Every Link Matters

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Every Link Matters

The Every Link Matters foundation was established in January 2021 by Darin & Mary Hunter to raise awareness and funds for KBG syndrome families directly.

Because no one fights alone!

Darin & Mary Hunter set up the Every Link Matters foundation because they struggled with their own daughter, Emilee's KBG syndrome diagnosis two years ago (on Feb. 26, 2019). The foundation was created to raise awareness and funds for children who have been diagnosed and their families who need help with med

ical and therapy expenses. KBG syndrome is a rare genetic disorder that is caused by a mutation, or loss of genetic material, on chromosome 16q and affects several body systems. "KBG" represents the surname initials of the first three families diagnosed with the disorder. Common signs and symptoms with this condition include unusual facial features, skeletal abnormalities, intellectual disability, hearing loss, seizures, and heart defects. Thank you for supporting us! We're still new so please let us know if you have any questions at all. You can message us directly or please send an email to: [email protected].

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Most Commonly Asked Questions:

1. Is KBG syndrome genetic? It depends! The mutations can occur spontaneously with no family history, or be inherited. In Emilee's case, it is completely spontaneous.

2. Is KBG syndrome new? Good question! We believe the syndrome was first discovered, or written about in medical literature, in 1975. The research and data on KBG is very minimal, almost nonexistent, making it extremely difficult for both families and doctors to navigate.

3. How many people have KBG syndrome? Not a whole lot! As of February 2021, less than 600 people worldwide, most of whom are children, have been diagnosed with KBG syndrome.

4. Is KBG syndrome similar to autism? KBG syndrome can often be misdiagnosed as autism, but they are both very different.

5. How can I help? We're so glad you asked! Please like and share our Every Link Matters page. Tell your friends, coworkers, and families about what you learned today. Tell them that you know someone who is rare!

6. Where can I contribute financially? Thank you! You can visit our website and click the Donate tab. Www.everylinkmatters.org

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To learn more about KBG Syndrome itself please visit KBG Syndrome on Facebook! www.facebook.com/KBGSyndrome

05/06/2025

🧢✨ Welcome to the ELM Family, Chrissy Armagast – Our 2025 Hat Sponsor! ✨🧢

We are beyond excited to announce our ELM Hat Sponsor for the 5th Annual Every Link Matters Golf Tournament — and it’s none other than the incredible Chrissy Armagast, stepping up in a big way to support our mission!

If you’ve ever worn an ELM hat, you know the impact it makes. We still see them around town and in social media photos years later — helping us raise awareness for KBG syndrome one link (and one lid!) at a time. Now, thanks to Chrissy, they’re back — and better than ever. 🎉

Chrissy wears many hats (literally and figuratively), and every one of them is filled with compassion, hustle, and heart:
🏡 A top-producing Realtor with Atlanta Communities, Chrissy brings knowledge, honesty, and dedication to every client — and having worked with her firsthand, we can tell you: she’s the real deal.
💫 A fierce advocate for good, she’s a regular face at Make-A-Wish Foundation events and can often be found creating joy through her event business, Duo Designs and Events, where she helps run everything from proms to charitable galas.
👗 And let’s not forget Styled Babes, the family-run online boutique she operates alongside her daughters, Kaylee and Kerri. These three amazing women are on a mission to help others feel confident, unique, and stylish with their carefully curated pieces — and their customer love says it all.

Chrissy, you’ve given so much — and now, you're helping us put our mission on heads and into hearts again. Thank you for being a part of this Every Link Matters family and using your platforms to uplift our cause.

We can't wait to see this year’s hats all over the golf course and the community. Whether you're sporting yours on the green, at the store, or on social — know that you’re helping spread awareness and link lives together for something bigger. 💙

05/04/2025

⛳️💥 Welcome to the Green – Guaranteed Roof, Our First-Time Putting Contest Sponsor! 💥⛳️

We’re excited to give a BIG Every Link Matters welcome to Guaranteed Roof, joining us for the first time ever as our Putting Contest Sponsor at the 5th Annual Every Link Matters Golf Tournament! Whether you're sinking birdies or just here for a good time, we’re thrilled to have this standout roofing company supporting our mission to raise awareness and funds for families impacted by KBG syndrome.

🏠 Why Guaranteed Roof?
They’re not just another roofing company — they’re on a mission to redefine what it means to care for your roof. Specializing in roof rejuvenation, cleaning, and replacement, this family-focused company puts community, affordability, and eco-friendly solutions front and center.

