Rare ACTivists

Rare ACTivists RARE ACTIVists raise funds and awareness for the 1 in 15 South Africans living with a rare disease. (R)aising (A)wareness through (R)ectrational (E)vents.

Rare ACTIVists actively make a difference for the rare disease community by , or . By using their mobility to benefit others, our rare ACTIVists FUNdraise at a variety of sporting events across South Africa.

Every kilometer ridden through Ride4Rare helps raise awareness and bring hope to people living with rare diseases. 🩵Whe...
19/08/2026

Every kilometer ridden through Ride4Rare helps raise awareness and bring hope to people living with rare diseases. 🩵

Whether you're a seasoned cyclist or simply looking to ride with purpose, we'd love to have you join our Rare Disease South Africa community at Ride Joburg. Together, we can turn every pedal stroke into support for patients and families affected by rare conditions.

Interested in riding with us or have questions about getting involved? 😎

Contact us at [email protected]

Ready to take on Kyalami for a great cause?Join Rare Diseases South Africa at the Ride Joburg cycle race and be part of ...
14/08/2026

Ready to take on Kyalami for a great cause?

Join Rare Diseases South Africa at the Ride Joburg cycle race and be part of a community making a difference, one kilometer at a time.

Sign up today and ride with purpose! 💜

09/08/2026

Behind every step forward in the rare disease community are extraordinary women making an impact.

This Women's Day, we honour the women who champion awareness, support families, drive change, and inspire hope.

Happy Women's Day! 🌸

This is Kyalami. 🔥Challenge the curves. Chase the thrill. Experience the ride.Register now and be part of the ride.
04/08/2026

This is Kyalami. 🔥

Challenge the curves. Chase the thrill. Experience the ride.

Register now and be part of the ride.

Every step, pedal, stroke, and kilometre counts. 💙Join the movement and use your mobility to raise awareness for the m...
27/07/2026

Every step, pedal, stroke, and kilometre counts. 💙

Join the movement and use your mobility to raise awareness for the millions of people living with rare diseases who face daily challenges many of us never see.

Whether you run, ride, walk, swim, or take on a triathlon, you're helping to build a stronger, more supportive rare disease community.

Be a hero for rare diseases. Move for those who can't.✨

Looking back on an incredible Cape Town Cycle Tour! 💙🚴Almost six months later, we're still smiling about the memories, t...
21/07/2026

Looking back on an incredible Cape Town Cycle Tour! 💙🚴

Almost six months later, we're still smiling about the memories, the miles, and the impact made by our amazing . Every ride helped raise awareness for the rare disease community and showed the power of moving together for a cause.

Now it's time for the next challenge!
Join us at Ride Joburg and be part of something bigger than the finish line.
https://www.rarediseases.co.za/ridejoburg

Ride for rare. Ride for change. Ride with us. 🚴

This Mandela Day, we honour Madiba's belief that every person deserves dignity, opportunity, and inclusion.✨For many peo...
18/07/2026

This Mandela Day, we honour Madiba's belief that every person deserves dignity, opportunity, and inclusion.✨

For many people living with rare diseases, mobility can be a life-changing gateway to independence, participation, and connection.
Through Ride Joburg 2026, Rare Activists are riding for a future where everyone has the freedom to move through the world without barriers.

Every kilometre ridden helps raise awareness and support for the rare disease community.🩵

Together, let's create a future where mobility opens doors, builds connections, and empowers every journey.

EVERY LAP COUNTSIn memory of Sadie, we're swimming to raise awareness and support for people living with rare diseases.J...
13/07/2026

EVERY LAP COUNTS

In memory of Sadie, we're swimming to raise awareness and support for people living with rare diseases.
Join Team Rare Diseases South Africa at the 54th aQuellé Midmar Mile and help bring hope, advocacy, and support to thousands of South African families.

Join Team Rare at Ride Joburg 2026! 💜Save the date: 22 November 2026 🏁Whether you're riding for awareness, advocacy, or ...
10/07/2026

Join Team Rare at Ride Joburg 2026! 💜

Save the date: 22 November 2026 🏁

Whether you're riding for awareness, advocacy, or to make a difference, we'd love to have you ride alongside us in support of the rare disease community.

Entries are still open! Join Team Rare Diseases South Africa for the 97km Ride Joburg 2026.Use promo code RARE1 on the f...
07/07/2026

Entries are still open! Join Team Rare Diseases South Africa for the 97km Ride Joburg 2026.

Use promo code RARE1 on the first registration page under "Redeem a Promo Code" and register with your own email address to be linked to our team.

Register now: https://ridejoburg.howler.co.za/events/ride-joburg-road-2026-e36d

Ride for a cause. Ride for Rare.😎

If you experience any issues with registration or have any questions, please contact us at [email protected]

Address

Kingfisher House, 39A Kingfisher Road, Fourways
Johannesburg
2191

Opening Hours

Monday 09:00 - 16:00
Tuesday 09:00 - 16:00
Wednesday 09:00 - 16:00
Thursday 09:00 - 16:00
Friday 09:00 - 14:00

Telephone

+27105943844

Website

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