Mantle Cell Lymphoma Alliance - MCLA

10/09/2026

💚 Sometimes, the most powerful words come from someone who has walked the same path.

A few words of hope. A little encouragement. A reminder that you’re not alone.

Our Words of Hope collection brings together messages from people whose lives have been touched by mantle cell lymphoma — words meant to offer strength, comfort, and connection to others navigating their own MCL journey.

✨ Swipe through to read some of these heartfelt messages.

And when you need a little hope, or want to share some with someone else, visit our website to explore more.

💚 Because hope is something we can share.

HopeAndHealing

10/08/2026

10/08/2026

Learn more about the different subtypes of lymphoma with Blood Cancer United’s newly updated booklets. Reviewed by lymphoma experts, these were written to help you better understand the diseases, treatment options, and available support resources.

There is a mantle cell brochure as well.

You can download or order these or any of our educational materials at no cost.

10/07/2026

People in active treatment for blood cancers like mantle cell lymphoma can face unpredictable symptoms and demanding treatment schedules. We support ASH’s call for states to use established diagnosis codes to identify patients who may qualify for Medicaid medical frailty exemptions, so patients can focus on care, not paperwork.

ASH is urging states to protect access to care for people with serious hematologic conditions as they implement Medicaid community engagement requirements. Unpredictable symptoms and intensive treatment schedules can make it difficult for patients to meet monthly participation requirements.

ASH recommends using established diagnosis codes to help identify patients who may qualify for medical frailty exemptions, reducing documentation burdens and supporting continued access to care.

Read ASH’s letter to state Medicaid directors: https://ow.ly/vwSw50ZVyo4

10/06/2026

🌎 We’re on the map!

The Lymphoma Coalition brings together lymphoma patient organizations from around the world—and this interactive map is a pretty incredible way to see just how far that community reaches.

And yes… you’ll find the Mantle Cell Lymphoma Alliance there. 💚

We’re proud to be part of this global network while bringing something very specific to it: a voice focused entirely on people affected by mantle cell lymphoma.

Take a look, explore the map, and see the organizations working for lymphoma patients around the world. 👇

https://lymphomacoalition.org/member-organisation/

10/06/2026

🩺 NEW: Ask the Expert

Treatment may be over—but what happens when your blood counts still haven’t bounced back?

This month’s Ask the Expert answers a question many people with mantle cell lymphoma have after treatment:

Why can blood and immune cell counts remain low after cancer treatment, and how long can recovery take?

The answer isn’t always simple. Different parts of the blood and immune system recover at different rates—sometimes over weeks or months, and sometimes much longer. And a number marked “low” doesn’t necessarily tell the whole story.

Our latest Ask the Expert explains what’s happening in the bone marrow and immune system, what can affect recovery time, and why your care team looks at trends over time—not just a single test result.

The answer was reviewed by Dr. Michael E. Williams, MD, ScM, FACP, University of Virginia.

👉 Read the full answer: https://mantlecellalliance.org/newsletters/2026-09/

💬 Have a question you’d like us to ask an MCL expert? Send it our way at [email protected]. Your question could be featured in a future Ask the Expert.

10/04/2026

The Lymphoma Research Foundation's Educational Forum is on October 11 from 10AM EST to 5PM EST. There is a Mantle Cell specific break-out in the afternoon. This should be a great event, we encourage everyone to attend!

Lymphoma Research Foundation

The link to register is here https://lymphoma.org/event/educational-forum-on-lymphoma and also on our webpage under events.

The Educational Forum on Lymphoma is a virtual two-day conference in the fall of every year that provides the lymphoma/CLL community with important

10/03/2026

The ECHO study gave us encouraging news. Now, years later, researchers have gone back to see if that news still holds up.

The original ECHO trial showed that adding acalabrutinib to bendamustine and rituximab improved outcomes for people receiving their first treatment for mantle cell lymphoma.

Now researchers have followed those same patients for longer — and the benefit seen with acalabrutinib has continued over time.

That longer follow-up matters. In MCL, it’s not enough to know that a treatment works initially. We also want to know: Does the benefit last?

MCLA breaks down the latest ECHO results, what researchers found with longer follow-up, and what it may mean for patients and caregivers.

🔗 Read our plain-language summary in our newsletter:
https://mantlecellalliance.org/news/echo-acalabrutinib-long-term-results/

Remember to subscribe to get MCL updates directly to your mailbox. https://mantlecellalliance.org/newsletters/

10/02/2026

📬 September was a big month for MCLA — and our September newsletter is here.

During Blood Cancer Awareness Month, our community came together to make mantle cell lymphoma seen.

In this month’s issue, we look back at:

💙 The stories and faces we shared throughout September — and the people behind them

🎗️ World Lymphoma Awareness Day and Rare Cancer Day, including an incredible show of support from our community

👭 Our Two Sisters, One Mission campaign and Kris’s $23 on the 23rd

🧭 What’s ahead, including MCLA Compass, our new resource navigation tool designed to help patients and care partners find the right information at the right time

🔬 MCL research and treatment updates, resources, and more from across the community

September showed us what can happen when people affected by MCL come together — to share stories, raise awareness, support one another, and help build something better.

👉 Read the September newsletter: https://mantlecellalliance.org/newsletters/2026-09/