Brave Little Hearts S.A.

Brave Little Hearts S.A. Brave Little Hearts SA is an NGO that provides support for families affected by congenital heart disease (CHD). A gentle reminder that you are not alone.

CHD is Real and So are We. Brave Little Hearts SA (BLHSA) is the Leading Congenital Heart Disease (CHD) Advocacy, Awareness and Heart Patient/Family Education organisation based in Cape Town, South Africa. BLHSA was established in Honour of the Bravery and Courage of Thaakirah Matthews in December 2014 on her 4th birthday, after she triumphed against all odds undergoing two Heart and two Brain ope

rations before her 4th birthday. Thaakirah was born with rare Critical Congenital Heart Defects(CCHD) known as Double Outlet Right Ventricle (DORV), Transposition of the Great Arteries(TGA), Pulmonary Stenosis(PS), Ventricular Septal Defect(VSD) and a defective valve. The combination of her complex heart defects was statistically classed as 1 in 500 000 which falls into 1 – 3% of the global CHD cases. BLHSA strives to share hope, advocate for and educate on CHD through awareness and also offer holistic support to all heart families of children born with Congenital Heart Disease. Brave Little Heart Thaakirah's story can be read and viewed at these links;
https://www.youtube.com/watch?v=YZ4eGtEyA3s
http://childrenshospitaltrust.org.za/thaakirah/
https://www.westerncape.gov.za/news/living-congenital-heart-disease
http://www.pcssa.org/heart-heros/
http://www.iol.co.za/news/south-africa/western-cape/meet-cape-town-s-miracle-girl-1.1817182
http://www.vocfm.co.za/thaakirah-a-brave-little-
heart/

Get Involved in creating awareness for children born with Congenital Heart Disease by sharing this Page.

I had the privilege of meeting Belen Blanton in Washington, DC, at the 8th World Congress of Pediatric Cardiology and Ca...
25/08/2026

I had the privilege of meeting Belen Blanton in Washington, DC, at the 8th World Congress of Pediatric Cardiology and Cardiac Surgery 2023. Belen was a strong advocate for CHD in Venezuela. Belen so kindly allowed BLHSA to share her CHD colouring-in books in Cape Town, South Africa, which put smiles on many CHD patients' faces during the toughest time in their lives. Her legacy will continue here in Cape Town through these colouring-in books.

Remembering Belen Altuve Blanton
July 22 1965 - August 24, 2026

Some of you may already have heard the heartbreaking news that our beloved Belen Blanton has died following a stroke, after several days in the ICU with complications related to her heart and kidneys.

Belen was loved by everyone who knew her. She was positive, vibrant, beautiful, generous, and endlessly selfless. She never took for granted the gift of life she had been given—and from an early age, she made it her mission to give back to the congenital heart disease (CHD) community.

Born with tricuspid atresia in Venezuela in 1961, Belen was born at a time and in a place where lifesaving heart surgery was not available. Thankfully, her family was able to travel to the United States, where she received the surgery and lifelong medical care that gave her the opportunity to live.

And live she did. Belen built a happy, productive, deeply loved life—far beyond what anyone might have expected given the challenges she faced.

For more than six decades, she devoted herself to helping others. Through her nonprofit, Fundacion Estrellita de Belén Corp, she worked tirelessly to provide cardiac care to children from low-income families in Venezuela. She was also a cherished member of the Global ARCH family, serving as a board member and ambassador and lending her voice to countless awareness and advocacy initiatives—including speaking at the United Nations General Assembly in 2023.

Belen endured countless heart surgeries, hospitalizations, and difficult days with extraordinary grace, courage, and humour. Yet somehow, she always brought joy into the room. Her cheerful, sing-song voice, infectious positivity, fabulous outfits, and ever-changing nail polish will forever be part of how we remember her—even during the moments when it was clear how hard she was struggling to breathe.

Belen showed us what it means to turn a life saved into a life dedicated to saving and improving the lives of others.

Belen, we love you. You will always be a shining star in our Global ARCH family, and your light will continue to inspire the CHD community around the world. ⭐️❤️

Speaking at the United Nations General Assembly: https://youtu.be/5o7r0Mj7tq0?si=RvotkO2S6PrnBMlL

Belen AltuveBlanton

It is with great sadness that we share the news of the passing of Brave Little Heart Neema Parusia Muhigirwa at the youn...
07/08/2026

It is with great sadness that we share the news of the passing of Brave Little Heart Neema Parusia Muhigirwa at the young age of 18.
Neema was born with dilated cardiomyopathy, which causes the heart muscle to become incredibly weak, floppy and enlarged.
Neema had her heart transplant in 2021 when she was 13 years old.
Naeema was an inspiration to everyone who knew her and showed exceptional courage and strength at a very young age. Neema, originally from Congo, moved to Cape Town, South Africa, where she underwent her cardiac care at Red Cross War Memorial Children's Hospital and later Groote Schuur Hospital.

May your soul rest in peace, Neema. Forever loved

Photo credits: Wynberg Girls High School and Paedspal.

27/06/2026
11/06/2026

Huge congratulations to Prof Liezl Zuhlke. Paediatric cardiologist (just one of her many achievements) at Red Cross War Memorial Children's Hospital in Cape Town, South Africa. Helping so many babies and children with congenital heart disease. We are so proud of you. 🫀

20/05/2026
30/04/2026

70 years later... Still doing amazing work and saving so many lives.

We are forever gratefull and love you with all our hearts 💙❤️

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Cape Town

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