National Organization for Disorders of the Corpus Callosum

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National Organization for Disorders of the Corpus Callosum Leading nonprofit dedicated to enhancing the lives and promoting opportunities for individuals livin

Want to make an even bigger impact during the NODCC’s 4th Annual Virtual Run, Walk & Roll?Consider starting a Facebook f...
10/17/2026

Want to make an even bigger impact during the NODCC’s 4th Annual Virtual Run, Walk & Roll?

Consider starting a Facebook fundraiser! It only takes a few clicks to invite your friends and family to support the NODCC and help raise awareness of disorders of the corpus callosum (DCC).

Share why you’re participating, tell a DCC story, challenge your friends to join you, or simply explain why the NODCC matters to you.

Getting started is easy!
📱 On mobile: Start a new Facebook post, select “Fundraiser,” and search for the National Organization for Disorders of the Corpus Callosum.

💻 On desktop: Find “Fundraiser” in your Facebook menu and search for the NODCC.
There’s no fundraising minimum, so do what works for you!

Every fundraiser helps spread awareness and gives others an opportunity to support individuals and families affected by DCC. 💙

10/17/2026

🎥 Our NODCC Adult Ambassador Spotlight Series is back!

We’re excited to continue highlighting the voices, stories, and experiences of our amazing NODCC Adult Ambassadors! Through this series, we’re sharing personal journeys and celebrating the individuals who make our DCC community so special.

Our next spotlight features Britteny Acoff! In this interview, Britteny shares her story and perspective as an individual affected by a disorder of the corpus callosum (DCC).

🎬 Watch Britteny’s spotlight here: https://youtu.be/jRNiW479RXQ?is=_w-ua1PojuDiltgj

We’re so grateful to Britteny for sharing her story and helping us continue to raise awareness, build connections, and amplify the voices of adults living with DCC.

Stay tuned for more spotlights featuring our incredible NODCC Adult Ambassadors! 💙

A special thank you to Nate Barge for coordinating these interviews and editing the videos to help bring our Adult Ambassadors’ stories to life.

One of the most powerful things NODCC offers cannot be measured simply in dollars raised, programs delivered, or people ...
10/15/2026

One of the most powerful things NODCC offers cannot be measured simply in dollars raised, programs delivered, or people reached. It is the moment someone realizes, “We aren't alone. We belong here.”

For individuals and families affected by Disorders of the Corpus Callosum, finding people who understand can be life-changing. NODCC creates those connections while advancing education, advocacy, research, and awareness, but sustaining and growing that work takes all of us. That's why development at NODCC is about much more than asking for donations. It's about building a community invested in making sure every individual and family affected by DCC has access to information, connection, resources, and hope.

You can be part of that work in many ways. You might make a gift, become a monthly donor, introduce NODCC to your employer, ask about a matching-gift program, connect us with a foundation or business, volunteer your time, share our work on social media, or simply tell someone about DCC who has never heard of it before.

Every one of those actions strengthens this community. As we move into the final months of 2026, you'll begin hearing more about ways to help NODCC grow its reach and build a stronger foundation for the future. At the center of that work is an idea many of you already know well: Hope.

Hope for the newly diagnosed family searching for answers.
Hope for the adult with DCC looking for community.
Hope created through greater awareness and understanding.
Hope fueled by research and education.
And hope that comes from knowing there is a community where you belong.

This month, consider one way you can help grow our community. Make an introduction. Share NODCC with someone new. Invite a friend to learn about DCC. Ask your employer about charitable giving. Or make a gift that helps another family find the resources and connection that brought you here. When more people know about DCC, more people can understand. When more people understand, more people can help. And when we work together, there can truly be Hope.

Have a connection, partnership idea, or opportunity NODCC should know about? Let us know! We'd love to hear from you.

💙 You don’t have to Run, Walk & Roll alone!One of the most fun ways to participate in the 2026 Run, Walk & Roll is by cr...
10/10/2026

💙 You don’t have to Run, Walk & Roll alone!

One of the most fun ways to participate in the 2026 Run, Walk & Roll is by creating or joining a team! Gather your family, friends, coworkers, or local DCC community and get involved together. Since this is a virtual event, your team members can participate from anywhere!

👥Create or Join a Team on Givebutter: Create your own team or join an existing one on Givebutter. Visit givebutter.com/RWR26 to get started, then hit the button that says “Become a Fundraiser”, sign in or create an account, and choose whether you want to create a team or join a team.

Not ready to start a team? There are plenty of other ways to get involved throughout October:
🚴Participate at your own pace and style: Need inspiration? Check out our list of fun ways to get involved here: https://canva.link/rwr-26.
👟Set up a Facebook Fundraiser: Use Facebook’s fundraising tools to raise money with just a few clicks. Go to “Fundraisers” in your menu, select “Nonprofit,” and search for the National Organization for Disorders of the Corpus Callosum.
👕Wear Your Support: Shop the exclusive Run, Walk & Roll t-shirts, sweatshirts, and hoodies here: www.bonfire.com/nodcc-rwr-26
💙Donate Directly: Every gift made through the NODCC website between October 1–31 will count toward this year’s Run, Walk & Roll total: nodcc.org/get-involved/ways-to-give/donate

We are so grateful for your continued support and partnership in making a difference.

