Amoré de Wet Foundation

15/06/2026

Tonight on Radio33 Little Soldiers from 19:00-21:00

Join us for a heartfelt and informative program as Lizel tells us more about 18q Deletion Syndrome.

She will also be chatting with two special moms, Madelein De Wet and Fiona Breytenbach, who will be sharing their children's journeys and experiences with 18q Deletion Syndrome.

Gizelle will be telling us more about 11-year-old Amorè, who is non-verbal. With the help of Jemma's mommy, we will also be listening to 6-year-old Jemma as she shares a little bit about herself.

We'll take a look at important awareness dates and close the program with a special Story Time for the Children segment.

Make sure you don't miss this inspiring program!
Only on Radio33 – Radio33, for people with soul. 💙

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14/06/2026

Tune in for this insightfull interview about 18q Deletion Syndrome.

Q18 Deletion Syndrome Awareness

Q18 Deletion Syndrome is a rare genetic condition caused by a missing piece of chromosome 18. It can affect each person differently and may lead to developmental delays, speech and learning challenges, and various medical needs. Despite these challenges, individuals with Q18 Deletion Syndrome have unique strengths, abilities, and personalities that enrich their families and communities.

🎙️ Join us on Monday, 15 June at 19:00 for a special Q18 Deletion Syndrome Awareness program featuring:
Amorè and her mom, Madelein
Jemma and her mom, Fiona
They will share their personal journeys, experiences, challenges, and triumphs to help raise awareness and understanding of Q18 Deletion Syndrome.

Together, we can raise awareness, celebrate differences, and support families living with Q18 Deletion Syndrome. 💙🧩

11/06/2026

Let's rethink the phrase "Special Needs."

​Do children with disabilities actually have special needs?

Think about it.
Every single human being needs:
​To be loved and accepted.
​To communicate and be heard.
​To access education.
​To feel safe and comfortable in their environment.

​A child in a wheelchair doesn’t have a "special" need to enter a building; they have a human need to enter a building, and they require a ramp to do it.

A child with autism doesn't have a "special" need to learn; they have a human need to learn, and they might require noise-canceling headphones or visual aids to do so.

​When we reframe this, we realize that true inclusion isn't about granting special favors.
It’s about ensuring that basic, universal human needs are met for absolutely everyone.

​Let's build a world that fits us all.

06/06/2026

✨ Created to Stand Out, Not Fit In ✨

Meet our tenacious little miracle, Amoré de Wet. 💜

After being sterilized in 2005, we never imagined that we would become parents again. But on 27 May 2015, our beautiful surprise baby entered the world and changed our lives forever.

At just six weeks old, Amoré was diagnosed with 18q Deletion Syndrome, a rare chromosome disorder affecting approximately 1 in 55,000 babies. Along with this diagnosis came congenital heart defects, low muscle tone, hypermobility, vision challenges, and many obstacles that no child should have to face.

At only six months old, our brave little girl underwent emergency open-heart surgery. After six hours in theatre, our warrior emerged victorious. Since then, she has faced every challenge with incredible courage, determination, and the most beautiful smile.

In 2022, she underwent foot surgery and, true to Amoré's spirit, she was up dancing and walking with her cast only days later. Today, she delights in running down the passage laughing with pure joy.

Although Amoré cannot speak yet, we still dream of hearing her say "Mamma" and "Pappa" one day. Until then, she speaks a language of her own — one of love, laughter, music, dancing, and the joy she brings to everyone she meets.

Her greatest superpower is the ability to crawl into your heart and leave the most beautiful footprints.

She has taught our family that every milestone deserves to be celebrated and that happiness is not measured by circumstances, but by the love and joy we choose each day.

Amoré was created to stand out, not fit in. She refuses to let a diagnosis define her. She is our hero, our warrior, and one of the happiest little girls you will ever meet.

This journey is not always easy, but we have been blessed with an incredible village. To our family, friends, and everyone who has walked alongside us — thank you for your unwavering love, support, and prayers. ❤️

Together, we celebrate not only awareness for 18q Deletion Syndrome, but also the extraordinary little girl who reminds us every day that miracles do exist.

💜 Different, not less.
💜 Stronger than the challenges she faces.
💜 Our Hero. Our Warrior. Our Amoré.

03/06/2026

What is 18q Deletion Syndrome

18q Deletion Syndrome is a rare genetic condition that a person is born with. It happens when a piece of chromosome 18 is missing. Chromosomes contain the instructions that tell our bodies how to grow and develop, so when part of one is missing, it can affect a child's development in different ways.

Chromosome 18 Registry & Research Society estimates that chromosome 18 abnormalities affect approximately 1 in 55,000 live births, making 18q deletion syndrome a rare condition.

No two people with 18q Deletion Syndrome are exactly the same. Some children may have mild challenges, while others may need more support throughout their lives.

Children with 18q Deletion Syndrome may experience:
Developmental delays
Speech and communication difficulties
Learning challenges
Low muscle tone
Hearing or vision problems
Feeding difficulties
Differences in growth and physical development

Although there is currently no cure, therapies, medical care, and early intervention can make a tremendous difference. Many individuals with 18q Deletion Syndrome continue to learn, grow, and reach milestones in their own time.

Living with 18q Deletion Syndrome can bring unique challenges, but it also brings incredible strength, resilience, and joy. Families often discover that while the diagnosis may shape part of their journey, it does not define who their child is.

