Cystic Fibrosis of West Plains

Cystic Fibrosis of West Plains West Plains Missouri based 100% Volunteer Based organization, and 100% giving to find a cure for a deadly disease. Just trying to be in the fight for a CURE!

Holding two major volunteer based fundraisers a year. WE ARE HOPE FOR MORE TOMORROW'S!

05/29/2026

65 Roses Story

The "65 Roses" story dates back to 1965 when an observant 4-year-old, Richard "Ricky" Weiss, hearing the name of his disease for the first time, pronounced cystic fibrosis as "65 Roses." Today, "65 Roses" is a term often used by young children with cystic fibrosis to pronounce the name of their disease.

The 65 Roses Story
Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social, and service organization seeking financial support for the mission. Mary’s 4-year-old son, Richard (Ricky), listened closely to his mother as she made each call.

After several calls, Richard came into the room and told his Mom, “I know what you are working for.” Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis.

With some trepidation, Mary asked, “What am I working for, Ricky?” He answered, “You are working for 65 Roses.” Mary was speechless.

He could not see the tears running down Mary’s cheeks as she stammered, “Yes, Ricky, I’m working for 65 Roses.”

Since 1965, the term “65 Roses” has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with each day

Cystic Fibrosis Month 2026 💜

05/18/2026

Day 18 of Cystic Fibrosis Awareness Month.

How it is InheritedAutosomal Recessive: A child must inherit one mutated gene from both parents to develop CF.Carriers: People who inherit only one mutated gene are "carriers." They are generally healthy but can pass the gene to their children.Prevalence: Approximately 1 in 30 people in the United States is a CF carrier.

05/12/2026

In the United States, annual deaths from cystic fibrosis (CF) have decreased significantly, falling to 342 in 2020 from over 500 in 1999. Due to improved treatments, mortality rates have dropped by over 2% annually, with the median age of death increasing to 66 in 2022.

That is too many if it is someone you love.

Congratulations to Hannah Harper fromlittle town Willow Springs Mo to AMERICAN IDOL WINNER!!!!
05/12/2026

Congratulations to Hannah Harper from
little town Willow Springs Mo to AMERICAN IDOL WINNER!!!!

05/12/2026

Day 12 Cystic Fibrosis Awareness Month

WEAR PURPLE TODAY and show support to all those in the fight! Tag US let us see the support!!!!

Cystic Fibrosis Association of Missouri

05/11/2026

Cystic Fibrosis Awareness Month Day 11.

Tuesday (tomorrow) WEAR YOUR PURPLE AND LETS SEE THE SUPPORT!!!

Diagnosis: >75% of people are diagnosed by age 2; ~1,000 new cases yearly.

Genetics: 1 in 38 Americans is a symptomless carrier of the defective CFTR gene.

Survival: The median predicted age of survival for those born between 2020-2024 is now 65 years.

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Day 9 of Cystic Fibrosis Awareness Month. In honor of all the moms who are fighting for a CURE!  Cystic Fibrosis Associa...
05/09/2026

Day 9 of Cystic Fibrosis Awareness Month.
In honor of all the moms who are fighting for a CURE!

Cystic Fibrosis Association of Missouri

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DAY 8 OF CYSTIC FIBROSIS MONTH Cystic Fibrosis patients will spend more time with there nurse as they do with there fami...
05/08/2026

DAY 8 OF CYSTIC FIBROSIS MONTH

Cystic Fibrosis patients will spend more time with there nurse as they do with there family. A nurse to these patients are SUPER HEROS!!!

WE APPRECIATE ALL THE NURSES OUT THERE!!! ☘️💜🫶

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05/07/2026

Day 7 Cystic Fibrosis Month:

We educate the public about this rare, genetic, life-shortening disease affecting the lungs and digestive system. Over 105,000 people globally (including 40,000 in the US) live with CF, facing daily treatments and chronic health issues.Key Facts & Awareness GoalsDisease Impact: CF creates thick mucus, causing severe lung infections and impacting the pancreas.Invisible Burden: Patients undergo hours of daily treatment and countless pills.Beyond the Lungs: Awareness efforts emphasize that CF affects the whole body, including digestive issues and CF-related diabetes.No Cure: Research is focused on finding a cure, and while treatments have improved life expectancy, it remains a life-limiting condition.



It is CF Awareness month. Let's see your pictures on May 12th. Please tag us so we can see your support!
05/06/2026

It is CF Awareness month. Let's see your pictures on May 12th. Please tag us so we can see your support!

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West Plains, MO

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