National Organization for Disorders of the Corpus Callosum

National Organization for Disorders of the Corpus Callosum Leading nonprofit dedicated to enhancing the lives and promoting opportunities for individuals livin

‼️ Save the Date ‼️Region 7 (IA, KS, MO, NE) Gathering📆 Saturday, October 3, 2026🕐 10 AM - 5 PM📍 Hope Elim Church, 250...
08/23/2026

‼️ Save the Date ‼️

Region 7 (IA, KS, MO, NE) Gathering
📆 Saturday, October 3, 2026
🕐 10 AM - 5 PM
📍 Hope Elim Church, 2500 University Ave, Des Moines, IA 50311

$10/Person • Snacks, Drinks & Lunch Provided • Child Care Available

Come connect, build community, and spend the day with DCC families in your area! More details coming soon—stay tuned!

🍳 Support the NODCC through this Pampered Chef Fundraiser 🥄It’s Double Donation Month, and Pampered Chef is donating DOU...
08/21/2026

🍳 Support the NODCC through this Pampered Chef Fundraiser 🥄

It’s Double Donation Month, and Pampered Chef is donating DOUBLE for every dollar raised!

💻 Shop your Pampered Chef favorites and enjoy:
- FREE gift when you spend $90
- FREE shipping when you spend $150

➡️ For more information about the fundraiser and to start shopping, click here: www.pamperedchef.com/party/nodccfundraiser.

📲 Register Today 📲Teen Talk: Self-Advocacy 101: How to Ask for What You NeedAugust 2212:00 pm PST / 1:00 pm MST / 2:00 p...
08/18/2026

📲 Register Today 📲

Teen Talk: Self-Advocacy 101: How to Ask for What You Need
August 22
12:00 pm PST / 1:00 pm MST / 2:00 pm CST / 3:00 pm EST
Facilitator: Lexy Smith and Allie Calverley, Social Work Students & Adults Living with DCC, Michael Guaimas, Undergraduate Student and Research Assistant at Washington University in St. Louis, Class of 2027

Speaking up for yourself can feel challenging, but it's an important skill. Join us as we talk about self-advocacy, building confidence, and practical ways to ask for the support, accommodations, and understanding you need at school, at home, and in everyday life.

Register Here: https://us02web.zoom.us/meeting/register/k-PoO9QQQ8elIxrDn6-imA

✨ Teen & Adult Siblings Program ✨Our Teen & Adult Siblings Program brought together siblings ages 12 and up who share th...
08/14/2026

✨ Teen & Adult Siblings Program ✨

Our Teen & Adult Siblings Program brought together siblings ages 12 and up who share the unique experience of loving and supporting a brother or sister with a disorder of the corpus callosum.

Throughout the conference, participants built lasting friendships, shared their stories, explored ways to better understand and advocate for their siblings, learned from DCC experts, and participated in meaningful discussions about navigating family relationships, the future, and life beyond the conference. One of the most powerful moments was the "Teen & Adult Siblings Panel" where siblings openly shared honest experiences and insights with families walking a similar path, creating meaningful conversations that helped other families better understand the sibling perspective.

A special thank you to Emma Charles for leading this incredible program with such compassion and authenticity. As both a sibling and lifelong member of the NODCC community, Emma created a space where participants felt seen, supported, and understood.

Don’t forget to register for this month’s webinar! ✏️The Individualized Education Plan is meant to help your child learn...
08/13/2026

Don’t forget to register for this month’s webinar! ✏️

The Individualized Education Plan is meant to help your child learn and reach their academic goals. But does it? This webinar will educate parents on each area of the IEP. We will dive into how each present level assessed should build the IEP. We will discuss the importance of parental input on goals and accommodations and empower parents to give input effectively to the team to ensure your child receives the necessary services needed to be successful.

IEP Process…Don’t Be Afraid! Be an Integral Part of Constructing Your Child’s IEP
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
August 18
Presenter: Lauri White, MEd, NODCC Board Member 2025-2028

Register Here: https://us02web.zoom.us/meeting/register/iPK5OguFTL2sDIzsJHdWhA

⛳️ There is still time to register for the North Texas NODCC Par 3 Golf Scramble! 📍The Swing @ PGA Frisco 📆 October 22🕐 ...
08/11/2026

⛳️ There is still time to register for the North Texas NODCC Par 3 Golf Scramble!

📍The Swing @ PGA Frisco
📆 October 22
🕐 4-9 PM

Join us in giving back to North Texas families impacted by Disorders of the Corpus Callosum through conference scholarships, therapy, and medical equipment grants, and local community outreach.

Families and individuals with a DCC will be our special guests for this event. 💙

Visit https://nodcc.org/ntxgolf/ today to learn more about sponsorships and food-only participation options.

The Individualized Education Plan is meant to help your child learn and reach their academic goals. But does it? This we...
08/07/2026

The Individualized Education Plan is meant to help your child learn and reach their academic goals. But does it? This webinar will educate parents on each area of the IEP. We will dive into how each present level assessed should build the IEP. We will discuss the importance of parental input on goals and accommodations and empower parents to give input effectively to the team to ensure your child receives the necessary services needed to be successful.

