Virginia Bleeding Disorders Foundation VABDF

08/06/2026

We’re Hiring!

The Virginia Bleeding Disorders Foundation (VABDF) is excited to announce two opportunities to join our team and help make a meaningful difference in the lives of individuals and families affected by inherited bleeding disorders across Virginia.

Due to the anticipated volume of applications, we ask that you do not contact VABDF regarding the status of your application or for additional information about these positions. All available information is included in the job description and application materials below.

While we are unable to respond to individual inquiries, we carefully review every completed application. Candidates whose qualifications best match the position requirements will be contacted regarding next steps. We are currently seeking applicants for:

Program & Communications Manager (Full-Time)

Community Outreach & Advocacy Coordinator (Part-Time)

These positions offer the opportunity to work directly with the bleeding disorders community while supporting programs, events, advocacy initiatives, communications, and community engagement efforts throughout the Commonwealth.

As a small, mission-driven organization, VABDF values collaboration, flexibility, creativity, and a commitment to building strong relationships. Whether you’re an experienced nonprofit professional or looking to grow your skills in advocacy, communications, and community engagement, we’d love to hear from you.

View the full job descriptions and apply here: https://vahemophilia.org/2026/06/02/vabdf-is-now-hiring/

Please feel free to share these opportunities with your networks. Applications will be reviewed on a rolling basis until the positions are filled.

21/04/2026

📢 CALLING ALL STUDENTS! The 2026 VABDF Lyman Fisher Scholarship application deadline is Friday, May 1, 2026, at 5:00 PM!

Established to honor the legacy of Dr. Lyman Fisher, this scholarship supports our community members in reaching their educational and career goals.

Whether you're heading to a university, college, or vocational school, we want to help you get there!

📝 HOW TO APPLY

Online: Complete our JotForm application https://form.jotform.com/260149179734161

Email: Download the PDF version and send it to [email protected]://vahemophilia.org/wp-content/uploads/2026/01/2026-Application_Lyman-Fisher-Scholarship.pdf

ELIGIBILITY
Individuals living with an inherited bleeding disorder, their siblings, or their parents. Must live within the VHF territorial jurisdiction (Most of Virginia, excluding certain Northern VA cities/counties). Must have participated in VABDF/VHF activities.

17/04/2026

Last night, our Richmond community came together for an incredible evening of connection and empowerment to kick off World Hemophilia Day!

This year’s theme, "Diagnosis: First step to care," hits home. The World Federation of Hemophilia (WFH) estimates that over three-quarters of the population of people with hemophilia worldwide are undiagnosed, and an even more significant gap also exists for other bleeding disorders. This means that hundreds of thousands of people with bleeding disorders around the world still lack access to basic care - we know that closing that gap is the only way to achieve "Treatment for All."

Last night we gathered in community to explore new possibilities, and inspire each other to look beyond perceived limits. From group activities to heartfelt conversations, we left feeling more motivated than ever.

14/04/2026

⏰ Don’t wait - Camp Youngblood applications close: May 1st!

If your child is ages 7–17 and part of the inherited bleeding disorders community, this is their chance to experience an unforgettable week of camp at Camp Holiday Trails. Camp Youngblood provides children and teens with a traditional camp experience in a safe, supportive environment.

Go here to pre-register to see if your child is eligible https://form.jotform.com/252791119680159

https://hemaware.org/life/advice-parents-sending-child-bleeding-disorder-camp-first-time

Tips for parents on how to prepare their child with a bleeding disorder for their first sleepaway camp experience.

13/03/2026

BioMarin has announced it will withdraw the gene therapy ROCTAVIAN from the U.S. market, with availability continuing through the end of May.

ROCTAVIAN marked a major milestone as the first approved gene therapy for adults with severe hemophilia A. While access challenges influenced this decision, the research behind it represents decades of progress.

NBDF remains committed to supporting innovation and access for our community.

Learn more: https://bit.ly/4b3mdIo

11/03/2026

📢📢📢Last‑Minute Spot Available! We had a last‑minute cancellation for our Annual Meeting. If you want to join us, register here https://form.jotform.com/253023843469157 by 5 PM today or email [email protected].

📅 Dates: March 13–15
📍 Location: Hotel 24 South, Staunton

Join VHF for a weekend of education, connection, and community as we also celebrate Bleeding Disorders Awareness Month. Expect educational sessions, exhibit time, family programming, meals together, and plenty of chances to connect.

Highlights:
• Friday night dinner session on Caregiver Burnout
• Saturday: breakfast, exhibits, educational programs, lunch, childcare/youth activities
• Sunday: educational breakfast + optional outing to the Frontier Culture Museum

Overnight accommodations provided Friday & Saturday
Registration: $25 per household

Thank you to our sponsors: Accredo by Evernorth, Bayer, BioMatrix, Cottrill’s, CSL Behring, Genentech, Hemabiologics, Hemophilia Alliance, InfuCare Rx, Novo Nordisk, Pfizer, Sanofi, Soleo Health, Superior Biologics, Takeda, UVA-HTC, and VCU-HTC.

05/03/2026

Today advocates from Virginia joined over 250 people from across the country for Washington Days! Our advocates are making sure that congress understands that , the importance of federal funding for our HTC’s and the CDC Division of Blood Disorders, and to talk about a new bill called FED UP that will help to remove barriers for women and girls with bleeding disorders.