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Monday 8:30am - 5pm Tuesday 8:30am - 5pm Wednesday 8:30am - 5pm Thursday 8:30am - 5pm Friday 8:30am - 5pm

Myasthenia Gravis Foundation of America, Inc.

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Westborough, MA
Myasthenia Gravis Foundation of America, Inc.

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For a world without MG

10/29/2026

My name is Rossibel, and I serve as the co-chair for the MG Walk – Houston.

I'm excited to invite you to join the MG community on November 14. This event brings together people with MG, their families, and their friends to raise critical funds for MG research, as well as education and support resources for those affected by this rare disease.

I walk for every hardship this journey has brought and for every challenge we face daily with myasthenia gravis.

This isn't easy, but we keep going. No one should have to go through it alone.

The MG Walk is uplifting, positive, and so supportive. I hope you and your family and friends will join us at Cullen Park in Houston on November 14!

— Rossibel

Register or make a gift to support individuals living with MG today at myasthenia.org/events.

10/28/2026

In 1952, Jane Ellsworth had a vision: to create an organization that could help people like her teenage daughter, Pat, who lived with myasthenia gravis at a time when awareness was limited and treatment options were few.

That vision became the Myasthenia Gravis Foundation of America.

For 75 years, the MG community has grown together, finding hope and power in collaboration and creating an ecosystem that has fueled enormous progress.

Next year, join us for a celebration of the MG community, the evolution of MG care, and the promising future that lies ahead.

Save the date for the MGFA National Patient Conference, taking place April 11–13, 2027, in Huntington Beach, California. You will not want to miss this incredible gathering of patients, caregivers, and MG experts.

To be the first to know when conference registration and hotel room block reservations are available, sign up for conference updates on our event webpage. There is no conference registration fee for patients and their families.

Start making your plans now! Your MG community is waiting.

https://myasthenia.org/mgfa-events-webinars/national-patient-conference/

10/27/2026

A thymoma is a tumor of the thymus gland. These tumors are most often benign. About 10% of patients with myasthenia gravis have thymomas, and conversely, about 40% of thymomas are associated with myasthenia gravis.

Learn more MG terminology in the MG Lexicon at myasthenia.org/lexicon.

10/25/2026

"I am Brigitta Jánosi (Bridget Jones in English, yes..), 37 years old, and I am from Hungary. I was diagnosed in October 2025 with generalized myasthenia gravis. (I already have Hashimotos and Raynaud syndrome, too, for over 10 years.)

I'm still struggling with a lot of symptoms, which is why I take steroids and I will soon start biologic therapy.

MG has taken a lot from me. It affects my work, my relationships, it affects the whole family, not to mention the emotional burden. That's why I think it's important to talk about it even though I can't approach it from the positive, symptom-free side yet."

10/24/2026

What a day! We convened the MG community in Houston, Louisville, and Phoenix for our Community Health Fairs and the MG Walk. It's so meaningful to witness the power of these gatherings and we look forward to more!

We are grateful for:

*Our volunteers, especially our MG Walk co-leads, Joan and Toni, and MGFA Ambassador Jenny.

*Houston Methodist, our partner in Houston, who organized a wonderful lineup of speakers.

*Our MG Walk - Phoenix fundraisers, who raised over $6,500 for the MGFA's research, education, advocacy, and support mission.

*The generous friends and family of our MG Walk fundraisers, who support our efforts to make life better for people living with MG.

*Our partners argenx, Alexion, Amgen, Johnson & Johnson, UCB, Regeneron, InfuCareRx, and Vor Bio, without whom these events would not be possible.

Looking to deepen your connection to the MG community? We will be back in both Houston and Phoenix in a few weeks for more. :) And Southern California, we look forward to seeing you at the MG Walk in Orange County!

Visit myasthenia.org/events to register.

And stay tuned for more in 2027!

10/24/2026

Join us in wishing our Chief Operating Officer, Craig Strenger, a happy birthday! Have a great day, Craig!

10/23/2026

Join us in welcoming Tom Lorenzo to the MGFA. Tom serves as the MGFA's Senior Director, Global Integrated Marketing & Brand. Throughout his 20-year career in brand and creative strategy, marketing, and digital media, he has helped organizations of all sizes communicate more clearly, reach new audiences, and build stronger communities. Tom drives the MGFA’s efforts to elevate the organization’s brand, and help more people connect with the information, resources, and community the MGFA provides.

10/22/2026

MG treatment news! The FDA has approved a new self-administered autoinjector for Zilbrysq (zilucoplan), a treatment for adults with generalized myasthenia gravis who are AChR antibody-positive.

The once-daily autoinjector offers another way to administer the treatment, giving eligible patients more flexibility and choice. It is expected to become available in early 2027.

10/22/2026

📖 MG Lexicon: Word of the Month

“How have you been feeling?” With MG, that’s a hard question. Symptoms shift hour to hour, so how do you show your care team what your week really looked like?

🎯This month’s word: Activities of Daily Living (ADL) Scale

It’s a quick 8-question check-in on how MG affects everyday tasks: talking, chewing, swallowing, breathing, brushing your teeth, getting up from a chair, and seeing clearly. Scores run from 0 to 24. The higher the score, the bigger the impact.

👉Why it matters: tracking your score over time turns “I’ve been worse lately” into something your care team can act on. Clinical trials also use it to measure whether treatments work, so if you understand the ADL, you can better understand trial results and research news, too.

The [] MG Lexicon was built with clinicians, patient advocates, and industry partners so the whole community can talk the same language.

🔗 Explore the full glossary — https://myasthenia.org/understanding-mg/mg-lexicon/

10/20/2026

October is National Disability Employment Awareness Month, a time to recognize the contributions of workers with disabilities and promote inclusive workplaces.

For people living with myasthenia gravis, navigating work can bring unique challenges. Whether you are looking for workplace accommodations, learning how to discuss MG with coworkers, or seeking support if you experience discrimination, helpful resources are available.

Here are a few places to start:

--> Talking about MG at work: We share tips for discussing MG with coworkers and supervisors: https://myasthenia.org/living-with-mg/after-your-diagnosis/talking-about-mg

--> Requesting workplace accommodations: The Job Accommodation Network offers guidance on accommodations that can help you succeed at work, including a webinar on October 22: https://askjan.org

--> Understanding your rights: For U.S. based community members, the U.S. Equal Employment Opportunity Commission explains protections against disability discrimination and how to seek help: https://www.eeoc.gov/disability-discrimination-and-employment-decisions

You deserve a workplace where you can contribute, feel supported, and thrive. Share these resources with someone who may need them this Disability Employment Awareness Month.

Address

290 Turnpike Road, Suite 5-315
Westborough, MA
01581

Opening Hours

Monday	8:30am - 5pm
Tuesday	8:30am - 5pm
Wednesday	8:30am - 5pm
Thursday	8:30am - 5pm
Friday	8:30am - 5pm

Telephone

+18005415454

Website

http://myasthenia.org/

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