ALS Network

ALS Network We connect need with support, questions with answers, thought leaders with new ideas, research to funding, and advocates to challenge the status quo.

For more information about the ALS Network, please visit www.alsnetwork.org or email [email protected].

For Tom Horton, this journey begins with his mother.This October, Tom will paddle through the Greek Islands in honor of ...
10/05/2026

For Tom Horton, this journey begins with his mother.

This October, Tom will paddle through the Greek Islands in honor of his late mother, whose Greek heritage gave him a lifelong connection to the country, its culture and its people.

Joined by a small group of family members and friends, the miles traveled will carry another purpose.

A longtime supporter of the ALS Network, Tom is dedicating his expedition to people and families impacted by ALS, helping connect ALS communities in the United States and Greece.

Together with the ALS FIND A CURE NOW - Hellenic ALS Association we are turning a journey of remembrance into an opportunity for awareness, connection and hope.

Follow Tom’s journey: greekpaddletocureals.org

The 27th annual Monterey Bay Walk & Roll to Cure ALS on Saturday, October 10, 2026, is a week away!Starting at 10 AM, me...
10/03/2026

The 27th annual Monterey Bay Walk & Roll to Cure ALS on Saturday, October 10, 2026, is a week away!

Starting at 10 AM, meet with ALS Network staff and care managers; find ALS Network merchandise, and learn more about the services offered by our incredible partners:
SuperCare Health
Permobil Foundation
Numotion
National Student Speech Language Hearing Association California State University, Monterey Bay

For information about our entire event, including incentives, and more visit: alswalkmontereybay.org.

Can’t make it to our Hawaii Walk & Roll to Cure ALS, in person? Tune into our livestream now!Thank you to our Accessibil...
10/03/2026

Can’t make it to our Hawaii Walk & Roll to Cure ALS, in person? Tune into our livestream now!

Thank you to our Accessibility and Inclusivity Sponsor, Shionogi, for making this year’s livestream available to our Hawaii ALS community!

The 14th annual Hawaii Walk & Roll to Cure ALS is TOMORROW, Saturday, October 3!Anyone who still wants to participate ca...
10/02/2026

The 14th annual Hawaii Walk & Roll to Cure ALS is TOMORROW, Saturday, October 3!

Anyone who still wants to participate can register in person day-of. Join us in reaching our $130,000 goal to help drive the search for ALS treatments and cures through ALS Network's mission priorities related to care, research, and advocacy!

Grab your family, friends, and colleagues and join us for a day full of fun and purpose! Let’s !

For more information or to make a gift today, visit alswalkhawaii.org.

We are heartbroken by the passing of Brooke Eby, ALS advocate, storyteller, founder of ALStogether, community builder, a...
10/02/2026

We are heartbroken by the passing of Brooke Eby, ALS advocate, storyteller, founder of ALStogether, community builder, and our dear friend.

Brooke changed how people understood ALS. With extraordinary honesty, irreverent humor, and vulnerability, she invited millions into her life and helped people see the person beyond the diagnosis. She made people think. She made people care. And, even during unimaginably difficult moments, she made people laugh.

She founded ALStogether so people living with ALS and caregivers could find one another, share what they were experiencing and connect with people who understood. Earlier this year, Brooke entrusted that Slack community to the ALS Network, and we made a promise to carry her vision forward.

In June, we had the privilege of honoring Brooke as our 2026 Dean and Kathleen Rasmussen Advocate of the Year. When she received the honor, Brooke told us: “I didn’t choose ALS, but I did choose to get loud, and be irreverent about it, so don’t worry, I’m not getting quiet anytime soon!”

She was right. Brooke’s voice lives on in every person she inspired, every perception she changed, and every connection made through the community she built.

Our hearts are with Brooke’s family, friends, loved ones and the entire ALStogether community. We will miss her beyond measure. Thank you, Brooke, for trusting us with what you built. We will carry it forward.

Read our full statement on our website: https://alsnetwork.org/remembering-brooke-eby/

The ALS Network’s clinical trials page makes it easy to explore and participate in ALS research. Clinical trials play a ...
10/01/2026

The ALS Network’s clinical trials page makes it easy to explore and participate in ALS research. Clinical trials play a critical role in developing new treatments and improving care for people living with ALS.

Whether you're living with ALS, a caregiver, or a healthcare professional, this resource can help you learn about ongoing studies and how to get involved in advancing research.

Check out our new update! You can now search for more conditions we serve such as Frontotemporal Dementia, PLS, Progressive muscular atrophy, and Progressive bulbar palsy.

Explore available clinical trials powered by TrialX: https://alsnetwork.org/clinicaltrials/

We invite you to join us for one or more of our October Connect, Support, Chat Groups (ALS Network's version of support ...
10/01/2026

We invite you to join us for one or more of our October Connect, Support, Chat Groups (ALS Network's version of support groups designed for YOU!). These meetings provide opportunities for individuals to share their personal experiences and to learn more about strategies for preserving the independence and quality of life for people diagnosed with ALS and their loved ones.

Please visit our online calendar for monthly updates on guest speakers, new topic-specific meetings, and date/time changes at calendar.alsnetwork.org.

Thank you to everyone who attended and supported the Napa Valley Ride, Walk & Roll to Cure ALS on Saturday, September 26...
10/01/2026

Thank you to everyone who attended and supported the Napa Valley Ride, Walk & Roll to Cure ALS on Saturday, September 26!

Nearly 1,000 people joined us at the Napa Valley Expo, helping us raise over $880,000 - and we can’t stop now. Because of you, we are SO CLOSE, but we have more work to do to achieve and exceed our critical $1M goal.

We could not make this day possible without our dedicated committee, sponsors, volunteers, and staff. Be sure to save the date for next year’s ride on September 25, 2027!

To make a gift, visit alsridenapavalley.org.

This Hispanic Heritage Month, we celebrate Russell Andrews' heritage, his continued service, and his commitment to makin...
09/30/2026

This Hispanic Heritage Month, we celebrate Russell Andrews' heritage, his continued service, and his commitment to making sure no one faces ALS without support.

As someone living with ALS, Russell has turned his ALS journey into an opportunity to serve and advocate for others embracing both his African American and Mexican heritage.

Thank you Russell, for continuing to keep the light on for everyone!

Tee up for a great cause at the ALS Golf Classic on Monday, December 7, at The Oaks Club at Valencia. Join us for a full...
09/30/2026

Tee up for a great cause at the ALS Golf Classic on Monday, December 7, at The Oaks Club at Valencia.

Join us for a full day on the green featuring breakfast, lunch, cocktails, on-course games, gift bags, and our exclusive 19th Hole reception and dinner.

Whether you’re hitting the course, sponsoring the event, or joining us for the evening, your participation helps support local ALS care, national advocacy, and global research.

Space is limited, so reserve your spot today at alsgolfclassic.org.

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