Their revolutionary plant-based rejuvenation process extends the life of your existing roof without the massive cost of full replacement. That means more money in your pocket, less waste, and longer protection for your family — a win-win-win in our book.

🛠️ Their process is:
✔️ Non-intrusive
✔️ Environmentally responsible
✔️ Budget-friendly
✔️ Backed by real results and a caring team

Guaranteed Roof isn’t just passionate about roofing — they’re passionate about people. Their goal is to educate property owners, protect homes, and become the most trusted name in the industry, all while giving back to the communities they serve.

Let’s show them what the ELM community is all about! Visit 👉 www.GuaranteedRoof.com to learn more or schedule a consultation. Tell them ELM sent you!

👷‍♂️ Chris and the Guaranteed Roof crew — thank you for stepping onto the green and into our hearts. We’re grateful for your support, your vision, and your commitment to doing good from the rooftop down. Here’s to a tournament full of great shots and even greater partnerships!

04/30/2025

🌞🔥 Welcome to the Table, Big Easy BBQ – Official Breakfast Sponsor of the 5th Annual Every Link Matters Golf Tournament! 🔥🌞

Before the first drive off the tee, let’s talk about something equally important… BREAKFAST — and not just any breakfast, but one brought to you by the bold, flavorful crew at Big Easy BBQ: A Cajun Smokehouse! 🎷🍖

We’re thrilled to welcome Big Easy BBQ as our official breakfast sponsor for this year’s tournament, and trust us — you’re going to want to arrive early and hungry. Located in Hickory Flat at 2864 E Cherokee Drive, Suite A, Canton, GA, this local gem brings the soul of New Orleans straight to Cherokee County.

Think smoky BBQ infused with Cajun heat, Creole heart, and that zydefunk vibe that’s as rich as a French Quarter jazz riff. Whether you're grabbing a plate of red beans & rice, digging into some poutine, or savoring a pulled pork sandwich or tender ribs, you’re in for a pre-golf feast that’s anything but ordinary.

We’ve been lucky enough to have them at past events, and let’s just say — they never miss. Their food is fire. Their energy is infectious. And we’re beyond grateful for their support of our mission and our families.

💬 Word on the fairway: “You haven’t lived until you’ve had brisket before 9 AM.”

Big Easy BBQ, thank you for bringing the flavor, the fun, and your support to Every Link Matters. We can’t wait to start the day with your unforgettable eats and fuel up for a great cause.

04/28/2025

🏌️‍♂️💚 Welcoming Back Fence It – 5th Year VIP Sponsor & Forever Family 💚🏌️‍♀️

This one is straight from the heart. We are incredibly proud to welcome Fence It back as a 5th Year VIP Sponsor of the 5th Annual Every Link Matters Golf Tournament — but this post isn’t just about a business... it’s about family.

Chris Laudermill, the man behind Fence It, isn’t just a great contractor — he’s Mary’s dad and Emilee’s Paw Paw. Alongside his wife, Val (Emilee’s Ouma), they’ve been part of the soul of Every Link Matters since the very beginning. They’ve believed in this mission not just as supporters, but as grandparents walking beside us with love, pride, and purpose. 💚

Every year, Chris and his team travel all the way from Navarre, FL to show up — not just for the tournament, but for Emilee and every family we serve through ELM. Watching them roll in, tools and all, ready to work and give, reminds us exactly what this is all about: showing up for those we love.

For decades, Fence It has helped families and businesses secure what matters most. And when Chris and his crew are on the job, you can bet it’s going to be done right, with care, and with heart. That’s who he is — in business and in life.

Chris and Val, we hope we’re making you proud. Thank you for raising a woman like Mary, for loving Emilee with everything you’ve got, and for continuing to support this mission in the biggest, most meaningful ways. We love you so much. 💛

Here’s to 5 years of loyalty, craftsmanship, and love — and many more to come.

04/26/2025

🎾 Welcome to the ELM Family, AT Sports – First-Time VIP Sponsor! 🏌️‍♂️

We’re thrilled to roll out the red carpet (or should we say, premium sports surface?) for AT Sports, joining us this year as a first-time VIP sponsor at the 5th Annual Every Link Matters Golf Tournament!

