03/02/2026
For the past 30 years, our mission has remained clear: to educate, support, and advocate for individuals and families affected by Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN).
What started in 1994, when 11-month-old Julie was diagnosed with Stevens-Johnson Syndrome, became the beginning of something much greater. Her mother, Jean, was told she would likely never meet another person affected by SJS. But Jean was determined to change that. She was determined to connect families and ensure that no one would ever have to go through SJS alone.
What began with one family and a mother’s unwavering determination has grown into a global mission — a community of survivors, caregivers, medical professionals, and advocates standing together in support and awareness.
Over the past 30 years, we have:
💙 Provided trusted educational resources
💙 Connected survivors and families worldwide
💙 Raised critical awareness about adverse drug reactions
💙 Supported research and medical outreach
As we celebrate this 30-year milestone, we also recognize a challenging reality. Since the pandemic, funding has been significantly limited. Like many nonprofits, we rely heavily on individual donations to continue our vital work. Every resource we provide, every family we connect, and every awareness effort we lead is made possible through the generosity of our supporters.
To continue spreading awareness, connecting patients and families, and advancing education about SJS and TEN, we need your help.
Please consider supporting our 30th Anniversary Campaign:
https://bit.ly/SJS-Foundation-Donation
Your donation directly sustains our mission and ensures that no one faces Stevens-Johnson Syndrome alone.
Thank you for standing with us, for sharing our mission, and for helping us continue to make a difference.
Awareness Saves Lives.
1996–2026 | 30 Years Strong 💙
