09/09/2026
9 September 2026 (Wednesday) Ayabonga “Aya”
(Age: 9 years old)
Ayabonga’s story is told by her mom, Aviwe. This story was told telephonically. The love in Mom’s voice showed just how deeply she loves her little girl and how much they have fought through.
Aya is a very sweet child. She is kind and caring and loves people. She loves her friends and school. Before her cancer she loved reading and drawing. Even at home, she always wanted her pens. Sometimes she will tell me, “Mommy, I’m going to visit my friends.” That is my Aya.
It started with severe headaches. I gave her Panado, Disprin, everything I could think of, but they did not stop. Then I noticed her eyesight. I would ask her to fetch something and she would look everywhere, but it was right in front of her. I thought maybe she was being careless. I didn’t know.
Then she started losing her eyesight until she could not see anything. She also could not sit or walk properly. This was June 2021. I was in the Eastern Cape because I had just buried my mother. I also had a baby who was turning one.
Aya was staying with my aunt when I got a call saying she was going to hospital. I was confused. What is happening? Then they told me, “Your child cannot see.” The next thing I heard, they were sending her urgently to big hospital in Cape Town.
It was too much. I had just lost my mother. I had a small baby. Now my other child was very sick.
My uncle phoned and said, “The doctor is going to call you. They need permission to operate Aya. It is an emergency.” I kept asking, “What happened to Aya? What happened to my baby?” The doctor called and explained the brain tumour. My mind was blank. I remember giving permission to operate. I was still breastfeeding, but I had to leave my baby with family. I just needed to get to Aya.
When I arrived, she had already been operated on. She had a pipe in her head. It was difficult seeing my child like that. The doctors could not remove the whole tumour because it was in a dangerous place between the nerves of her eyes.
Her eyesight never came back. Our life was not the same again.
Aya has been through more than five operations, chemotherapy and radiation. She has a shunt to drain fluid from her brain. Operations. Chemo. Vomiting. Fevers. Sometimes I felt there was no hope, but Aya gave me hope. She is a fighter.
Then on 21 December last year, I was at work when they came to fetch me. Aya was not responding. When I got home, she was lying there. She wasn't talking. She was having seizures. I kept calling her. “I'm here. Wake up.”
Nothing.
We went from hospital to hospital before they flew us urgently to Cape Town. They changed her shunt. We spent Christmas and New Year in hospital. She developed a fever and went into isolation. She needed oxygen and couldn't swallow, so she was fed through a tube. She was wearing nappies again and struggling with her memory.
It was a lot. But again, we survived it.
Today, people who don't know Aya sometimes cannot tell that she cannot see. She walks by herself. She bathes herself. She plays and talks to people. I am there to guide her. “Okay, now there are steps.” “Now we must turn here.”
We still have MRIs to monitor the tumour, and we have difficult days, but I am grateful. There was a time I was so scared she was going to leave me. I kept reminding her, “Baby, you said you won't leave Mum. Please don't.”
And she kept her promise. She woke up for me.
She cannot see the world around her anymore, but my Ayabonga still finds so much joy in it. She is still here. She is still standing strong. And we thank God.