If you’ve been watching the sports and recreation world evolve, chances are you’ve already seen the name AT Sports popping up everywhere — and for good reason. With the surging popularity of pickleball, tennis, and other court-based sports, Brad Carroll and his powerhouse team are crushing it, providing industry-leading court surfaces that are changing the game — literally.

From Acrytech to CushionX, Faultline to RollX, their innovative products are trusted by top-tier organizations, including being the Official Surface of the Professional Pickleball Association (PPA). AT Sports recently made waves at the 2025 PGA Show, showcasing why they’re leading the future of sports surface technology.

But beyond the tech and titles, there’s a personal connection here that makes this sponsorship even more special. Brad’s wife, Candace, and Mary grew up as cousins, and now our kids are growing up together too. Having Brad, Candace, and their family as part of our mission is something we hold close to our hearts.

AT Sports was founded on values that align perfectly with ours — honesty, transparency, respect, and a deep dedication to community and service. Their goal? To revolutionize sports surfacing with safety, quality, and performance at the core — and to deliver exceptional customer satisfaction along the way.

Brad, thank you for stepping up and being part of our mission to make a difference in the lives of families impacted by KBG syndrome. We’re proud to have you and the AT Sports team join us on the course this May — and even prouder to call you family.

04/24/2025

🎨🏠 Welcoming Back A&P Painting and Flooring Cherokee – VIP Sponsors of the 5th Annual Every Link Matters Golf Tournament! 🏌️‍♂️🎉

We are so excited to welcome back two of the kindest, most big-hearted people we know — Justin Deweese and Jessica Deweese — along with their incredible team at A&P Painting and Flooring as VIP sponsors for our 5th Annual Every Link Matters Golf Tournament!

If you know the Deweese family, then you already know: they lead with humility, generosity, and integrity in everything they do. Their continued support means so much to us — not just as sponsors, but as part of the ELM family who truly believe in the impact we’re making for families affected by KBG syndrome.

Founded in 2018, A&P started as a small business with a big mission — to redefine the contracting experience. And they’ve done just that. Year after year, A&P continues to be ranked as one of the top contractors in Cherokee County, known for exceptional craftsmanship, fair pricing, and honest service that always puts the client first.

💪 What sets A&P Painting and Flooring apart? ✅ 24-month warranty for peace of mind
✅ Built on core values of honesty, integrity, and accountability
✅ Committed to community growth and giving back
✅ Local hiring and team-focused development
✅ Passionate about transforming homes and lives

From painting to flooring — and everything in between — A&P delivers more than just beautiful results. They deliver trust, transparency, and heart, every single time.

Justin and Jessica, thank you for your unwavering commitment to this mission and this community. We are beyond grateful for your friendship and continued partnership. Here's to another amazing year of golf, giving back, and celebrating the kind of people who make our world a whole lot brighter.

04/22/2025

🌟 Welcoming Back SoftWave Tissue Regeneration Technologies – VIP Sponsor of the Annual Every Link Matters Golf Tournament! 🌟

It’s with immense gratitude that we welcome back SoftWave Tissue Regeneration Technologies as a VIP sponsor of this year’s tournament! Based right here in Alpharetta, GA but trusted around the globe, SoftWave continues to lead the charge in non-invasive, drug-free healing and tissue regeneration — changing lives with science and heart.

We’re especially proud to call this sponsorship personal. We’ve known John Warlick, SoftWave’s Co-Founder and Chief Scientific Officer, for over a decade. He and so many members of the SoftWave team and provider network have supported Every Link Matters in more ways than we can count. Having them return again this year means the world to us — and to the families we serve.

💡 What is SoftWave?
SoftWave is a breakthrough, non-invasive technology that uses therapeutic energy waves to activate the body’s natural healing process. No needles. No drugs. No downtime. Just faster recovery, pain relief, and true tissue regeneration.

✅ Used by leading research centers and elite sports organizations around the world — including the NFL, NBA, NHL, PGA, WNBA, UFC, and more
✅ Trusted in orthopedics, urology, wound care, aesthetics, and more
✅ Treats everything from chronic knee and back pain to plantar fasciitis, shin splints, stress fractures, and beyond
✅ Increases blood flow, reduces inflammation, stimulates stem cells, and accelerates healing
✅ Recognized by the International Society for Medical Shockwave Technology (ISMST)

At its core, SoftWave’s mission is about improving quality of life — something that resonates deeply with us at Every Link Matters. Whether they’re helping someone get back on their feet pain-free or standing behind our mission to support families affected by KBG syndrome, the SoftWave team shows up with heart, science, and innovation.