Today is DAF Day! 💙If you have a donor-advised fund (DAF), consider recommending a grant to the National Organization fo...
10/09/2026

Today is DAF Day! 💙

If you have a donor-advised fund (DAF), consider recommending a grant to the National Organization for Disorders of the Corpus Callosum (NODCC) to support individuals and families affected by disorders of the corpus callosum (DCC).

Your generosity helps us provide resources, foster connections, raise awareness, advance advocacy, and support research so individuals and families affected by DCC know they are not alone.

Ready to make an impact? Learn how to give through your DAF at the link below.

🔗 nodcc.org/donor-advised-fund/

This month, we have not one, but TWO incredible webinar opportunities! We’d love for you to join us for both! Check out ...
10/06/2026

This month, we have not one, but TWO incredible webinar opportunities! We’d love for you to join us for both! Check out the details and register using the links below.

“Is it Time Management or an Energy Problem?” Understanding energy, capacity, and getting things done with a corpus callosum disorder.
Presenter: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027
October 26
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
For people with disorders of the corpus callosum, getting things done isn’t always about having enough time. Some tasks take more brain energy than others, and that can change from day to day.

This webinar will explore the difference between managing time and managing energy. We’ll talk about why everyday tasks can sometimes feel harder or take more effort, how to notice signs that your brain is running low on energy, and practical ways to plan your day around your capacity.

This webinar is designed for adults with DCC as well as parents and caregivers who want to better understand and support their loved one.
Learning Objectives
Participants will:
- Understand the difference between time and energy challenges.
- Identify things that can use more brain energy for people with DCC.
- Recognize signs of fatigue, overload, and low capacity.
- Learn practical strategies for planning tasks and managing energy.
Register Here: https://us02web.zoom.us/meeting/register/Xv7Y0WgCRXGx7WTpKwSJnA

Building Early Math Skills: K–2 Math Concepts
Presenter: Lauri White, MEd, NODCC Board Member 2025-2028
October 29
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Explore foundational K–2 math concepts, including number recognition, one-to-one correspondence, place value, and addition and subtraction with and without regrouping. This webinar will highlight key skills and strategies for supporting early math development and understanding.Have a child in K–2? Invite their teacher to join us, too! We’d love to have educators and families learning together.
Register Here: https://us02web.zoom.us/meeting/register/ci_O_BT3Rriljc0TQocYaA

Join the NODCC community and families around the world this October for our 4th Annual Virtual Run, Walk & Roll! From Oc...
10/02/2026

Join the NODCC community and families around the world this October for our 4th Annual Virtual Run, Walk & Roll! From October 1–31, 2026, you can take part in the event wherever you are and however you like, whether that’s running, walking, rolling, bowling, skating, biking, or even hopping on the treadmill. Participate at your own pace and style! Need inspiration? Check out our list of fun ways to get involved here: https://canva.link/rwr-26.

How to participate between October 1–31:
👟Set up a Facebook Fundraiser: Use Facebook’s fundraising tools to raise money with just a few clicks. Go to “Fundraisers” in your menu, select “Nonprofit,” and search for the National Organization for Disorders of the Corpus Callosum.
👥Create or Join a Team on Givebutter: Create your own team or join an existing one on Givebutter. Visit givebutter.com/RWR26 to get started, then hit the button that says “Fundraise”, sign in or create an account, and choose whether you want to create a team or join a team.
👕Wear Your Support: Shop the exclusive Run, Walk & Roll t-shirts, sweatshirts, and hoodies here: www.bonfire.com/nodcc-rwr-26
💙Donate Directly: Every gift made through the NODCC website between October 1–31 will count toward this year’s Run, Walk & Roll total: nodcc.org/get-involved/ways-to-give/donate

We are so grateful for your continued support and partnership in making a difference.

Looking for a way to connect in October? Our community calls schedule is here! Find your group and join us!New Beginning...
10/01/2026

Looking for a way to connect in October? Our community calls schedule is here! Find your group and join us!

