ALS Network

ALS Network We connect need with support, questions with answers, thought leaders with new ideas, research to funding, and advocates to challenge the status quo.
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For more information about the ALS Network, please visit www.alsnetwork.org or email [email protected].

Thank you to the for having us at today's ALS Awareness Game! Let's !
06/07/2026

Thank you to the for having us at today's ALS Awareness Game!

Let's !

Thank you to Congressman Ken Calvert for his leadership and continued support of the ALS community as a lead sponsor of ...
06/06/2026

Thank you to Congressman Ken Calvert for his leadership and continued support of the ALS community as a lead sponsor of the ACT for ALS Reauthorization Act.

ACT for ALS has helped accelerate research, expand access to investigational therapies, and strengthen the infrastructure driving progress toward new treatments. Reauthorizing this bipartisan legislation helps ensure that momentum continues for people living with ALS and their families.

Ask your Member of Congress to support the ACT for ALS Reauthorization Act today: https://alsnetwork.quorum.us/campaign/152857/

Our June eNewsletter is in your inbox, or you can view it online!Find out about our efforts in ALS research, care servic...
06/06/2026

Our June eNewsletter is in your inbox, or you can view it online!

Find out about our efforts in ALS research, care services, and advocacy. Read it today and share it with others!

And, we invite you to join us at one or more of our community outreach events this month!
Please check our calendar for upcoming events and online support groups. Be sure to visit the News and Stories section - a valuable resource for timely updates about , our community, and the ALS Network.

https://bit.ly/2026-6-eNews

The ALS Network is proud to be a part of a new collaboration with EverythingALS, Vision 2030, and the Allen Institute to...
06/05/2026

The ALS Network is proud to be a part of a new collaboration with EverythingALS, Vision 2030, and the Allen Institute to accelerate ALS scientific discovery and therapeutic development. Backed by an initial $1 million investment, this effort brings together cutting-edge science, technology, and collaboration to drive progress toward effective treatments and ultimately cures for ALS.

Partnerships like these demonstrate the power of investing in innovation and uniting the research community around a shared goal of ending ALS. Read more: https://ow.ly/u9ce50Z8jmE

06/04/2026

Dr. Stella Sarraf is redefining what's possible in neurology for .

In this episode of Impossible Dreams podcast, she discusses the science behind SPG302, her mission to transform ALS care, and the patient-first approach driving her work at her clinical-stage biotechnology companies Spinogenix and Amydis.

Watch more at: https://www.youtube.com/watch?v=BjhLH-PRY6o

Applications are now open for the in-person ALS Clinical Research Learning Institute® (CRLI), taking place October 26–27...
06/03/2026

Applications are now open for the in-person ALS Clinical Research Learning Institute® (CRLI), taking place October 26–27, 2026, in Clearwater Beach, Florida.

This two-day program provides education and training for individuals impacted by ALS who are interested in clinical research and therapy development. Graduates will be recognized as NEALS ALS Research Ambassadors and may have opportunities to help shape the future of ALS research.

People living with , caregivers, family members, and genetic carriers are encouraged to apply. Selected participants living with ALS may bring one caregiver or family member, with travel and a two-night hotel stay covered by NEALS (Network of Excellence for ALS - NEALS).

Application Deadline: July 6, 2026
For more information visit: https://ow.ly/g93c50Z7ge4

06/03/2026

In case you missed it, you can watch the “ASK ME: Living Fully, Living Well — Palliative Care for ALS” webinar now.

This informative presentation features Kara Bischoff, MD, Medical Director, UCSF Palliative Care Program, and is hosted by Steve Goclowski, ALS Network’s Vice President, Care Services.

Watch the full webinar at: askme.alsnetwork.org

We invite you to join us for one or more of our June Connect, Support, Chat Groups (ALS Network's version of support gro...
06/03/2026

We invite you to join us for one or more of our June Connect, Support, Chat Groups (ALS Network's version of support groups designed for YOU!). These meetings provide opportunities for individuals to share their personal experiences and to learn more about strategies for preserving the independence and quality of life for people diagnosed with ALS and their loved ones.

Please visit our online calendar for monthly updates on guest speakers, new topic-specific meetings, and date/time changes at calendar.alsnetwork.org.

Today, on , we honor the legacy of the baseball legend whose name became forever linked with ALS—and we support every p...
06/02/2026

Today, on , we honor the legacy of the baseball legend whose name became forever linked with ALS—and we support every person and family facing this disease.

More than 80 years later, is still fighting for better treatments, stronger research, improved access to care, and policies that reflect the urgency families face every day.

That work depends on action.

We invite you to honor Lou Gehrig’s legacy by contacting your members of Congress through the ALS Network’s advocacy action alerts page.

Take action here: https://alsnetwork.quorum.us/

06/01/2026

This month, the ALS Network is celebrating Pride Month alongside Mikey Stone to honor the LGBTQIA+ community that has been impacted by ALS.

Follow us as we pass the mic and allow our talented friend, musician and person living with ALS to share his story. Throughout the month, Mikey will be sharing what pride means to him, and why it is important to the ALS community.

Together, we celebrate resilience, advocacy, and the power of community while raising awareness and fostering safe connections for those navigating ALS.

Show your pride. Show your support. Let’s cure ALS together!

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