ALS ONE

ALS ONE ALS ONE is a partnership of world leaders in ALS research & care from MGH, CCALS, ALS TDI, & UMass M ALS ONE is where ALS research and care unite.

An unprecedented approach that is making measurable and meaningful differences in the fight against ALS. You can feel positive knowing exactly who and what your support is funding:

ALS ONE is an unprecedented partnership of world leaders in ALS research and care who have joined forces to expedite and streamline the research towards breakthrough treatments and an ultimate cure for ALS, while impro

ving the care now for those currently battling ALS by proving essential items such as lifts, ramps and wheelchairs, among others, which are not often covered by insurance. ALS ONE’s partnership includes Dr. Merit Cudkowicz, MD, MSc; and James Berry, MD, MPH, at The Healey Center for ALS at Massachusetts General Hospital (MGH); Dr. Robert Brown Jr., MD, DPhil, Chief of Neurology, UMass Medical Center; Dr. James Berry, MD, Co-Director of the MGH Neuromuscular Division and of the MGH ALS Unit, Dr. Sabrina Paganoni, MD, PhD, Assistant Professor at Harvard Medical School & physician scientist at the Healey Center for ALS at MGH; Dr. Fernando Vieira., CEO & Chief Science Officer, ALS Therapy Development Institute; and Ron Hoffman, Founder and Director Compassionate Care ALS (CCALS). Together, CCALS, MGH, UMASS Medical Ctr, and ALS TDI, we are ONE in the fight against ALS. ALS ONE is a registered 501c3 (47-4984263) and donations are fully tax-deductible. Learn more at: www.alsONE.org or by emailing [email protected]. We, along with all families impacted by the devastation of ALS, thank you for your support.

02/12/2026

This is a defining moment for the ALS community. ALS ONE and the ALS Network are aligning to accelerate research, expand access to care, and scale impact nationwide - while staying true to the mission that started it all.

Sheri Strahl, president and CEO of the ALS Network, shares her thoughts on this powerful integration that bolsters progress for people living with ALS.

Learn more at https://ow.ly/aYeX50YcAV0.

02/11/2026

As ALS ONE becomes part of the ALS Network, its founding commitment to Massachusetts-based research and care remains strong, now amplified by national scale and deeper collaboration.

ALS ONE leaders and partners share how this integration builds on years of trusted relationships, accelerates innovation through technology and shared expertise, and expands access to research and care for families across the country.

It connects scientific progress with the urgent, everyday needs of people living with ALS — moving faster, reaching farther, and staying true to the mission that started it all. Learn more at https://ow.ly/OjyP50YcATE.

02/11/2026

As Scott Gosnell, son of ALS ONE founder Kevin Gosnell shares, ALS ONE was built on a bold idea: collaboration accelerates progress. For more than a decade, that vision helped fuel research, strengthen care, and bring leaders together in Massachusetts and beyond.

Now, that legacy moves forward - stronger than ever, through integration with the ALS Network. Learn more at https://ow.ly/VoLb50YcARK.

ALS ONE is becoming a part of the ALS Network - uniting research excellence, technology innovations, and national scale ...
02/11/2026

ALS ONE is becoming a part of the ALS Network - uniting research excellence, technology innovations, and national scale to move faster for people living with ALS.

This strategic integration strengthens funding, expands collaboration, and accelerates progress - while honoring ALS ONE’s founding mission and long-standing commitment to research and care partners.

One shared vision. Greater speed. Bigger impact. Together, we’re building a strong path forward to cure ALS. Learn more at https://ow.ly/LQi250YcAHQ.

After nearly 10 remarkable years of service and leadership, we share with deep gratitude that Jennifer DiMartino will be...
07/31/2025

After nearly 10 remarkable years of service and leadership, we share with deep gratitude that Jennifer DiMartino will be stepping down as Executive Director of ALS ONE. Over the past decade, Jen DiMartino has led with her whole heart, and an unwavering commitment to the ALS community. We are deeply grateful for her immense contributions. Under Jen’s leadership, ALS ONE has raised over $20 million to fund critical ALS research, expand patient services, and help drive major breakthroughs in treatment and care. Additionally, Jen has personally helped countless individuals and families as they navigate their ALS journey to ensure they have not felt alone.

