Breathe 4 ALS Inc

Breathe 4 ALS Inc The mission of Breathe 4ALS is to fund research for genetic ALS, which accounts for 10% of all ALS cases.

🌟Come one, Come All! Thrilled to announce our next event is Saturday May 16 at 3 PM in Westport, CTThis is a community...
05/04/2026

🌟Come one, Come All! Thrilled to announce our next event is Saturday May 16 at 3 PM in Westport, CT
This is a community meditation and ice bath led by an instructor focused on mindfulness, resilience, and bringing people together. Proceeds go directly to research, equipment, and family support.

On Saturday, May 16 (3 p.m., 10 Pine Tree Drive), has organized a community meditation and ice bath event. Instructor Michael Christoforo will help guests focus on mindfulness, resilience, and coming together meaningfully.
No prior experience is needed. Participants can join the guided meditation, ice bath or both, all fully supported and optional based on comfort level.
The donation of $250 per person also includes a coffee table book of Jonathan’s life and photography.
To register, and for questions, email [email protected].

If you cannot attend but would still like to donate and/or need more info:
Pls email skyengreenfield@icloud@com

Thanks for your support!

🌟May is ALS Awareness Month 🌟🧬 And 2026 is shaping up to be a historic year for the ALS community! From the highest-ever...
04/28/2026

🌟May is ALS Awareness Month 🌟
🧬 And 2026 is shaping up to be a historic year for the ALS community! From the highest-ever federal funding ($315M!) to breakthroughs in precision medicine targeting TDP-43, the science is moving faster than ever.
🚀 New trials like VectorY’s PIONEER-ALS are expanding globally, and we’re seeing the first signs of blood tests that could detect ALS years before symptoms start.
🔗 Learn more about the latest research at the ALS Association or follow ALS News Today for daily updates.

💔We are saddened that Eric Dane, the actor best known for his roles on Grey’s Anatomy and Euphoria, has died less than a...
02/20/2026

💔We are saddened that Eric Dane, the actor best known for his roles on Grey’s Anatomy and Euphoria, has died less than a year after revealing he had amyotrophic lateral sclerosis (ALS). He was 53.

Dane starred as family patriarch Cal Jacobs on hit HBO teen drama show Euphoria. Before that, he was perhaps best known as Dr Mark Sloan, or ‘Dr McSteamy’, on medical drama Grey’s Anatomy.

The California-born actor was diagnosed last year with ALS and spent the last few months raising awareness for the most common form of motor neurone disease (MND).

“With heavy hearts, we share that Eric Dane passed on Thursday afternoon following a courageous battle with ALS,” reads a statement from his family.
He was married to fellow actress and model Rebecca Gayheart, with whom he had two children.
The written statement said he spent his final days surrounded by friends and his devoted wife, and his two daughters, Billie and Georgia, “who were the center of his world”.
“He will be deeply missed, and lovingly remembered always. Eric adored his fans and is forever grateful for the outpouring of love and support he’s received,” it said.
Dane also played Jason Dean in fantasy drama series Charmed, and Captain Tom Chandler in action drama show The Last Ship, while appearing in films such as Marley & Me, Valentine’s Day and Burlesque.

Happy heavenly 55th to the man who rocked our world. No long story today about how amazing you were or how you were so ...
01/04/2026

Happy heavenly 55th to the man who rocked our world. No long story today about how amazing you were or how you were so loved or how you shook things up and made people think. We feel your presence each and every day.

Please consider making a donation or purchasing photography in honor of Jonathan at
🔗 in bio

❤️

Head over to our shop for gorgeous framed lucite prints, swag, or gift cards 💳 🌲 ❄️ 🎅 🔗 in bio
12/24/2025

Head over to our shop for gorgeous framed lucite prints, swag, or gift cards 💳 🌲 ❄️ 🎅
🔗 in bio

Happy and Healthy Holidays from Breathe 4 ALS 💚❤️💙 If you’re still looking for a perfect gift may we suggest a gorgeous ...
12/24/2025

Happy and Healthy Holidays from Breathe 4 ALS 💚❤️💙 If you’re still looking for a perfect gift may we suggest a gorgeous lucite framed print from collection and/or some swag from our shop ? Gift cards too 🙂
Link in bio and all tax deductible 🙏🎁

Israeli scientists found a way to stop ALS nerve cells from breaking down by adding a specific microRNA molecule.In lab ...
11/18/2025

Israeli scientists found a way to stop ALS nerve cells from breaking down by adding a specific microRNA molecule.

In lab tests on human cells and mice, this microRNA stopped the damage and even helped the nerve cells regenerate.

The treatment works by preventing a toxic protein (TDP-43) from building up and killing motor neurons.

Researchers say this could lead to a new kind of gene therapy for ALS, with hopes of moving toward clinical trials.

Eric Dane, who was diagnosed with ALS last year, is set to play a firefighter with ALS in ‘Brilliant Minds’ Season 2 ...
10/27/2025

Eric Dane, who was diagnosed with ALS last year, is set to play a firefighter with ALS in ‘Brilliant Minds’ Season 2

By 2040, experts estimate that nearly 400,000 people worldwide will be living with amyotrophic lateral sclerosis, or ALS...
08/30/2025

By 2040, experts estimate that nearly 400,000 people worldwide will be living with amyotrophic lateral sclerosis, or ALS.
Researchers at the Johns Hopkins University School of Medicine and the National Institutes of Health, in collaboration with the UK Biobank and the University of Turin, Italy, have identified a distinct set of proteins in blood that can detect ALS with remarkable accuracy up to a decade before symptoms appear. Results of the new study, published Aug. 19 in Nature Medicine, lay the foundation for a much-needed diagnostic test for ALS.

— ALSNews Today

Early symptoms of ALS : Image In ALS news, a new coalition aims to use artificial intelligence (AI) tools to accelerate ...
08/01/2025

Early symptoms of ALS : Image

In ALS news, a new coalition aims to use artificial intelligence (AI) tools to accelerate drug discovery for amyotrophic lateral sclerosis (ALS) and other neurodegenerative disorders.

Answer ALS is teaming with partners including GATC Health — a drug discovery company focusing on machine learning and neural networks — Louisiana State University’s Pennington Biomedical Research Center, and Tulane University. The State of Louisiana is helping fund the initiative, known as the Louisiana AI Drug Development Infrastructure for ALS (LADDIA).

“This is more than a research partnership, it’s a strategic investment in the future of ALS discovery,” Clare Durrett, executive director of Answer ALS, said in a organization press release.

The project will build on the Answer ALS Neuromine Data Portal. This openly available research repository, the largest of its kind, includes biological and clinical data from more than 1,000 people with ALS.

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