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We support children & families who are/have been affected by DIPG- Registered Charity Number 1209030

09/09/2026

Nothing could have prepared them for mile 13… 😂

Before vs. after The Big Half 🏃🏽‍♂️➡️🥴

Our runners absolutely smashed it for BLAZE.DIPG! 🧡

07/09/2026

London Big Half X BLAZE.dipg 2026🧡🏃🏽‍♂️

50 runners. 13.1 miles. One incredible cause. 🧡

Yesterday, 50 amazing people took on The Big Half for BLAZE.DIPG, helping us raise money and awareness for children and families affected by DIPG.

We couldn’t be prouder of every single one of you. Thank you for showing up, putting in the miles and wearing BLAZE with pride. 🧡

And this is only the beginning… 👀🏃‍♀️🏃‍♂️

A huge thank you to our 2026 sponsors LRC Security Ltd for helping us kit out team BLAZE and helping our runners stand out on the streets of London! 🖤

07/08/2026

How do you fit a lifetime into eight months?
You don't.
You make every birthday count. Every smile. Every cuddle. Every day together.
These eight photos tell the story of Benjamin's journey with DIPG. From diagnosis to saying goodbye, just eight months passed. Eight months of hospital appointments, hopes, setbacks, courage, laughter, love, and unimaginable heartbreak.
No child should have their future taken away so quickly. No parent should have to watch their child lose the life they were only just beginning.
This is why BLAZE exists.
We will continue to honour Benjamin's legacy by supporting families facing DIPG today, raising awareness of this devastating disease, and campaigning for the research that children desperately need.
Because eight months should never be all a child gets.
🧡 Awareness today. Memories forever. Hope for the future.

29/07/2026

29th July 2026 🧡

Today, Benjamin should have been celebrating his 17th birthday.

Instead of driving lessons, finishing school, and holidays with friends, Benjamin’s life was stolen by DIPG at just 11 years old.

BLAZE was founded in his memory so that no child and no family has to face this devastating diagnosis alone. Every memory we create, every family we support, and every pound we raise is because of him.

Today, we celebrate the incredible boy Benjamin was, while remembering everything he should still be here to experience. We will continue fighting for greater awareness, better support for families, and hope for a future where no child loses their life to DIPG.

Happy 17th Birthday, Benjamin. Forever 11. Forever loved. Never forgotten. 🧡

If you’d like to honour Benjamin today, please help us by sharing this post, raising awareness of DIPG, or supporting our mission. Together, we can make a difference. 🧡

21/07/2026

🔈🧡 SPONSORS WANTED 🧡🔈

On 6th September 2026, 50 incredible Team BLAZE.DIPG runners will be taking on the Big Half London to raise vital funds for children and families affected by DIPG.

We’re looking for businesses to help sponsor our team T-shirts.

Your support means we can keep more of the money we raise where it belongs – creating special experiences and lasting memories for children facing the toughest battles.

✨ As a sponsor, you’ll receive:
🧡 Your logo on the front of every team T-shirt
🧡 Exposure across race day, social media and our charity community
🧡 The chance to support a cause that truly changes lives

If your business would like to stand with Team BLAZE.DIPG, we’d love to hear from you.

📧 [email protected]

Please share this post and tag any businesses that might like to get involved. Every share could help us find the perfect sponsor.

23/06/2026

EXCITING OPPORTUNITY 🧡🏃🏼‍➡️

17/05/2026

Today, on DIPG Awareness Day, we stand beside the brave children and heartbroken families facing one of the most devastating childhood brain tumours imaginable.

Every year, around 40 children in the UK are diagnosed with DIPG — a diagnosis no family should ever have to hear. These children are full of life, laughter, dreams, and love, yet treatment options and survival rates have barely changed in decades.

Families are forced to make impossible memories in impossible circumstances. Children lose birthdays, school days, and futures they deserved to have.

But there is still hope — and hope starts with awareness, funding, and research.

Today, we honour every child courageously fighting DIPG, remember the precious children we have lost, and stand with the families who continue this fight every single day. Please help us make a difference by sharing this post, raising awareness, and donating to support urgently needed research.

Together, we can help give children and families the hope they desperately need. 🧡

https://www.justgiving.com/charity/blaze1209030

22/02/2026

Benjamin’s story 🧡

A son. A brother. A friend. A little boy who should still be here.

DIPG changed our lives forever. It took so much from him — and from us.
But it will never take who he was. His smile. His courage. The love he gave so freely.

We share Benjamin’s story to honour him, to raise awareness, and to help make sure families facing DIPG don’t have to walk this heartbreaking path alone.

24/01/2026

Last weekend, one of our amazing BLAZE families headed to London for a truly unforgettable trip.
From Friday to Sunday they soaked up the magic of the Paddington Experience, enjoyed a stay in a London hotel, and were treated to tickets for Oliver! The Musical — topped off with a very special meet & greet with the amazing cast including as Fagin, as Mr Bumble and as Bill Sikes!

Trips & experiences like these are what BLAZE is all about 🧡 creating joy and memories that families can hold onto forever. Moments like these remind us why we do what we do. Thank you to everyone who helps make memories like this possible.

A massive thank you to the team Oliver the musical who gave up their time and helped make such special memories for the family, we appreciate your help so much!
And thank you Park Plaza Hotels & Resorts& The Paddington Bear Experiencefor taking such good care of the family over the weekend with upgrades and more.

13/01/2026

Help Needed! 🚨 🧡
We are trying to organise a time sensitive experience for a young girl with DIPG whose wish is to pet/spend time with some puppies. Her favourites are Pomeranians or white and fluffy but any breed will be fine! If you know anyone who might be able to help us (company/breeder/dog owner) please let us know 🧡

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https://blaze-dipg.square.site/

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