PKD Free Alliance

03/12/2026

Autosomal dominant polycystic kidney disease (ADPKD) is the most common inherited cause of kidney failure worldwide.

In vitro fertilization (IVF) with preimplantation genetic testing for monogenic disorders (PGT-M) allows impacted families to stop the disease from being passed on.

PKD-Free Alliance proudly provides grant funding to qualified families to help offset costs associated with these life-changing procedures.

This , you're encouraged to learn more about the PKD-Free Babies initiative: https://www.pkdfree.org/pkd-free-babies

02/09/2026

Heedeok Han, MD (), and PKD-Free Mother, Abby, appeared on on January 21, 2026, to discuss polycystic kidney disease and how assisted reproductive technology and grants from the Alliance are allowing patients the ability to not pass on this genetic condition to the next generation

Watch the full PIX 11 Morning News segment at the link in our profile.

01/21/2026

Today, January 21, 2026 marks one year since our organizational rebranding from PKD Outreach Foundation to PKD-Free Alliance. Over the past twelve months, we focused our mission by prioritizing access to grant funding for preimplantation genetic testing (PGT-M) and in vitro fertilization (IVF), so families impacted by polycystic kidney disease could stop the disease from being passed on to the next generation.

Read our Press Release: https://www.pkdfree.org/media-center

Additionally, organizational progress and growth over the course of the past year are detailed in our first-ever "Impact Report." Learn about the success of our grant program, expanding outreach and partnerships, and measurable progress toward a PKD-Free future.

View the Impact Report: https://www.pkdfree.org/impact-reports

In 2026, we are committed to strengthening educational outreach and collaboration with medical providers to ensure PKD families are best informed about effective options to prevent disease transmission.

01/16/2026

It was an absolute pleasure meeting and conversing with Santa Barbara Nutrients at ASN Kidney Week!

Melina Messing, Scientific Director of Ren-Nu at Santa Barbara Nutrients, talks to Kevin Schnurr and Melinna Sanchez from the PKD-Free Alliance about their p...

01/09/2026

News 12 Westchester featured an important story in late Mamaroneck, NY, resident William Meyer, highlighting both his personal journey and the critical mission of PKD-Free Alliance.

Polycystic Kidney Disease (PKD) is a genetic disorder affecting more than 600,000 people in the United States. For William, it is a condition that runs through multiple generations. He was diagnosed in his junior year of college, and his mother and two older sisters also live with the disease.

Over 10 years ago, he and his wife utilized IVF with PGT-M to have a PKD-Free child. William continues to be a leading advocate for this approach and the work that the PKD Free Alliance is doing with families.

12/23/2025

This holiday season, your generosity can alter the future for families impacted by . Join us in making a difference today. Support the Alliance with a matched gift at pkdfree.org/donate (link also in bio).

Warm holiday wishes to all members of the PKD-Free community. May this season bring comfort, connection, and hope to you and your loved ones. ❄️

With gratitude,
Richard, Kevin, and Melinna

12/02/2025

This , your generosity can help alter the future for families affected by polycystic kidney disease.

The attached infographic highlights the remarkable growth of our PKD-Free Babies grant program since fall 2023.

The purple trend line of total applications makes it clear demand is accelerating faster than ever. With continued support from our community, we can not only meet but surpass our projections and ensure even more families have the chance at a PKD-Free future.

With our Year-End Campaign matching gift policy in place, donations of all sizes are doubly meaningful, and we gratefully accept credit/debit card, PayPal, Venmo, and even cryptocurrency (via The Giving Block).

Support us with a MATCHED GIFT at pkdfree.org/donate and/or please share this post with your network to help us raise awareness!

11/25/2025

Since launching PKD-Free Alliance, our mission has been clear: Help families stop Polycystic Kidney Disease (PKD) from being passed to future generations. Together, we’re turning that vision into reality faster than we ever imagined.

Right now, we have the resources to support 300 families, but so many more are waiting for their chance to start a PKD-Free future.

That’s why our 2025 Year-End Campaign aims to raise enough funds to reach 500 families and EVERY SINGLE GIFT MADE WILL BE MATCHED DOLLAR-FOR-DOLLAR.

Double your impact at pkdfree.org/donate, where we accept credit card, PayPal, Venmo, and crypto donations.

With our matching gift policy in place, each $5,000 of donations funds another healthy baby who never inherits PKD and can never pass it down to the next generation.

Donations of all sizes are meaningful. Please share this post to your story and with your network. By doing so, you’ll help us reach new people and grow awareness.

Thank you for being part of this growing community of hope and change. 💜

11/07/2025

PKD-Free Alliance is honored to appear at ASN at the George R. Brown Convention Center in Houston, TX.

Our Chief Implementation and Operations Officer, Kevin Schnurr, and Community Outreach Manager, Melinna Sanchez, are on-site in the Exhibit Hall at Booth #1642 to share how the Alliance is transforming lives and rewriting futures.

Event attendees are invited to learn how we are empowering families through our PKD-Free Babies grant program which supports access to Preimplantation Genetic Testing and In Vitro Fertilization so the disease is no longer passed onto future generations.

We hope you’ll stop by to meet our team, explore collaboration opportunities, and join us in shaping a PKD-free future!

Want to schedule a formal meeting with our team?
Email [email protected]

10/30/2025

To date, almost twenty families have welcomed PKD-Free Babies into the world through the use of assisted reproductive technology supported by our grant funding and discounts. Visit pkdfree.org or email [email protected] to learn how we can work together to improve generational health.

10/23/2025

Patricia was only 17-years-old when she was diagnosed with PKD, adding to the long lineage of affected family members.

In a recent blog post for Patient Worthy, Patty describes the "waiting game" of her disease progression and how a selfless act of living kidney donation from her husband via a paired donor exchange allowed her to receive the Gift of Life eight years ago at age 52.

Patty is the proud mother of Alliance "Spokesmom" Natasha and grandmother of PKD-Free granddaughter, Juliana. Natasha and her husband Anthony welcomed Juliana in December 2023, utilizing assisted reproductive technology with Alliance grant funding, and are expecting another PKD-Free child early next year.

The full article can be accessed here: https://www.pkdfree.org/news/mother-of-alliance-spokesmom-shares-pkd-family-history-in-heartfelt-blog-post