John and the entire SoftWave family — thank you for continuing to walk this journey with us. Your partnership is a powerful link in the chain of care and compassion we’re building together.

04/20/2025

✈️🌍 Welcoming Garza’s Great Getaways – A True Day-One Supporter of Every Link Matters! 🌍✈️

There are sponsors… and then there are family-level supporters who have been with you from the very beginning. That’s exactly who Dawn Garza and Garza’s Great Getaways are to Every Link Matters — part of the heart and soul of what we do.

Dawn has worn many hats over the years — volunteer, advocate, cheerleader, and world-class travel expert — and we’re beyond excited to have her and her business back as part of our 5th Annual Every Link Matters Golf Tournament this May!

If you know us, you know we don’t refer people lightly. But Dawn? She’s the person we recommend more than anyone when it comes to planning unforgettable trips. Why? Because she goes above and beyond every single time. Whether it's Disney with the kids, a dream honeymoon in Hawaii, a European adventure, or a luxurious escape to the Maldives, Dawn brings deep experience, thoughtful personalization, and flawless ex*****on to every itinerary.

💼 Her specialties include:
🌴 Romance Travel
🧳 Family Vacations
🌍 Europe & Adventure Travel
🚢 Cruises
🧩 Certified Autism Travel

Don’t just take it from us. One client said it best:

“From Italy to Portugal and Madrid, every flight, train, and hotel was perfectly planned. Our favorite? A hotel in Lagos with jaw-dropping ocean views we’ll never forget!”

Another raved:

“St. Barth’s was beyond luxurious — curated meals, unforgettable views, and not a single detail missed. Dawn’s passion and service are unmatched. Working with her is not a decision… it’s a necessity.”

Dawn, thank you for supporting ELM since day one and for making life’s biggest adventures effortless and unforgettable. We are so grateful for your continued partnership, your heart, and the way you show up for this community.

Whether you’re dreaming of a bucket list destination, planning a romantic escape, or looking for a family trip everyone will love, we can't recommend Garza’s Great Getaways enough. Let Dawn help you create memories that last a lifetime — she’s already created more than a few for us. 💙

04/18/2025

We’re fired up (pun intended) to announce the return of one of our most meaningful partners — Dr. Fahrenheit Heating & Air — as a sponsor of the 5th Annual Every Link Matters Golf Tournament! After taking a year off, we're thrilled to have this veteran-owned, family-operated local business back on the course with us!

Led by Randall and Laura Lahr, Dr. Fahrenheit has been a trusted name in HVAC services across Woodstock and Cherokee County since 2001. What started as a husband-and-wife dream has grown into a company rooted in honor, courage, commitment — and community.

Randall, a proud U.S. Marine Corps veteran, knows what it means to serve — not only through his military background and support for the Wounded Warrior Project and Marine Corps League of Woodstock, but also in how he cares for his customers and neighbors. His story is one of true grit: after surviving a life-altering motorcycle accident in 2018, Randall chose to adapt and overcome, continuing to lead with purpose, passion, and pride. 🇺🇸

The Dr. Fahrenheit team delivers exceptional heating and air services, but they’re more than just HVAC pros — they’re community champions with a heart for helping others. That’s why having them return to support Every Link Matters is so special to us.

Randall, Laura, and the entire Dr. Fahrenheit family — thank you for being part of this mission again. We’re honored to walk alongside you as we raise funds, spread awareness, and support families affected by KBG syndrome.

Help us welcome them back — and if your home needs HVAC care that’s built on integrity, precision, and good ol' Marine grit, you know who to call.

04/16/2025

🌱 Think Green is Back for the 5th Annual Every Link Matters Golf Tournament ! 🌿

We’re beyond excited to welcome Think Green Lawn Services back for their third consecutive year as a VIP sponsor — and this one’s extra special as we celebrate 5 incredible years of the Every Link Matters Golf Tournament!

Last year, Jim and Trisha Segers and the amazing Think Green team showed up big time — not just with their sponsorship, but with some of the best tournament shirts we’ve ever had. Seriously, we’re still seeing them around town! And knowing this crew, we can only imagine what they have planned for us this year. 👕🔥

Let’s be honest — it just makes sense for a top-tier lawn care company to support a golf tournament. Think Green doesn’t just know lawns… they make yours look like a fairway. From w**d control, fertilization, and aeration to mosquito control and more, they’re turning Georgia’s toughest yards into pristine greens, one home at a time.

