00 - 16:00 Thursday 09:00 - 16:00 Friday 09:00 - 14:00

Rare ACTivists

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South Africa
Johannesburg
Rare ACTivists

RARE ACTIVists raise funds and awareness for the 1 in 15 South Africans living with a rare disease. (R)aising (A)wareness through (R)ectrational (E)vents.

Rare ACTIVists actively make a difference for the rare disease community by , or . By using their mobility to benefit others, our rare ACTIVists FUNdraise at a variety of sporting events across South Africa.

02/06/2026

Calling all Rare Activists 🚨
We’ve got an exciting calendar of events coming up — and we need your help to make them count.

Being a Rare Activist isn’t just about participating, it’s about raising awareness, building community, and helping raise the funds that allow us to continue supporting people living with rare diseases.

Here’s your challenge:
- Register as a Rare Activist
- Visit our website and click on the EVENTS banner to see all upcoming events
- Sign up for an event
- Recruit at least 2 people to join Team Rare
- Share your fundraising page
- Help us grow our impact
Help us raise much-needed funds
Every person you bring along helps us reach more families and create more change.
Who are you bringing to Team Rare? Tag them below

Sign up. Fundraise. Show up. Create change.

31/05/2026

To our rare activists and volunteers celebrating birthdays in May, thank you for the heart, compassion, and dedication you bring to our community every single day.

Your support helps create hope, connection, and meaningful impact for so many rare families. 💛

21/05/2026

Grab your friends, bring the family, lace up your takkies, and join us for one of Johannesburg’s most iconic community events — Walk The Talk!

This year, don’t just walk… walk with purpose. Become a Rare ACTIVist and help us raise awareness and critical funds for patients and families affected by rare diseases across South Africa.

Here’s how to get involved:
- Enter for Walk The Talk via the official event website
- Sign up as a Rare ACTIVist
- Create your GivenGain page and fundraise for Rare Diseases South Africa
- Show up, have fun, make memories, and walk for something bigger than yourself

Whether you walk with colleagues, your running crew, your family, or your best friends, every step and every rand raised helps us continue supporting our community.

Contact Judes for more information on joining Team Rare

10/05/2026

Celebrating our Rare Activist in action!

Yesterday Tjaart, took on the Sun City T100 Qualifier World Champs—an incredible test of endurance featuring a 2km swim, 80km cycle, and 18km run.

A powerful reminder of resilience, strength, and showing up for the rare disease community. We salute you!🚴😃

30/04/2026

April birthdays, we celebrate YOU !

To our rare activists and volunteers born in April, thank you for showing up with heart, compassion, and commitment every single day. Your dedication makes this work human, hopeful, and possible. 💛

Happy Birthday! 🚴

Don’t miss out on what’s coming up! 💪For event details and more info, contact Judes at events@rarediseases.co.za

20/04/2026

Don’t miss out on what’s coming up! 💪

For event details and more info, contact Judes at [email protected]

12/04/2026

Wishing all our warriors the best of luck today!

Ride strong, stay safe, and make every moment count 💪

Address

Kingfisher House, 39A Kingfisher Road, Fourways
Johannesburg
2191

Opening Hours

Monday	09:00 - 16:00
Tuesday	09:00 - 16:00
Wednesday	09:00 - 16:00
Thursday	09:00 - 16:00
Friday	09:00 - 14:00

Telephone

+27105943844

Website

https://www.rarediseases.co.za/activists-registration

Alerts

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