Virginia Bleeding Disorders Foundation VABDF, 9702 Gayton Rd. Suite 277, Tuckahoe, VA (2026)

DISCLAIMER
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The Virginia Hemophilia Foundation (VHF) page is provided for general information purposes only. VHF does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, VHF recommends you contact your physician or local hemophilia treatment c

enter (HTC). We request that you respect fellow community members and the posting guidelines of Facebook, and refrain from including any of the following in your comments:

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04/17/2026

Last night, our Richmond community came together for an incredible evening of connection and empowerment to kick off World Hemophilia Day!

This year’s theme, "Diagnosis: First step to care," hits home. The World Federation of Hemophilia (WFH) estimates that over three-quarters of the population of people with hemophilia worldwide are undiagnosed, and an even more significant gap also exists for other bleeding disorders. This means that hundreds of thousands of people with bleeding disorders around the world still lack access to basic care - we know that closing that gap is the only way to achieve "Treatment for All."

Last night we gathered in community to explore new possibilities, and inspire each other to look beyond perceived limits. From group activities to heartfelt conversations, we left feeling more motivated than ever.

04/14/2026

⏰ Don’t wait - Camp Youngblood applications close: May 1st!

If your child is ages 7–17 and part of the inherited bleeding disorders community, this is their chance to experience an unforgettable week of camp at Camp Holiday Trails. Camp Youngblood provides children and teens with a traditional camp experience in a safe, supportive environment.

Go here to pre-register to see if your child is eligible https://form.jotform.com/252791119680159

https://hemaware.org/life/advice-parents-sending-child-bleeding-disorder-camp-first-time

Tips for parents on how to prepare their child with a bleeding disorder for their first sleepaway camp experience.

03/13/2026

BioMarin has announced it will withdraw the gene therapy ROCTAVIAN from the U.S. market, with availability continuing through the end of May.

ROCTAVIAN marked a major milestone as the first approved gene therapy for adults with severe hemophilia A. While access challenges influenced this decision, the research behind it represents decades of progress.

NBDF remains committed to supporting innovation and access for our community.

Learn more: https://bit.ly/4b3mdIo

03/11/2026

📢📢📢Last‑Minute Spot Available! We had a last‑minute cancellation for our Annual Meeting. If you want to join us, register here https://form.jotform.com/253023843469157 by 5 PM today or email [email protected].

📅 Dates: March 13–15
📍 Location: Hotel 24 South, Staunton

Join VHF for a weekend of education, connection, and community as we also celebrate Bleeding Disorders Awareness Month. Expect educational sessions, exhibit time, family programming, meals together, and plenty of chances to connect.

Highlights:
• Friday night dinner session on Caregiver Burnout
• Saturday: breakfast, exhibits, educational programs, lunch, childcare/youth activities
• Sunday: educational breakfast + optional outing to the Frontier Culture Museum

Overnight accommodations provided Friday & Saturday
Registration: $25 per household

Thank you to our sponsors: Accredo by Evernorth, Bayer, BioMatrix, Cottrill’s, CSL Behring, Genentech, Hemabiologics, Hemophilia Alliance, InfuCare Rx, Novo Nordisk, Pfizer, Sanofi, Soleo Health, Superior Biologics, Takeda, UVA-HTC, and VCU-HTC.

03/05/2026

Today advocates from Virginia joined over 250 people from across the country for Washington Days! Our advocates are making sure that congress understands that , the importance of federal funding for our HTC’s and the CDC Division of Blood Disorders, and to talk about a new bill called FED UP that will help to remove barriers for women and girls with bleeding disorders.

Address

9702 Gayton Rd. Suite 277
Tuckahoe, VA
23238

Telephone

+18047408643

Website

http://www.vahemophilia.org/

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Virginia Bleeding Disorders Foundation VABDF