Myasthenia Gravis Foundation of America, Inc.

Myasthenia Gravis Foundation of America, Inc. For a world without MG

"Last January, I found out I was pregnant. After a miscarriage the year prior that positive test brought overwhelming jo...
06/19/2026

"Last January, I found out I was pregnant. After a miscarriage the year prior that positive test brought overwhelming joy, but also fear. Pregnancy with MG is considered high-risk. I had to stop the clinical trial I had been responding well to and brace myself for the unknown. I continued working full-time, 12-hour shifts as a nurse in the ER, trying to hold onto normalcy.

But as the weeks went on, the fatigue deepened. Routine tasks like brushing my hair or starting an IV at work became daily reminders of my limitations.

By my second trimester, I was diagnosed with gestational hypertension. This was terrifying because if it progressed to preeclampsia, I wouldn’t be able to receive magnesium sulfate, which is the treatment for preeclampsia, due to my MG. My care became a constant balancing act."

Read the rest of Kathalina's honest and open discussion about her experience with pregnancy and the "fourth trimester" while living with myasthenia gravis.

myasthenia.org/blog/2026/06/04/pregnancy-and-myasthenia-gravis

This summer, MG awareness is shifting into high gear.MGFA's logo now appears on the side of a racecar thanks to the tire...
06/18/2026

This summer, MG awareness is shifting into high gear.

MGFA's logo now appears on the side of a racecar thanks to the tireless advocacy of marketing professional Gary Lidiak.

Gary has lived with MG since 2020. Although he and his wife have struggled to find a new normal with MG, he considers himself lucky.

"We've been through a lot, but based on what the rest of the world goes through? We are blessed," he shares.

"I want to do something to make a difference for people with MG. My back ground in racing goes back forever. I thought, how do I bring these two things together?"

Working alongside IHRA representative and veteran drag racing professional Larry Morgan, Gary helped secure logo placement on the Larry Pearce Racing Mountain Motor Pro Stock car as a way to introduce new audiences to MG and to the work of the MGFA.

"It's a passion to get the word out about MG, no matter how we do it," Gary says.

If you head to the track this summer or fall, be sure to send us a photo!

Thank you to mWraps for their support, and thank you, Gary, for shining a light on myasthenia gravis among drag racing enthusiasts.

Read Gary's MG story on the MGFA Insider: myasthenia.org/blog/2026/06/16/how-one-racing-fan-is-putting-mg-in-the-spotlight

"The real struggle is trying to match the right treatment to the right patient, and that's because we don't have a full ...
06/17/2026

"The real struggle is trying to match the right treatment to the right patient, and that's because we don't have a full understanding of all the mechanisms that are being triggered in the patient. So if we get to the point of better understanding what is specifically happening on the molecular level in this patient, we will be able to actually have a better way to target specifically the needs of that patient.” -- Alexandra Bayer Wildberger, PhD | MGFA grant recipient

Read more about research being conducted by Dr. Wildberger, recipient of the Next Generation Research Grant in Myasthenia Gravis, co-funded with the American Brain Foundation: www.ctinsider.com/connecticut/article/yale-myasthenia-gravis-antibody-research-22240968.php

June will always be Myasthenia Gravis Awareness Month in Puerto Rico, thanks to the advocacy of the Leadership in Health...
06/17/2026

June will always be Myasthenia Gravis Awareness Month in Puerto Rico, thanks to the advocacy of the Leadership in Health Foundation. This new group has advocated for systemic change to improve awareness and care for myasthenia gravis patients in Puerto Rico.

Through their advocacy, the government established the Myasthenia Gravis Awareness Act. Among other things, this legislative act will set forth public policy to support:
• Early detection and diagnosis
• Research into MG causes and treatments
• Education for medical providers and students

"This project was born from the miracle of life of my brother, Carlos Rivera Valle, whose MG journey inspired both the creation of our foundation and this important legislation," says Damarys Rivera, the foundation's president.

Zakim Bridge in Boston lit up in teal color for Myasthenia Gravis Awareness Month! Wow!! Impressive!
06/16/2026

Zakim Bridge in Boston lit up in teal color for Myasthenia Gravis Awareness Month! Wow!! Impressive!

Setting up a fundraiser in your community is a great way to raise awareness about myasthenia gravis – this June and any ...
06/14/2026

Setting up a fundraiser in your community is a great way to raise awareness about myasthenia gravis – this June and any time!

Fundraisers support the MGFA’s mission to create connections, enhance lives, improve care, and cure MG.

Interested in setting up a fundraiser but not sure where to start?

MGFA Ambassador Siobhain Carolan has some advice.

Siobhain was the top fundraiser at the 2026 MG Walk – Boston. With support from friends and loved ones, she set up several events at restaurants and breweries in her hometown.

“I went into businesses with MGFA pamphlets in hand and said, ‘Hi my name is Siobhain, and I’m hosting a fundraising event for myasthenia gravis.' My advice? Be confident and bold! As an MG patient you are the most knowledgeable about your disease. Share your knowledge and story with anyone and everyone!"

Fundraisers can be as creative as your imagination. Past MGFA fundraisers include:

- Restaurant give-back night
- Pay-as-you-wish outdoor yoga class
- Duck derby
- Paint-and-sip event
- Golf tournaments
- Marathons and 5Ks
- Garage sales for MG

MGFA can help you set up your own fundraising page. It's easy, and we're here to help. Send us a DM, email [email protected], or submit this request form: myasthenia.org/support-the-mg-community/fundraising/plan-a-fundraiser.

We had an energetic and fun day connecting with the MG Community at our MGFA Community Health Fair in Denver. Fairs are ...
06/13/2026

We had an energetic and fun day connecting with the MG Community at our MGFA Community Health Fair in Denver. Fairs are free events for individuals living with myasthenia gravis and their families to come together, learn about MG management, find resources, and foster meaningful connections.

A heartfelt thank you to our speakers... to our amazing volunteers, especially our lead Dave, who runs the Myasthenia Gravis Association of Colorado and brought two proclamations for MG Awareness Month.... to our vendors and partners, especially Alexion, Amgen, argenx, Johnson & Johnson, Regeneron and UCB -- your support makes these events possible -- and to our staff members who managed the event.

If you're interested in attending a Community Health Fair in your area, please visit myasthenia.org/events to learn more and register. We look forward to seeing you at our upcoming events!

Difficulty breathing and slurred speech are two symptoms of myasthenia gravis. Muscles of the tongue, mouth, and lips ma...
06/12/2026

Difficulty breathing and slurred speech are two symptoms of myasthenia gravis. Muscles of the tongue, mouth, and lips may get too weak to form words, and respiratory muscles may get too weak to move enough air in and out of the lungs.

Any difficulty breathing should be evaluated by a doctor right away. For information about emergency management of myasthenia gravis, visit myasthenia.org/living-with-mg/mg-emergency-preparedness/mg-emergencies

Share to raise awareness!

06/11/2026

Check out the Larry Pearce Racing Mountain Motor Pro Stock car - do you see a familiar logo?

We are grateful that a member of the MG community, marketing professional Gary Lidiak, helped secure this placement to raise awareness about MG and the MGFA's work. Thank you for shining a light on myasthenia gravis this month!

Address

290 Turnpike Road, Suite 5-315
Westborough, MA
01581

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Tuesday 8:30am - 5pm
Wednesday 8:30am - 5pm
Thursday 8:30am - 5pm
Friday 8:30am - 5pm

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+18005415454

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