IEP Process…Don’t Be Afraid! Be an Integral Part of Constructing Your Child’s IEP
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
August 18
Presenter: Lauri White, MEd, NODCC Board Member 2025-2028

Register Here: https://us02web.zoom.us/meeting/register/iPK5OguFTL2sDIzsJHdWhA

💙 Adults Living with a DCC Program 💙Designed exclusively for adults diagnosed with a disorder of the corpus callosum, th...
08/06/2026

💙 Adults Living with a DCC Program 💙

Designed exclusively for adults diagnosed with a disorder of the corpus callosum, this program created a space where participants could connect with others who share similar experiences, ask questions, build confidence, and learn from one another in a supportive community.

Throughout the conference, attendees explored topics including mental health, emotion regulation, relationships, self-advocacy, and social skills, participated in art therapy and group activities, and had the opportunity to ask leading DCC researchers their own questions. One conference highlight was the "Ask Adults Living with a DCC" panel, where attendees shared their lived experiences, offering encouragement, insight, and hope to families and individuals across every stage of the DCC journey.

A heartfelt thank you to Jasmin Turner and Ella Bohlman for leading this incredible program, as well as Dr. Warren Brown and Dr. Lynn Paul for sharing their expertise and making time to answer questions.

The conversations, friendships, and confidence built throughout the week are a powerful reminder that no one has to navigate life with a DCC alone.

Whether you joined us at the conference or couldn't make it this year, we're excited to stay connected! Community calls ...
08/04/2026

Whether you joined us at the conference or couldn't make it this year, we're excited to stay connected! Community calls are back! Check out this month's schedule below:

New Beginnings: Support for New and Expecting Parents of Children with DCC
August 8
11:00 am PST / 12:00 pm MST / 1:00 pm CST / 2:00 pm EST
Facilitator: Heather Will, Admin of ACC Babies Support Groups
Are you a new or expecting parent embarking on the unique journey of raising a child with a disorder of the corpus callosum (DCC)? We understand that this path comes with its own set of questions, concerns, and joys. Join our recurring support call tailored specifically for parents like you, where you’ll find understanding, information, and a supportive community.
Register Here: https://us02web.zoom.us/meeting/register/iNiHGZfbRfOTXo_xcnUjiw

Teen Talk: Self-Advocacy 101: How to Ask for What You Need
August 22
12:00 pm PST / 1:00 pm MST / 2:00 pm CST / 3:00 pm EST
Facilitator: Lexy Smith and Allie Calverley, Social Work Students & Adults Living with DCC, Michael Guaimas, Undergraduate Student and Research Assistant at Washington University in St. Louis, Class of 2027
Speaking up for yourself can feel challenging, but it's an important skill. Join us as we talk about self-advocacy, building confidence, and practical ways to ask for the support, accommodations, and understanding you need at school, at home, and in everyday life.
Register Here: https://us02web.zoom.us/meeting/register/k-PoO9QQQ8elIxrDn6-imA

Moms' Circle: Support and Sharing for Children Living with DCC
August 25
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Facilitator: Jana Shaffner, Mom of C-ACCer, Career Advisor
Are you a mother navigating the unique journey of raising someone with a Disorder of the Corpus Callosum? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.
Register Here: https://us02web.zoom.us/meeting/register/J2wPrU50ReSLjDPycbgiEA

Adults Connect: Living with DCC
August 26
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027
Conference may be over, but the connections don't have to end! Join us as we reflect on our favorite moments, share our biggest takeaways, and continue the conversations from the 2026 conference.

Whether you attended or not, all adults in the DCC community are welcome. Come reconnect, meet new friends, and stay connected beyond the conference!
Register Here: https://us02web.zoom.us/meeting/register/gJ_w4gFARgi2ovcpqQtnTA

A new addition to the 2026 conference was our Teens Living with a DCC Program. 💙Created specifically for teens ages 12–1...
08/04/2026

A new addition to the 2026 conference was our Teens Living with a DCC Program. 💙

Created specifically for teens ages 12–17 diagnosed with a disorder of the corpus callosum, this program provided something many of our attendees have never experienced before: a space to connect with other teens who truly understand their journey.

Throughout the conference, participants built friendships, strengthened self-advocacy skills, explored important topics like communication, emotional regulation, and sibling relationships, participated in fun activities like tie-dye and yoga, and even had the opportunity to ask leading DCC researchers their own questions.

A special thank you to Heather Will and Katherine Gee for leading this incredible program with such care, compassion, and intention. Your dedication helped create a welcoming environment where these teens could learn, grow, and realize they are never alone.

Address

Yorba Linda, CA

Opening Hours

Tuesday 7am - 3pm
Wednesday 7am - 3pm
Thursday 7am - 3pm

Telephone

+17147470063

Website

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