Neurofibromatosis WNY-Children's Tumor Foundation

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Neurofibromatosis WNY-Children's Tumor Foundation Western NY Chapter of The Childrens Tumor Foundation Bringing people together who are affected by NF in western NY.

The Children's Tumor Foundation is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF). The mission of The Children's Tumor Foundation is to:

Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF");
Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information;
Assist in the development of clinical centers, best practices, and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and,
Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources.

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It is our hope that the community affected by NF in western NY will have support, fundraising events, social gatherings and a means to raise awareness.

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