This moment marks both a celebration of all we’ve accomplished together - and the beginning of a new chapter for ALS ONE. This leadership transition is an opportunity for the organization to define our next decade of impact. The ALS ONE Board of Directors is undertaking a thoughtful, strategic process to outline our strategic vision and direction with fresh perspective and energy to build on our legacy of progress. We are beyond grateful for Jen DiMartino’s contributions to the immense growth of ALS ONE, and we are confident in our trajectory of impact for the future.

WE LOVE OUR "FALMily"!! 💚💙 IN JUST 4 WEEKS, our "FALMily", our 200-teammate-strong team that is FILLED with heart despit...
07/21/2025

WE LOVE OUR "FALMily"!! 💚💙 IN JUST 4 WEEKS, our "FALMily", our 200-teammate-strong team that is FILLED with heart despite the absolute heartache that ALS has inflicted on it, will be running the scenic 7-miles that is the historic FALMOUTH ROAD RACE, along the coast of Falmouth, MA! Each of our teammates runs with a personal “why” in their hearts - an ALS hero who fuels their every stride and is the wind beneath their wings. Though their reasons may differ, they are united by one powerful mission: to help those currently living with ALS and to one day rid the world of this devastating disease. We hope that you’ll consider donating to one of our teammates or to the team in general – we are determined in our mission to once again surpass $500,000 for our team in this year’s race, taking place on August 17th in Falmouth, MA on Cape Cod. The FRR takes on over 200 Official Charities Partners for this event and we are so extremely proud and grateful to one of them - enabling us and so many other causes to raise such critical funds each year.
To donate or learn more about our runners and the "Why" for whom they are running, please visit: https://bit.ly/AOFRR25 and then scroll down to find a runner or mini team within our team.

HAPPENING NOW – 70,000 STEPS TO STOP ALS! 4 coaches from Wi******er, MA High School are taking a 70K-step challenge to h...
07/17/2025

HAPPENING NOW – 70,000 STEPS TO STOP ALS! 4 coaches from Wi******er, MA High School are taking a 70K-step challenge to help STOP ALS. Originally to help get in shape for their respective seasons, Coach John Fleming – Boys Volleyball Head Coach, Coach Jason Cacciapuoti - Indoor & Outdoor Track Head Coach, Coach Will O’Connor – Assistant Football Coach, and Coach Wally Dembowski – Head Football Coach, decided to use this challenge to help fight ALS – a disease that has devastated the Wi******er and WHS community more times than it should any! 70,000 steps equate to about 35 miles, so this is not an easy task – especially in this heat! Coach John Fleming has been holding SPIKE OUT ALS nights every year since 2016 and is always on the front lines with us helping to end ALS in memory of his dad, many friends who have also lost their battle to ALS, and many he knows who are living so courageously with the disease now. These amazing coaches make the world a better place every day by leading youth sports and we know they’d love support of all they are doing to help fuel our ALS research and care. The link to donate is: bit.ly/WHS70K4ALS.

A HUGE thank you to these phenomenal coaches and humans for all they do each day and for all they are doing TODAY to support our mission in the fight against ALS - you are all amazing and we are so very grateful!
to

THEY DID IT! The Oxford to Boxford ALS RIDE FOR HOPE 2.0 took place last month but fundraising was continuing, and THEY ...
07/06/2025