These children are much more than a diagnosis — they are sons and daughters, brothers and sisters, friends, dreamers, and little miracles who teach us about courage, patience, and unconditional love.

18q Deletion Syndrome is not a limitation on how deeply someone can love, laugh, learn, or touch the lives of others. It is simply one chapter in a story that is uniquely their own. ❤️

02/06/2026

📅 Save the date for 2026: Thursday 25th June 2026

What will you do to help us raise awareness this year? Get your child's school involved in raising awareness, wear bright colours to celebrate our community and host a fundraiser to help us reach more families affected by rare chromosome and gene disorders around the world.

Let us know, or get in touch with your ideas 💬

27/05/2026

Today we celebrate the beautiful reason behind the Amoré de Wet Foundation. 💖

11 years ago, God blessed us with you, our miracle. From the very beginning, you have been a beacon of hope, love, courage, and determination.

Your journey has inspired so many, and through every challenge you continue to shine your light so brightly. You remind us daily of the power of kindness, compassion, and never giving up.

We are most honored to be your mamma and pappa. It has given us the greatest joy watching you grow into the girl you are today. And yes, you will always have to work hard to do things that may come easily to others, but YOU ARE WHO YOU ARE MEANT TO BE. Don’t ever forget that.

We promise we will be by your side every step of the way. When your feet are tired from walking we will carry you.

When your heart hurts we will hold you. We will wipe away your tears and hug you when you need it most.

It’s okay to be different because all of the best people are, and you’re the best person we know.

We are so thankful to celebrate your birthday today. We cherish it and every day with you by our side.

Our precious girl, these are our wishes for you:

✨ We wish for you to be happy, now and forever.

✨ We wish for you to live a full and beautiful life filled with experiences, adventures, joy, and endless possibilities.

✨ We wish for you to always be surrounded by people who see your abilities, respect your uniqueness, and admire your incredible spirit.

✨ We wish for you to keep rocking your timeline. You have taught us that inchstones are every bit as important as milestones, and that every bit of progress deserves celebration.

✨ We wish for a world where inclusion becomes the norm and where people of all abilities are welcomed everywhere with love and acceptance.

✨ We wish for you to continue showing the world that disability is only one small part of who a person is — never the whole story.

✨ We wish for you to grow into your own powerful advocate, but until then, know that we will always stand beside you.

✨ We wish for you to hold onto your wonder for life’s little and big moments, because your joy is contagious and beautiful.

✨ We wish for technology, opportunities, and innovation to continue opening doors and expanding your world in ways we cannot yet imagine.

✨ We wish for you to grow in independence, confidence, and strength with every passing year.

✨ We wish for you to continue overcoming every challenge that stands in your way, one brave step at a time.

✨ We wish for you to always keep that beautiful smile shining bright.

✨ We wish for you to never feel less because of your differences, but instead to recognize the incredible strength within them.

✨ We wish for you to always be proud of who you are and everything you have achieved.

✨ We wish for you to keep proving every limitation wrong and continue exceeding expectations in your own beautiful way.

✨ Most of all, we wish for you to always know how tremendously proud we are of you. Not because of how far you have come, but because of who you have always been — our beautiful, bright, capable, kind, extraordinary child.

Happy Birthday, our mermazing girl. 🧜‍♀️

26/05/2026

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10/05/2026

Happy Mother’s Day to every incredible mom around the world 💖

Not all superheroes wear capes… some are simply called Mom. ✨

Behind every strong child is a mother who has loved deeply, sacrificed quietly, prayed endlessly, and given pieces of her heart every single day. Mothers carry so much unseen — the worries, the tears, the sleepless nights, the endless to-do lists — yet they still show up with love, warmth, and strength.

To the moms who are exhausted but keep going, the moms who put their families before themselves, the single moms doing the work of many, the moms raising children with special needs, the grandmothers still nurturing with gentle hands, and the mothers carrying both joy and heartbreak in their hearts — today we celebrate you.

Thank you for being the safe place, the loudest cheerleader, the biggest comfort, and the heartbeat of the home. Your love changes lives in ways the world may never fully see.

Today, may you feel as loved, appreciated, and cherished as you make everyone around you feel every day. 🌸❤️

04/05/2026

🎂💛 Amoré’s Birthday Month 💛🎂

This May, we celebrate Amoré — a beautiful, brave little girl with a heart full of courage, who has taught us the true meaning of strength, love, and kindness who continues to inspire a movement of kindness and compassion every single day. 🌈

In honour of her birthday, we want to turn her story into something that touches the lives of other children who are walking difficult journeys.

We are inviting corporates and businesses to stand with us and help us make a meaningfull impact by placing the Colour the World with Kindness colouring books into the hands of children in local hospitals. 🏥

For a child in a hospital bed, a colouring book is more than just pages…
It’s a moment to breathe.
A moment to smile.
A moment to feel hope.
A moment to feel seen.

Every sponsored book is more than just a gift — it’s a moment of joy, a distraction from difficult days, and a reminder to each child that they are not alone.

Help us bring comfort, creativity, and kindness to children who need it most. The smallest act of kindness can bring the biggest light.

Let’s celebrate her life by sharing kindness where it’s needed most. 💛

📩 To sponsor or get involved, please contact us or send a DM.

Together, we can colour the world with kindness. 🌈💛