Lungs4Zani

10/06/2026

Dis lanklaas dat ek hier 'n update gedeel het. Die afgelope twee weke was maar biki rof – die eerste keer in vier jaar dat ek weer rerig siek was. (en met dit bedoel ek, ekt weer gehoes soos in die ou dae) Ek moes teruggaan na antibiotika, my nebuliseerders weer getrou gebruik en bietjie stadiger vat. (i tried, ma da was so baie aan in die tyd)

Vandag was my 3-maande ondersoek by die dokter, en my longfunksie is 59%. Dit herinner my net weer hoe groot hierdie wonderwerk in my lewe is. Ek kani onthou wanneer my longfunksie so hoog was nie.......

Ek prys die Here elke dag vir Trikafta – vir hierdie medikasie wat my 'n nuwe kans op lewe gegee het. Dat ek dit in volle dosis, elke dag, kan gebruik, is 'n voorreg wat ek nooit as vanselfsprekend sal aanvaar nie.

Daar is moeilike dae, maar daar is soveel meer goeie dae. En vir dit is ek oneindig dankbaar. 🤍

"Loof die Here, o my siel, en vergeet geeneen van sy weldade nie." – Psalm 103:2

02/05/2026

Day 2: Understanding the Symptoms of Cystic Fibrosis

Cystic fibrosis isn’t always visible, but its symptoms are felt every single day.

For people living with CF, this can mean:
• A constant, persistent cough that doesn’t go away
• Shortness of breath, even during simple activities
• Frequent lung infections that require ongoing treatment
• Difficulty gaining weight or growing, despite eating well

These symptoms are not just occasional. They are daily, ongoing, and often overwhelming.

Behind each one is a routine of medications, airway clearance therapy, high calorie nutrition, and constant monitoring, just to stay as healthy as possible.

It’s not just about managing symptoms. It’s about fighting for breath, for strength, and for the chance at a longer, healthier life.

Because behind every symptom is a person showing up, every day, with resilience and determination

01/05/2026

New research is showing that the impact of Trikafta goes beyond lung function.

A real-world study has found that people living with cystic fibrosis report significant improvements in quality of life - often within just one month of starting treatment — even when lung function doesn’t noticeably change.

These improvements were sustained over 12 months and experienced across multiple areas of daily life, reinforcing that how people feel matters just as much as clinical measures.

01/05/2026

https://sacfa.org.za/cf-genes-day-2026/

01/05/2026

Day 1: What is Cystic Fibrosis?

Cystic fibrosis is something many people have heard of, but not everyone fully understands.

Often called CF, it is a genetic condition that mainly affects the lungs and digestive system. It causes thick, sticky mucus to build up in the lungs and other organs, making it harder to breathe and increasing the risk of lung infections. It can also affect how the body absorbs nutrients from food.

CF is a lifelong condition that requires daily treatment and ongoing care.

But CF is more than a medical definition.

It’s the daily routines people commit to.
It’s the challenges that are not always visible.
It’s a reality that often goes unseen.
It’s the strength of a community that continues to show up.

This month, we’re sharing more to help you better understand life with CF.

30/04/2026

Tomorrow marks the beginning of Cystic Fibrosis Awareness Month.

In 2026, we highlight 65 Roses for Cystic Fibrosis: Strength in Community. This recognises the strength, connection, and support that comes from standing together, and the important role that families, friends, carers, healthcare teams, and supporters play in the lives of those affected by cystic fibrosis.

Each day throughout the month, we will share one piece of knowledge about cystic fibrosis, ranging from important registry data to personal stories and lived experiences. Through these daily posts, we aim to raise awareness, increase understanding, and shine a light on the realities of living with CF, while celebrating the resilience, courage, and determination of our community.

Landmarks and locations across the country will also light up in support throughout the month, helping to raise visibility and show solidarity with everyone impacted by cystic fibrosis.

We invite you to follow our social media channels and visit our website for updates, daily awareness posts, and Light Up announcements. Please read, learn, share, and help us spread awareness throughout May.

Thank you to all Federation members, supporters, partners, and the broader CF community for your ongoing commitment and support. Together, we are stronger.

Visit our website: https://www.cysticfibrosis.org.au/cfawarenessmonth/

26/01/2026

"Hulle sê 'n gesonde ontbyt is die belangrikste maal van die dag... myne lyk net soos 'n klein apteek! 💊😂

Ek herstel nog van 'n seer keel wat my spoed bietjie gebreek het, maar verder gaan dit GREAT met my!!!! Begin nogsteeds meeste oggende met my shake, asma pompies en neussproei en natuurlik my BELANGTIKSTE Trikafta, is ek reg vir wat ook al die dag bring. Dankie vir almal se liefde! 🫶✨

13/11/2025

08/09/2025

💜 Today is World Cystic Fibrosis Day — a day to honor the CF community, recognize the progress that’s been made, and highlight the journey still ahead. From patients and caregivers to researchers and advocates, together we’re building awareness and hope.

Join us in spreading the word and supporting the CF community today and every day. 🌍✨