Holding Albus - All Shades of White

Holding Albus - All Shades of White Albinism dialogues and the insights it presents to society about understanding, community, identity, race and outlook on global issues. We are Undivided.

"Holding Albus" is the name of the Foundation in establishment. The most prominent project of the organisation is "Albus Voice" which currently centers around talks, podcasts, interviews, research and partnerships that allow for people with albinism to rightly own their space anywhere.. The title speaks to revolutionizing topics around albinism, not as trending topics, but as discussions that tran

sform stigma and communities ravaged by discriminatory practices. This is a platform where I share my journey, thoughts and progress on rooting albinism issues in all social spaces. I believe that albinism is an incredible reality that can teach communities to look at themselves truthfully, make friends with parts of themselves they find ugly and create compassion. This is only one part of the work I hope to do. The gist of the work lays on the ground through strategic partnerships, and sponsors that will support schools, communities, young professionals to:
1. enter the world as full individuals
2. transform the idea of disability and create the conditions for inclusion
3. amalgamate minorities of people with albinism and inabilities (disabilities).
4. Solutions focused
5. provide platforms for an Albus Voice, stories and heroism

The wonk of this cause is far from making the changes it desires to see shift in society. You, media and your support will help raise, clarify and support us in allowing us the space to claim our lives and tap into potential in people. I believe this is a journey of freeing some people and uniting everyone

I can be booked to speak at schools or any institute about albinism, disability and workshops of disability integration in society. This is a huge task, and someone has to do it, it's time. But I am not alone. I walk in numbers. I hope this can be a platform where you join in the conversation, question, enlighten and support unashamedly.

25/01/2024

Hi everyone!

Our YouTube channel is coming up! We'll share information about it here!

Let us know what topics around disability and albinism you would like us to cover.

This channel will be one that will serve you, to inform you, share insights that develop everyone and make us grow as people. To live with more compassion.

Event coming up...
08/06/2022

Event coming up...

Calling all persons with HPS. This is your time to make your voices heard.

Hermansky-Pudlak Syndrome (HPS) is a rare genetic condition characterized by albinism, visual impairment, and a platelet dysfunction that results in prolonged bleeding.

Some people with HPS may also experience inflammatory bowel disease, pulmonary fibrosis, and/or kidney disease.

See image for more information!

Address

Johannesburg
2098

Telephone

+2781 787 5264

Website

Alerts

Be the first to know and let us send you an email when Holding Albus - All Shades of White posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Holding Albus - All Shades of White:

Share