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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

Scleroderma Foundation of California

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Scleroderma Foundation of California

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We EMPOWER the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH

OUR VISION is for all scleroderma patients to receive an accurate and timely diagnosis, and access to care and support for those who require it, until we find a cure to end scleroderma.

10/30/2026

Roger and Harmon are back again this year boot scootin' towards a cure for scleroderma for one of their favorite humans, Kelly Clemeshaw. Roger and Harmon’s mama Anne Marie has been best friends with Kelly since college. Kelly was diagnosed with scleroderma the summer after their freshman year. She currently co-leads the scleroderma support group in San Diego. Roger and Harmon’s family is inspired by the way Kelly lives a life full of hope and a sense of adventure. These persuasive pups long for the day we give scleroderma the boot by finding a cure! If you want to help Roger and Harmon EMPOWER the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH, click here: https://gogo.photo/698598 and cast your vote today. Voting is only ONE dollar each and you can vote as many times as you want.
Spurring Change, Unleashing hope, one vote at a time... 🐾🤠👢💙

10/30/2026

Registration is now Open!

Whether you are a patient, caregiver, or medical professional, our Southern California Scleroderma Patient Education Day is a perfect opportunity for a more indepth look into scleroderma. For more information and to register, go to SoCalEdDay.myscleroderma.org

Education Day Topics and Speakers
Dr. Joel Epstein - Oral Care in scleroderma

Dr. Sam Good - The Effects of Trauma and Stress on the Development of Scleroderma

Dr. Mihaela Taylor - A Holistic Approach Balancing Fatigue

Dr. Rajan Saggar - The Benefits of Pulmonary Rehab

Dr. Suzanne Kafaja - The Evolution of Research in Scleroderma and What It Means For You?

Panel: Purpose Beyond Diagnosis: How Volunteers Shape the Chronic illness Journey

(Some topics and speakers may be subject to change)

10/30/2026

Registration is now open for the Southern California Scleroderma Patient Education Day, Saturday, December 5th at the Hotel MDR, a Double Tree by Hilton in Marina Del Rey. We have a great line up of expert speakers and closing with an inspiring patient panel. We'll be serving morning refreshments and a tasty lunch and hope you will join us for a day of learning and connection! Parking is $15 and the event is FREE. Click here and register today at: SoCalEdDay.myscleroderma.org

AGENDA:
8AM to 9AM-check in registration/morning refreshments
9AM to 9:10 AM Opening Speech/Welcome

9:10AM to 9:50AM: Dr. Joel Epstein- Oral Care in scleroderma

9:50AM to 10:40AM: Dr. Sam Good- The Effects of Trauma and Stress on the Development of Scleroderma

10:40AM to 11:20AM: Dr. Mihaela Taylor -A Holistic Approach Balancing Fatigue

11:20AM to 11:30 AM 10-minute stretch break

11:30AM to 12:10PM Dr. Rajan Saggar - The Benefits of Pulmonary Rehab

12:10PM to 1:10PM LUNCH

1:15PM to 1:55M Dr. Suzanne Kafaja -The Evolution of Research in Scleroderma and What It Means For You?

1:55PM to 2:55PM: Purpose Beyond Diagnosis: How Volunteers Shape the Chronic illness Journey

2:55PM to 3:00PM closing speech and audience surveys

10/29/2026

📣 Save the date!
We’re excited to share that SPIN, in collaboration with 14 scleroderma organizations worldwide, is hosting "What’s New in Scleroderma Research: An Online Event for Patients & Families" for the second year in a row!
This unique online event brings researchers and patient partners together to co-present the latest scleroderma research. Research presentations are selected by a patient panel and tailored to make research accessible and relevant to people living with scleroderma and their families.
🌎 On November 21, we will host two separate events: one in French and one in English.
Register here: https://spinsclero.qualtrics.com/jfe/form/SV_6eSssHbAhaROE5g

10/29/2026

November Virtual Support Group Meetings. For more information visit our website https://myscleroderma.org/meeting-calendar

10/29/2026

Diagnosing scleroderma takes time and multiple steps. Here's how doctors approach it 🔍

There is no single test to diagnose scleroderma, so to make a diagnosis a doctor who suspects scleroderma will ask many questions about what you are experiencing and have experienced over time.

They will ask about your symptoms, such as whether you have problems with heartburn or swallowing, digestive issues like bloating, constipation, or unexplained weight loss, persistent fatigue or achiness, hands that turn white in response to anxiety or cold temperatures, or a cough that just won't go away.

A physical exam will look for signs such as skin swelling or tightening, glossy skin, skin with color changes, blood vessel changes on the hands, face, and around nail beds, hard lumps in the skin or other areas, high blood pressure, and crackles in the lungs.

If your doctor suspects scleroderma, they may first order a blood test called an antinuclear antibody (ANA). This test checks for autoimmune diseases. If the result is abnormal, you will need a more specific blood test to look for scleroderma-specific autoantibodies. Their presence will confirm a scleroderma diagnosis. The doctor may also run a blood count test or blood chemistry panel and may do a skin biopsy, or lung, heart, and gastrointestinal tests.

Learn more about scleroderma diagnosis on our website, linked in the first comment below!

10/29/2026

Bathing Beauty Birdie is a poolside pup with a purpose! Meet Birdie, a cuddly girl who loves every person and loves all dogs, especially big ones who entered Bark for her mama and scleroderma warrior Libby. She is a true velcro dog and loves sitting on laps. Birdie is full of joy and such a giver and wants to EMPOWER the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH. If you want to vote for this beautiful bikini barking pup, click here: https://gogo.photo/698712 and cast your vote today! Voting is only ONE dollar each and you can vote as many times as you want.
Floating on hope, swimming toward a cure, one vote at a time🐾💙

10/28/2026

Meet Miss Apricot's Island Vibes, Barks next contestant, Lei-ing it all on the Line for a Cure.
Miss Apricot is giving Island Vibes and healing lives, while chilling at her favorite window spot, bringing awareness to scleroderma. If you see her staring out at you, send a little aloha her way and maybe a vote or two by clicking here: https://gogo.photo/698028 to help the Foundation EMPOWER the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH. Voting is only ONE dollar each and you can vote as many times as you want/
Mahalo for the meows, funding the fight, one paw at a time🐾🐈💙

10/28/2026

Bonnie & Clyde: LA’s Most Wanted 🐾
Meet Prince Brodie and Duchess Dylan Rose, two mischievous Soft-Coated Wheaten Terrier siblings living the good life in Los Angeles! Brodie is the smooth, charming gentleman, while Dylan is the feisty little troublemaker who runs the show. This Halloween, they’re channeling Bonnie & Clyde, LA’s most adorable partners in crime! Their specialties? Stealing treats, causing mischief, and grand theft of hearts. Wanted for being dangerously cute! If you want to help Prince Brodie and Duchess Dylan Rose aka Bonnie and Clyde EMPOWER the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH click here: https://gogo.photo/698205 and cast your votes today. Voting is only ONE dollar each and you can vote as many times as you want. Locked and Loaded for a Cure🐾💕

10/26/2026

This is so helpful, had to share. Thank you SRF!

Address

8929 S. Sepulveda Boulevard Ste 401
Westchester, CA
90045

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+14242276475

Website

http://www.myscleroderma.org/

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