THEY DID IT! The Oxford to Boxford ALS RIDE FOR HOPE 2.0 took place last month but fundraising was continuing, and THEY DID IT! Not only did the 18 amazing riders (all filled with huge hearts that have been impacted by ALS), complete their 150-mile ride from Oxford, Maine to Boxford, MA, they just surpassed their goal of raising $50,000 to support ALS research and care!
Their epic ride was a tremendous success in every way – filled with joy, strength, remembrance, resolve, camaraderie, and above all – determination to make the world of ALS a better place – and that they did! They also very much deserved the police & fire vehicle-escort that they received once they rode back into town, safely getting them back home to an emotional and welcoming crowd!
The inaugural “OTB” ALS Ride for Hope 1.0, a 1,000-mile ride from Oxford, OH to Boxford, MA, was launched in 2023 by David Foster in honor of his Alpha Delta Phi fraternity brother, Doug McIlvaine who was diagnosed with ALS in 2019. To this day, after 6 years, Doug remains an enigma to medical professionals, as his ALS has largely remained at-bay. This year’s riders included: Doug’s wife Dolly and their son Charlie, Dave Foster, Steve Lopez, Linda Carpino, Kim Donohue, Bruce and Weezie Fox, Kevin Gray, George Hall, James Jarling, Margaret McCarthy, Anne and Allen Miller, Ben Nutter, Matthew Sullivan, Barbara Thomas, and Claudia Worth. In their hearts throughout the ride, in addition to Doug, were Mary Lopez and Ann O’Shea who were devastatingly lost to ALS, and Shannon de Forest who is so courageously and stoically living with the disease now.
Funds raised from all their incredibly generous donors will help tremendously in advancing the research of our partners at MGH while also enabling our “care arm” at CCALS to ensure those living with ALS have the equipment and resources they require and deserve for the best quality of life. We are forever grateful to each rider and every donor - and we hold every one of their “Why’s” firmly in our hearts.
Find out more about our riders, for whom each are riding, and to make a donation if desired, click https://www.classy.org/campaign/oxford-to-boxford-2-0/c674460

Sending happy 4th of July wishes to all and thinking of Lou Gehrig who gave his 'Luckiest man on the face of the earth" ...
07/04/2025

Sending happy 4th of July wishes to all and thinking of Lou Gehrig who gave his 'Luckiest man on the face of the earth" farewell speech on this date 86 years ago. It was on that date that the first MLB number was retired, Lou's #4 on the Yankees - 4ever being linked to him and the fight against ALS.
The world is far overdo for a cure.
#4

We hope you’ll join us this Thursday, June 26th at 5pm EDT, for our Healey ALS Platform Trial community webinar. This w...
06/23/2025

We hope you’ll join us this Thursday, June 26th at 5pm EDT, for our Healey ALS Platform Trial community webinar. This week, Catherine Small, Project Manager of Patient Navigation at MGH will be joined by Anne Marie Doyle, M.A, CCC-SLP, Director of Community Education at the Les Turner ALS Foundation, who will share a brief overview of the HEALEY ALS Platform Trial to-date and describe how Les Turner supports partnership in research. As always, the webinar is free and all are welcome. Register at: https://bit.ly/3KKsme2.

Questions: If you have questions or comments that you would like addressed on this week's call, we ask that you kindly submit in advance by emailing: [email protected].

Next Saturday Night (6/28), ioin us at 7pm at Players in Rockland, MA to ROCK OUT ALS with the live music of Beware of D...
06/21/2025

Next Saturday Night (6/28), ioin us at 7pm at Players in Rockland, MA to ROCK OUT ALS with the live music of Beware of Dogs! This exciting night of fun is presented by Rise Against ALS, led by warrior Michelle Chard Strojny, who has been living with ALS for just under 7 years. Players Sports Bar & Grille is a South Shore favorite for live bands and Beware of Dogs never disappoints! They cover amazing songs and will have everyone dancing all night! Tickets are $20 online and $25 at the door (if not sold out). Get ready to have a night of fun - all in support of the most meaningful cause: advancing research toward a cure for ALS and providing essential equipment and resources for courageous warriors like Michelle, who continue to live with strength and grace in the face of this devastating disease.

Link for Tickets is: http://weblink.donorperfect.com/ROCKOUTALS

Link to get a sneak peek at the music of Beware of Dogs, featuring Michelle's husband Aaron (bass), Greg Luiz (lead vocals), James Bender (guitar), Pat Reddington (drummer)and Mike Richardson (guitar, keyboard): https://drive.google.com/file/d/1gac3_x-xeMXplFr6_RmRC4hJn5nQZq-6/view?usp=sharing

We hope to see you there for ONE great night!

Address

8 Industrial Way
Whitman, MA
02382

Telephone

+17815233304

Website

https://linktr.ee/alsone

Alerts

Be the first to know and let us send you an email when ALS ONE posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share

Category