New Beginnings: Support for New and Expecting Parents of Children with DCC
October 10, 2026
11:00 am PST / 12:00 pm MST / 1:00 pm CST / 2:00 pm EST
Facilitator: Heather Will, Admin of ACC Babies Support Groups
Are you a new or expecting parent embarking on the unique journey of raising a child with a disorder of the corpus callosum (DCC)? We understand that this path comes with its own set of questions, concerns, and joys. Join our recurring support call tailored specifically for parents like you, where you’ll find understanding, information, and a supportive community.
Register Here: https://us02web.zoom.us/meeting/register/iNiHGZfbRfOTXo_xcnUjiw

Teen Talk: Connecting Teens Living with DCC
October 24, 2026
12:00 pm PST / 1:00 pm MST / 2:00 pm CST / 3:00 pm EST
Facilitator: Lexy Smith and Allie Calverley, Social Work Students & Adults Living with DCC, Michael Guaimas, Undergraduate Student and Research Assistant at Washington University in St. Louis, Class of 2027
Are you a teen living with DCC? This interactive meeting is designed for you! Join to connect with your peers who understand what it's like to live with DCC. Don't miss this chance to be a part of an empowering community dedicated to making the teenage years with DCC a positive and fulfilling experience.
Register Here: https://us02web.zoom.us/meeting/register/85Edi1LiRkSNV6Oeovdi1w

Teens, we want to hear from you! This short questionnaire will help us plan future Teen Talk meetings around the topics, activities, and conversations you’re interested in. Your ideas will help shape future Teen Talk meetings! Click here to fill out the form: https://forms.gle/FspjPkjzHhdeCTsA6

Moms' Circle: Support and Sharing for Children Living with DCC
October 27, 2026
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Facilitator: Deona Kalala, NODCC President 2024-2026
Are you a mother navigating the unique journey of raising someone with a Disorder of the Corpus Callosum? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.
Register Here: https://us02web.zoom.us/meeting/register/J2wPrU50ReSLjDPycbgiEA

Adults Connect: Living with DCC
October 28, 2026
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027
Join us for a special call tailored to adults living with DCC. This gathering is a safe space for individuals to share experiences, find support, and explore strategies for thriving in a world that may not always understand the challenges and strengths that come with DCC. Together, we will celebrate our unique journeys, resilience, and the power of community.
Register Here: https://us02web.zoom.us/meeting/register/gJ_w4gFARgi2ovcpqQtnTA

When asked what advice she would give to another parent receiving news of a prenatal DCC diagnosis, through tears of joy...
09/29/2026

When asked what advice she would give to another parent receiving news of a prenatal DCC diagnosis, through tears of joy, mom Claire Duvnjak shared, “When they’re here, it literally will not matter. I was so anxious the whole pregnancy, but then he was born, and I immediately thought, ‘He’s so perfect, we’re going to figure this out regardless.'”

Claire Duvnjak is a Phoenix native whose two-year-old son, Lewis, has complete ACC. As an educator of visually-impaired children, she knows well how availability of resources can make or break a family’s experience when in need of support. Therefore, the moment she learned of her son’s ACC diagnosis soon after her 20-week appointment, she was deep in a late-night online rabbit hole, discovering more about ACCs. It was during one of these research sessions that she discovered the NODCC and its many resources and connection groups.

Click here to read more of Claire's story: https://nodcc.org/claire-duvnjak/

💙 Region 7 DCC Gathering is coming up soon! 💙📆 Saturday, October 3, 2026🕐 10:00 AM–5:00 PM📍 Hope Elim Church | Des Moine...
09/26/2026

💙 Region 7 DCC Gathering is coming up soon! 💙

📆 Saturday, October 3, 2026
🕐 10:00 AM–5:00 PM
📍 Hope Elim Church | Des Moines, IA

We’ll have several helpful topics for DCC families, including:
🧠 Neuropsychological and Other Beneficial Assessments with Lauren Haisley, PhD: This session will discuss the types of psychological/neuropsychological, behavioral and diagnostic assessments available for children and adults with disorders of the corpus callosum, as well as when and how those assessments might be valuable. These assessments may evaluate a number of domains including cognitive skills ("IQ"), daily living skills, social skills, communication, attention and executive functioning, learning and academics, and emotional/behavioral symptoms. Assessments may also target certain co-occuring conditions such as autism, ADHD, learning disorders and psychiatric concerns. Learn the basics of a variety of assessments and how to identify which is appropriate for you or your child in order to help identify and address relevant needs.

🧠 Research Updates on the Mental, Emotional and Social Outcome of ACC with Warren S. Brown, PhD: Dr. Brown will describe where to find easily accessible summaries of our 25+ years of research on the cognitive and psychosocial outcomes of ACC, and will describe more specifically the outcome of two very informative recent studies.

Both presenters will join us live via Zoom while families gather together in person.

📄 Creating a One-Pager for Your DCC Child, a practical session on creating a simple resource to help teachers, therapists, doctors, child care providers, and others better understand your child and their needs.

✨ Event Details:
• $10 per person
• Children under 1 attend free
• Snacks, drinks, and lunch provided
• Child care available
• Plenty of time to connect, ask questions, and share experiences

Whether you’re new to the DCC community or have been connected for years, we’d love to have you join us!

👉 Registration is now open: https://nodcc.org/region-7-gathering-form/

Questions? Contact Lynn Lindberg at [email protected].

We hope to see you there! 💙

Address

Yorba Linda, CA

Opening Hours

Tuesday 7am - 3pm
Wednesday 7am - 3pm
Thursday 7am - 3pm

Telephone

+17147470063

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