NELAD-Northeast Lyme and Associated Diseases Resource Foundation

05/31/2026

In honor of Lyme+ Awareness Month, tonight 5/31, 10pm EST💚💦🌟!

To recognize Lyme Disease Awareness Month, Niagara Falls will be illuminated GREEN on Sunday, May 31, 2026 at 10:00 pm for a 15-minute duration; times are approximate and subject to change according to light conditions. 💚
 
A live we**am link has been provided by the Niagara Falls Illumination Board to allow our network to watch this spectacular event: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str.
 
This event is put on by the Canadian Lyme disease Research Network (CLyDRN) and Tick Net Canada. 🇨🇦 Thank to our Canadian partners for making this possible!

05/29/2026

A reminder that our deadline for this round of financial support applications for testing and ‘treatment’ is June 15th!
Applications can be emailed or sent through the good ole’ US Postal Service to our business address in Rhode Island. (*Address listed on application, but must be received by the close of the day on 6/15/26)
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https://nelad.org/financial-support

05/29/2026

Thank you, Secretary Kennedy, The U.S. Department of Health and Human Services and ILADS for moving the needle forward! Our families and grant recipients desperately need access to Lyme+ clinicians/practitioners!!!✌️👏💚💪
Part 2…providing coverage and funding for patients and their family’s vital tests and treatments!? Therefore, financial grants from Lyme+ Foundations like ours, will NOT be needed someday! 🤔 💪👏✌️💚(We have already received applications from struggling patients from 45 states!)
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05/28/2026

THIS! I watched his presentation a couple weeks ago. 🙏Wow. (I took 11 pages of notes.) Obviously, we have a vested interest in this, due to our brother’s death, but we are also trying to acquire more knowledge, documentation, proof-and hope for Alzheimer’s/dementia sufferers and their families. Thank you again, Dr. Horowitz for sharing these breakthroughs and specific details with our family….and beyond!

📢 DON’T MISS OUR NEW WEBINAR ON THE RELATIONSHIP BETWEEN LYME AND ALZHEIMER’S DISEASE TOMORROW!

As part of Lyme Disease Awareness Month, Project Lyme is hosting a new webinar with Dr. Richard Horowitz, a leading clinician and researcher in tick-borne illness, TOMORROW (Thursday, May 28th) at 7:00 p.m. ET.

Dr. Horowitz will share emerging evidence that chronic infections like Lyme may play a role in cognitive decline—and what that could mean for testing and treatment. He will draw on his newly published research, walking us through a clinical case showing measurable improvements in Alzheimer’s-related biomarkers after treating Lyme and associated infections with his double-dose dapsone combination therapy.

Participants will learn about:

👉 How Lyme disease and other chronic infections may contribute to neuroinflammation and cognitive decline

👉 The role of biomarkers such as phosphorylated tau and amyloid beta in assessing Alzheimer’s risk

👉 Advances in testing that may help identify underlying drivers of neurological symptoms

👉 How combination therapies targeting infection and inflammation may influence disease progression

👉 The MSIDS model and its application to complex chronic illness

Join us to learn what this could mean for patients, caregivers, and the future of treatment.

🔗 Register now: https://projectlyme.org/event/the-relationship-between-lyme-and-alzheimers-disease-testing-and-treatment-breakthroughs/

Dr. Richard Horowitz

05/28/2026

Tonight, Ridgefield CT. Looking forward to reconnecting with our friends from Lyme Connection and gathering more information from these dynamic speakers! We will share the highlights of this event-this weekend:)

05/27/2026

A reminder that we are meeting Friday, June 12th, at 6pm, in Holden, MA! (AND we are back at our usual place:) No guest speaker this month, but helpful discussion topics below. Hope to see you there!

05/27/2026

Please, be careful out there and arm yourselves with knowledge and power! 💚💪

Dallas Thompson was bitten by ticks on a camping trip in Florida in July 2025 and was diagnosed with Lyme disease. Since then, his life has "drastically changed," and he now suffers from muscle pain, headaches, fatigue and neurological issues.

05/26/2026

Why Are So Many Families Sick? The Hidden Legacy of Congenital Lyme Disease

Lyme symptoms are often diffuse, systemic, and difficult to neatly categorize, encompassing neurological issues, autoimmune dysfunction, skeletal and psychiatric symptoms, fatigue, chronic pain, insomnia, gastrointestinal problems, and cognitive impairment. It can affect your thyroid, your hair, your bladder. Anything.

Women describing these symptoms are especially likely to be dismissed as “stressed,” “anxious,” hormonal, or dramatic rather than properly investigated.

To compound the matter, Congenital Lyme disease is not routinely screened for during pregnancy, nor does it appear on standard amniocentesis panels, leaving many families falsely reassured that everything is normal with their pregnancy.

This leaves women of child-bearing age particularly vulnerable to potential tragedy. Because Lyme disease — whether you know you have it or not — can be congenital, meaning it can infect, and affect, a developing baby in utero.

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