Accord Alliance promotes comprehensive and integrated approaches to care that enhance the health and well-being of people and families affected by disorders of s*x development (DSD). First, we are creating an on-line repository of information and resources to support understanding and improvements in the care and well-being of persons with DSD and their families. Second, we are partnering with eme
rging interdisciplinary healthcare teams and working together to create the resources they need to successfully implement the new standard of care. If we are successful:
People and families affected by DSD will consider themselves well informed about DSD; they will have the skills and support they require to promote a positive health-related quality of life and overall well-being; and they will express satisfaction with their participation in treatment decisions and their overall healthcare experience. Accord Alliance will have forged solid partnerships with medical and allied healthcare professional institutions and with community-based (consumer) organizations that share our objectives. A model of care to guide the interdisciplinary team approach and family-centered decision making will be developed by working collaboratively with stakeholders and will be widley shared in the form of a "manual" or "tool-kit." Best practices and solutions for barriers to the successful implementation of the model of care will be identified, evaluated, and broadly disseminated. Over time, interdisciplinary teams will be in place across the country, and recognized as fully operational, effecitive, and successful.
