Massachusetts Pediatric Hydrocephalus Foundation, Inc.

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Massachusetts Pediatric Hydrocephalus Foundation, Inc.

"Funding A Cure For Hydrocephalus" Chapter Director: Denise Sacharczyk

11/11/2025

https://www.facebook.com/share/p/1Yw3CDb2Rs/?mibextid=wwXIfr

09/30/2025

Day 30 of National Hydrocephalus Awareness Month: National Hydrocephalus Awareness Month became official in July, 2009 when passed by the United States Congress HR 373. This bill was sponsored by Congresswoman Michelle Bachmann at the request of the Pediatric Hydrocephalus Foundation. Prior to 2009, there was NO National Awareness Month. The PHF is proud to have been and continues to be the leader of Hydrocephalus Awareness in the U.S. Thank you for celebrating all month long with us!
This is 20 year old Hydro Hero Cole from NJ. Cole was and continues to be the inspiration behind the founding of the PHF. Today Cole celebrates 16 years SURGERY FREE!

09/29/2025

Day 29 of National Hydrocephalus Awareness Month: The Pediatric Hydrocephalus Foundation is Volunteer Driven Organization. Your donation goes directly to funding our mission of education, support and RESEARCH. Since our inception in 2009, the PHF has donated over $900,000 to various Hospitals, Organizations, Scholarships, and RESEARCH projects across the United States.
These are Hydo Hero Sisters, 22 year old Zoe and 8 year old Taylor from South Carolina.

09/26/2025

Day 26 of National Hydrocephalus Awareness Month; of Cerebrospinal Fluid: The total volume of CSF in the adult ranges from140 to 270 ml. The volume of the ventricles is about 25 ml. CSF is produced at a rate of 0.2 - 0.7 ml per minute or 600-700 ml per day. The circulation of CSF is aided by the pulsations of the choroid plexus and by the motion of the cilia of ependymal cells. An excessive build up CSF in the ventricles of the brain is known as Hydrocephalus.
This is 14 month old Hydro Hero Grant from Minnesota.

09/25/2025

Day 25 of National Hydrocephalus Awareness Month: Ventriculoatrial shunt placement enables cerebrospinal fluid (CSF) to flow from the cerebral ventricular system to the atrium of the heart. The preferred distal site is the peritoneal space (ventriculoperitoneal shunt), as this space is generally safely accessible and possesses more than adequate absorptive capacity for the CSF volume produced by a given person. In rare cases, the peritoneal space is inadequate, necessitating an alternative distal site. The most common alternative sites are the cardiac atrium (ventriculoatrial shunt) and the pleural space (ventriculopleural shunt). Common reasons for this include previous intra-abdominal infection and scarring due to prior procedures or intra-abdominal pathology. Once the peritoneum is ruled out, the surgeon must verify that the atrium is an acceptable target.
This is 17 year old Hydro Hero Daytona from Iowa.

09/23/2025

Day 23 of National Hydrocephalus Awareness Month: The first "shunt" silicone one way valve was invented in the late 1950's by John Holter. A chance discovery showed Holter, after a failed attempt in which a young boy died, that he could use a silicone one-way valve (pressure sealing). After a medically suitable grade of Silastic (silicone and rubber) was found, the device was patented, and John Holter set up a company, Holter-Hausner International, to manufacture the cerebral shunts.
This is 13 year old Hydro Hero Jaxon from Massachusetts.

09/22/2025

Day 22 of National Hydrocephalus Awareness Month: Hydrocephalus can be detected as early as 18 weeks in-utero via ultrasound. Ventricles in the brain should measure 10mm or less. Any measurement over 10mm is a sign of Hydrocephalus in a fetus.
This is 9 year old Hydro Hero Brody from Texas.

09/21/2025

Day 21 of National Hydrocephalus Awareness Month: Signs & Symptoms of Hydrocephalus may include:
An unusually large head or a rapid increase in head size. A bulging or tense soft spot (fontanel) on the top of the head. Nausea and vomiting. Sleepiness, sluggishness, or irritability. Difficulty looking upward or downward deviation of the eyes (sunsetting). Seizures.
This is 6 year old Hydro Hero Sophia from Texas.

09/20/2025

Day 20 of National Hydrocephalus Awareness Month: A limited number of individuals can be treated for Hydrocephalus with an alternative procedure called endoscopic third ventriculostomy. In this procedure, a neuroendoscope — a small camera that uses fiber optic technology to visualize small and difficult to reach surgical areas — allows a doctor to view the ventricular surface. Once the scope is guided into position, a small tool makes a tiny hole in the floor of the third ventricle, which allows the CSF to bypass the obstruction and flow toward the site of resorption around the surface of the brain.
This is 13 year old Hydro Hero Isabella from Georgia.

09/17/2025

Day 17 of National Hydrocephalus Awareness Month: It is estimated that a surgery related to Hydrocephalus is performed every 15 minutes in the United States. This is Madalyn from Texas.

09/16/2025

Day 16 of National Hydrocephalus Awareness Month: Acquired hydrocephalus is caused by injuries or conditions that develop after birth, such as a hemorrhage, meningitis, head trauma, tumors and cysts.
This is 10 year old Hydro Hero Remy from Illinois.

09/15/2025

Day 15 of National Hydrocephalus Awareness Month: The balance between production and absorption of CSF (cerebrospinal fluid) is critically important. Because CSF is made continuously, medical conditions that block its normal flow or absorption will result in an over-accumulation of CSF. The resulting pressure of the fluid against brain tissue is what causes hydrocephalus.
This is 12 year old Hydro Hero Shane from California.

Address

Westhampton, MA
01027

Telephone

+14132469725

Website

http://www.active.com/donate/phfwalkma2016

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