💚 Why we love Think Green: ✔️ Local lawn care experts based in Cu***ng, GA
✔️ Custom services designed for Georgia’s unique soil and climate
✔️ A customer-first approach with free service calls and reliable results
✔️ And most importantly… amazing people who care about their community

Jim and Trisha are more than sponsors — they’re dear friends who’ve been there with us through this journey, and we’re so thankful for their continued support of Every Link Matters and the families impacted by KBG syndrome.

We can't wait to see what kind of fun, surprises, and green goodness they bring to their sponsored hole this year. One thing’s for sure — when Think Green shows up, it’s going to be fresh, fun, and full of heart.

🌟 Thank you, Think Green Lawn Services, for being part of the ELM family once again. Let’s tee it up for another year of connection, community, and grass that’s greener where Think Green grows it!

***ngGA

04/14/2025

🏡✨ Welcoming Back Thomas & Brown – Trusted Partners and Longtime Supporters of Every Link Matters! ✨🏡

It’s hard to even remember a time when Mark Brown wasn’t part of our journey. From the earliest days of real estate transactions to now supporting Every Link Matters as a returning sponsor for our 5th Annual Every Link Matters Golf Tournament, Mark has been a steady hand, a trusted expert, and a friend.

If you’ve ever had the pleasure of working with Mark, you already know — he and his team bring unmatched professionalism and heart to every closing. Whether it’s your first home or your fifth, they treat every transaction with the care it deserves, ensuring that what can be one of life’s most stressful moments becomes a smooth, informed, and even joyful experience.

Mark’s journey began on the football field at Furman University, where he met his future business partner Lon Thomas. After earning his law degree from the University of Georgia School of Law, they launched their firm in 1993 — and since then, it’s grown to serve clients all across Metro Atlanta and beyond.

What sets Mark apart isn’t just his knowledge (which is extensive), but his commitment to relationships. He thrives on keeping clients, agents, and partners in the loop, prioritizing communication, education, and accessibility throughout the process. Whether teaching CE classes to real estate professionals or resolving complex contract questions, Mark and his team continue to be an incredible resource to the community.

Outside the office, you’ll find Mark doing what he loves most: spending time with family and friends at the lake, cooking, watching sports, golfing, and fishing — soaking up the same joy and connection he brings to his professional life.

Mark, thank you for your loyalty, your friendship, and for always showing up with heart. We're proud to have you back on the course with us this year as part of the Every Link Matters family. Your support helps us move our mission forward — one link, one family, and one transaction at a time.

04/11/2025

💼⚖️ Grateful to Welcome Back Waites Law Firm — A Sponsor, A Friend, A Champion for the Community ⚖️💼

We’re honored to welcome back Waites Law Firm and our good friend Jud Waites as a returning sponsor for the 5th Annual Every Link Matters Golf Tournament!

To know Jud is to know someone who leads with heart, conviction, and integrity. He’s not just an exceptional attorney — he’s a tremendous dad, a fierce advocate for what’s right, and someone who would literally give you the shirt off his back if you needed it. If you’ve ever seen him with his kids, you know: his family is his world, and that same level of care extends to the people and causes he supports.

Jud absolutely cannot stand bullies, and that passion for justice shows in the work he does every day at Waites Law Firm. Whether he’s handling personal injury cases, criminal defense, business disputes, or helping families with wills and planning, Jud brings both compassion and tenacity to the courtroom — and to the community.

A proud Georgia attorney with deep Southern roots, Jud’s journey has taken him from Birmingham to Wake Forest to Mercer Law School, where he earned Dean’s List honors and flexed his skills on both the Mock Trial team and the football field (yes, don’t let the lean frame fool you — the guy’s a legit athlete!). Today, he continues to balance legal work, fatherhood, church, and giving back to Woodstock and beyond.

Jud, we appreciate your friendship, your unwavering support, and your partnership. Thank you for standing with Every Link Matters once again. You’re not just part of the tournament — you’re part of the heart of it.

Address

127 East Main Street Suite 401
Woodstock, GA

Telephone

+17703552611

Website

http://www.everylinkmatters.org/

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